- Family Caregiving in Mental Illness
- Family Support in Illness
- Mental Health Treatment and Access
- Schizophrenia research and treatment
- Social and Educational Sciences
- Maternal Mental Health During Pregnancy and Postpartum
- Family and Patient Care in Intensive Care Units
- Family and Disability Support Research
- Intergenerational Family Dynamics and Caregiving
- Geriatric Care and Nursing Homes
- Mental Health and Patient Involvement
- Palliative Care and End-of-Life Issues
- Counseling, Therapy, and Family Dynamics
- Early Childhood Education and Development
- Education, Healthcare and Sociology Research
- Health, psychology, and well-being
- Child and Adolescent Psychosocial and Emotional Development
- Educational and Psychological Assessments
- Attachment and Relationship Dynamics
Marie Cederschiöld University
2015-2024
Dalarna University
2008-2012
Public Health Dayton & Montgomery County
2010
The involvement of family members in psychiatric care is important for the recovery persons with psychotic disorders and subsequently reduces burden on family. Earlier qualitative studies suggest that participation can be limited by how they experience professionals' approach, which suggests a connection to concept alienation. Thus, aim this study was national sample investigate members' experiences health approach. Data were collected Family Involvement Alienation Questionnaire. median...
ABSTRACT: The main purpose for the expansion of supported community care persons with serious mental illness in Sweden was to ensure right these live as citizens community. However, earlier research shows that negative attitudes towards present an obstacle social integration illness. aim this study, conducted Sweden, evaluate existing instrument's (Community Attitudes Mental Illness, CAMI), validity and reliability. An additional adapt develop questionnaire Swedish circumstances. After...
Accessible summary • The importance of involving family members in the care individuals with schizophrenia or other psychotic illnesses has received increasing attention within psychiatric healthcare services. However, investigations among suggest that they often experience a lack involvement. professionals' approach towards them may have bearing on whether feel involved not. aim this survey was to investigate what aspects receiving ascribe as important relation and how these agree their...
Research suggests that siblings of individuals with severe mental illness are affected by the situation and health care services seem to be inadequate in meeting their needs for support. The aim this study is explore how a psychotic illness, who have participated support group, experience situation. Thirteen focus group interviews, which were analyzed inductive content analysis. findings interpreted into an overall single theme: A lonely life journey bordered struggle. This theme consists...
ABSTRACT Research shows that family members of people with a mental illness often experience lack involvement in the psychiatric care their relative. An interpretation findings these studies raises question whether members' not being involved can be conceptualized terms alienation towards health services from encounter care. In order to explore this possibility, Family Involvement and Alienation Questionnaire (FIAQ) was constructed, guided by relevant theoretical frameworks empirical...
Aims and objectives To explore parents’ involvement in the informal professional care of their young adult child with mental illness. A further aim was to examine concepts caring theory ‘Involvement light–Involvement dark’ context health care. Background Mental illness has increased among people high‐income countries, suicide is now leading cause death for this group. Because disease, these may have difficulty carrying out daily, taken‐for‐granted, tasks. Consequently, they often become...
Not only people suffering from severe mental illness (SMI) but also their family members experience stigma. Relatives are met with negative attitudes healthcare professionals, which adds to the problem. This Swedish study employed a qualitative inductive explorative design in analysis of written free-text responses 65 persons who completed questionnaire for relatives SMI. The overarching theme, "A vicious circle hope and despair", was elaborated by four categories formed circle: "Wanting...
The aim of this exploratory cross-sectional study was to investigate the experiences relatives individuals with severe mental illness and without participation in patient-appointed Resource Group Assertive Community Treatment (RACT). A total 139 (79 60 RACT) completed Family Involvement Alienation Questionnaire, Burden Inventory for Relatives Persons Psychotic Disturbances, family version Stigmatizing Experiences. We found that participating RACT experienced a more positive approach from...
Abstract Aim To adapt the Family Involvement and Alienation Questionnaire (FIAQ) for use in care of older people, psychiatric care, palliative diabetes to evaluate its validity reliability. Background professional has proven be important family members. However, they have described feelings alienation relation how experienced professionals’ approach. explore this issue, a broad instrument that can used different contexts is needed. Design A psychometric evaluation study, with cross‐sectional...
Abstract The aim of this study was to describe and compare family members' experiences approach in encounters with healthcare professionals possible feelings alienation the professional care within four contexts: older people, psychiatric care, palliative diabetes care. design an explorative cross‐sectional survey study. Data were collected Sweden using Family Involvement Alienation Questionnaire‐Revised (FIAQ‐R). It measures professionals' feeling from provision A total 1047 questionnaires...
Abstract Aim To explore the experiences of family members adult persons with type 1 diabetes concerning both approach healthcare professionals and feelings alienation in encounters professional care. Methods A cross‐sectional explorative quantitative qualitative design. The Family Involvement Alienation Questionnaire—Revised (FIAQ‐R), including an open‐ended question, was answered by 37 diabetes. Analyses included descriptive statistics analysis. study has received ethical approval. Results...
Relatives often take on great responsibility for helping the patient in his or her daily life, and many relatives experience lack of support from health care services. Cooperation with is a central component Resource groups Assertive Community Treatment (R-ACT). This person-centered model has been found to decrease symptoms, increase level function, strengthen well-being patients psychotic disorders. However, little known about relatives’ experiences model. To examine R-ACT. Further, compare...
Abstract Background Relatives often provide extensive support to their next of kin suffering from psychotic disorders. However, they experience lack psychiatric services. While cooperation with relatives is a central component in Resource Group Assertive Community Treatment (RACT), little known about relatives’ experiences RACT. The aim was investigate encountering care and without RACT, relation quality life, family burden stigma. Methods A total 139 individuals disorders the Region Västra...
Purpose: The purpose was to investigate family members’ experiences of the healthcare professionals’ approach and feeling alienation in nursing homes. Methods: This study had a cross-sectional design collecting data from seven homes Sweden using Family Involvement Alienation Questionnaire – Revised (FIAQ-R). final sample consisted 133 members (response rate 42.6%). Data were analyzed with variety rank-based, non-parametric statistical methods. Results: general experienced positive...