A5076500450- Mental Health and Patient Involvement
- Health Systems, Economic Evaluations, Quality of Life
- Health Policy Implementation Science
- Primary Care and Health Outcomes
- Grief, Bereavement, and Mental Health
- Migration, Health and Trauma
- Patient-Provider Communication in Healthcare
- Health and Medical Research Impacts
- Healthcare innovation and challenges
- Palliative Care and End-of-Life Issues
- Social Media in Health Education
- Disability Rights and Representation
- Focus Groups and Qualitative Methods
- Patient Dignity and Privacy
- Biomedical Ethics and Regulation
- Interprofessional Education and Collaboration
- Childhood Cancer Survivors' Quality of Life
- Healthcare Systems and Technology
- Patient Satisfaction in Healthcare
- Geriatric Care and Nursing Homes
- Science, Research, and Medicine
- Homelessness and Social Issues
- Migration, Aging, and Tourism Studies
- Research in Social Sciences
University of Southampton
2023-2024
University of Liverpool
2015-2024
Royal Marsden NHS Foundation Trust
2021
Training in patient and public involvement (PPI) is recommended, yet little known about what training needed. We explored researchers' PPI contributors' accounts of activity to inform the design for both parties.
Randomised controlled trials (RCTs) are considered particularly likely to benefit from patient and public involvement (PPI). Decisions made by professional researchers at the outset may go on have a significant impact potential for PPI contributions.
Background In comparison with other study designs, randomised trials are regarded as particularly likely to benefit from patient and public involvement (PPI). Using mixed-methods research we investigated PPI the perspectives of researchers contributors. Methods Randomised in receipt funding Health Technology Assessment (HTA) programme between 2006 2010 were identified. Funding applications board referee comments obtained data relevant extracted. Chief investigators (CIs), contributors UK...
In this paper, we use crip time to reflect on being left behind in relation normative temporalities, based our experiences of living with Energy Limiting Conditions (ELC) while at different career stages working within and collaboration UK academia. Chronic illness has a profound long-lasting impact people's lives, for many conditions there is currently no prospect recovery. Living ELC often demands careful pacing activity; navigating spaces institutional structures designed 'normative'...
<ns3:p>Background Families, friends and support networks are key to managing bereavement. COVID-19 social restrictions prevented families from being with the dying participating in usual rituals honour dead. This resulted disconnection, feelings of guilt, difficulty making sense death reconstructing relationships. In response this context a theoretically informed, co-produced web-resource facilitate meaning-making, which situates bereavement family friends, was developed. paper describes...
<ns3:p>Background: Families, friends and support networks are key to managing bereavement. COVID-19 social restrictions prevented families from being with the dying participating in usual rituals honour dead. This resulted disconnection, feelings of guilt, difficulty making sense death reconstructing relationships. In response this context a theoretically informed, co-produced web-resource facilitate meaning-making, which situates bereavement family friends, was developed. paper describes...
Patient and public involvement (PPI) in research is defined as 'research being carried out "with" or "by" members of the rather than "to", "about" "for" them'. A knowledge transfer event (KTE) was planned to share experience organizations who carry medical technology research. The KTE attended by with an interest effective application PPI health-care research, including from academia, industry charities. aim current discuss development a impact measurement framework support future growth within
<h3>Background</h3> Qualitative focus group research traditionally involves participants meeting face-to-face- in small groups to allow for participant interaction. The Covid-19 pandemic has prevented such meetings. Consequently, moved holding online meetings using videoconferencing software. We discuss the advantages and challenges of running groups. <h3>Method</h3> ran two on early palliative care haemato-oncology platform Zoom. Recruitment was conducted pre-existing mailing lists person...