A5018304013- HIV/AIDS Research and Interventions
- Health Policy Implementation Science
- Ethics in Clinical Research
- Adolescent Sexual and Reproductive Health
- Mental Health and Patient Involvement
- HIV, Drug Use, Sexual Risk
- Sex work and related issues
- Primary Care and Health Outcomes
- Homelessness and Social Issues
- Food Security and Health in Diverse Populations
- Community Health and Development
- Religion, Spirituality, and Psychology
- Evaluation and Performance Assessment
- Health Sciences Research and Education
- Religion, Society, and Development
- Criminal Justice and Corrections Analysis
- HIV/AIDS Impact and Responses
- BRCA gene mutations in cancer
- Global Health Workforce Issues
- Management of metastatic bone disease
- Youth Education and Societal Dynamics
- Mobile Health and mHealth Applications
- Social Capital and Networks
- Impact of Technology on Adolescents
- Patient-Provider Communication in Healthcare
University of North Carolina at Chapel Hill
2008-2016
Black & Veatch (United Kingdom)
2015
Indiana University School of Medicine
2015
Triemli Hospital
2015
Wake Forest University
2015
Clinical Science Institute
2014
University of North Carolina Health Care
2012
For decades, the dominant research paradigm has included trials conducted in clinical settings with little involvement from communities. However, concerns about relevance and applicability of processes or outcomes such have led to calls for greater community engagement process. As such, there been a shift emphasis simply recruiting participants engaging members more broadly all aspects The move toward engaged (CEnR) is part driven by recognition that inclusion diverse perspectives...
We explored how community responses to HIV contribute distress in African Americans living with the rural South of United States. listened voices members through focus groups and interviews. Community avoidance HIV, negative views discriminatory behavior powerfully affected people (PLWH). Ongoing distress, coupled limited support, led a life which many PLWH endured their pain silence experienced profound loneliness. conceptualized experiences as socioemotional suffering—the hidden emotional...
African Americans are disproportionately affected by the HIV epidemic inclusive of men who have sex with men, heterosexual and women. As part a community-based participatory research study we assessed testing experience among sexually active 18-30 year old Black women in Durham, NC. Of 508 participants, 173 (74 %) 236 (86 %; p = 0.0008) reported ever being tested. Barriers to (e.g., perceived risk stigma) were same for women, but fell behind mainly because primary facilitator testing-routine...
Increasing the engagement of racial and ethnic minorities in genomic research may help alleviate health disparities. This paper examines community perceptions relationships between race, genes, environment, disparities, it discusses how such influence participation research.We conducted semi-structured interviews with 91 African American, Latino, white lay members leaders North Carolina. Using constant comparison methods, we identified, compared, developed linkages conceptual categories...
Minority engagement in HIV prevention research can improve the process and products of research. Using community-based participatory (CBPR) to develop capacity-building tools promote community awareness prevention, clinical research, roles research.We sought describe a CBPR approach curriculum development increase literacy among Blacks ages 18 30.Community members researchers documented iterative nature lessons learned.Results/Lessons Learned: We used specific strategies support verify...
<i>Aims:</i> Although recent advances in pharmacogenomics are making possible the use of genetic testing to determine best medication for patients, little is known about how patients view such procedures. The aims this study that were developed collaboratively as part a community-academic partnership are: (1) What attitudes and perceptions prescription drug consumers concerning personalized medicine compatibility do they differ between African American white patients? (2)...
Background: Project Education and Access to Services Testing (EAST) worked with a community advisory board (CAB) (1) identify individual-level, provider-level, community-level factors influencing attitudes about human immunodeficiency virus (HIV) HIV/acquired immuno-deficiency syndrome (AIDS) research (2) develop test community-based HIV clinical trials educational intervention in six rural counties the Southeast. Objectives: We describe processes impact of forming collaborating rural,...
Background. Although churches are an important partner for improving health within the African American community, it is not known how congregants best reached by promotion activities and thus to target members in recruitment. This study examined characteristics of congregants’ beliefs interests faith-based related their willingness attend church-based activities. Method. We surveyed adult ( n = 1,204) 11 predominately North Carolina. Surveys collected data four domains: demographics (age,...
The challenge of identifying and recruiting U.S. women at elevated risk for HIV acquisition impedes prevention studies services. Prevention Trials Network (HPTN) 064 was a multisite, longitudinal cohort study designed to estimate incidence among living in communities with prevalent poverty. Venue-based sampling (VBS) methodologies participant venue characteristics are described.Eligible were recruited from 10 poverty using VBS. Participant eligibility criteria included age 18-44 years,...
Minorities are disproportionately affected by HIV/AIDS in the rural Southeast; therefore, it is important to develop targeted, culturally appropriate interventions support minority participation research. Using intervention mapping, we developed a comprehensive multilevel for service providers (SPs) and people living with (PLWHA). The authors collected data from both groups through 11 focus 35 individual interviews. Resultant were used matrices of behavioral outcomes, performance objectives,...
In Brief Innovative models to facilitate more rapid uptake of research findings into practice are urgently needed. Community members who engage in can accelerate this process by acting as adoption agents. We implemented an Evidence Academy conference model bringing together researchers, health care professionals, advocates, and policy makers across North Carolina discuss high-impact, life-saving study results. The overall goal is develop dissemination implementation strategies for...
Background: Although racial and ethnic minorities have disproportionately high rates of HIV infection, these groups are underrepresented in HIV-related clinical trials. This illustrates the need for more innovation attempts to engage populations calls interdisciplinary translational research. Objectives: Eleven focus 35 interviews were conducted with people living HIV/AIDS (PLWHA) explore perspectives rural community leaders, service providers, PLWHA about bringing research, including...
Parents and caregivers play an important role in sexual socialization of youth, often serving as the primary source information about sex. For African American rural youth who experience disparate rates HIV/sexually transmitted infection, improving caregiver-youth communication topics may help to reduce risky behaviors. This study assessed impact intervention improve topic communication.A Preintervention-postintervention, quasi-experimental, controlled, community-based trial.Intervention was...
The objective of this study was to describe the network structures agencies and individuals engaged in HIV prevention a North Carolina county.The authors conducted cross-sectional interconnected identified through snowball sampling. Participants were interviewed face with structured questionnaire about interactions others network. Network characteristics such as density centralization computed UCINET software.The 11 had an information exchange 14%. Exchanges clients funds even more rare. 17...
The purpose of the current study is to describe demographic, behavioral, and psychosocial characteristics adolescent caregiver lay health advisers (LHAs) participating in an intervention designed reduce risk behaviors among rural African-American adolescents. Teach One, Reach One integrates constructs from Theory Planned Behavior Social Cognitive Theory. It acknowledges that changing sexual adolescents requires one's knowledge, attitudes, normative beliefs about behavior peers, self-efficacy...
Background: Partnerships between academic and community-based organizations (CBOs) can richly inform the research process speed translation of findings. Although immense potential exists to co-conduct research, a better understanding how create sustain equitable relationships entities with different organizational goals, structures, resources, expectations is needed. Objective: We sought engage community leaders in development an instrument assess CBOs’ interest capacity academia...
The Problem: A disconnect exists between research resources and the health care needs of people those are designed to serve. While a great deal is being produced at academic institutions across country, topics investigated often driven by researchers' interests or funding announcements focused on specific areas interest funder.
Human immunodeficiency virus (HIV) prevention programs and agencies are fighting growing rates of infection with decreasing resources. Identification gaps in HIV services can help inform funding program policies. To describe needs a southern U.S. state, we conducted face-to-face interviews persons considered by others their community to be "influential informants" the community's sample counties North Carolina. Using county as unit analysis (n = 10), investigated differences characteristics,...
Community-Based HIV Clinical Trials:An Integrated Approach in Underserved, Rural, Minority Communities Giselle Corbie-Smith, MD, MSc, Malika Roman Isler, PhD, MPH, Margaret Shandor Miles, FAAN, RN, and Bahby Banks, MPH What is the Purpose of this study/review? • To explore perspectives rural community leaders, service providers, people living with HIV/AIDS about bringing HIV-related research, including clinical trials, into communities. Problem? Although racial ethnic minorities have...