Vitiligo is a chronic pigmentary disorder of the skin, affecting 1-2% general population. Although not life threatening, vitiligo may considerably influence patients' health-related quality (QoL) and psychological well-being. Willingness-to-pay (WTP) construct reflecting disease burden QoL reduction which has yet been used in vitiligo.To assess WTP patients with vitiligo.Patients were included nationwide German postal survey. was assessed by two standardized items, evaluated using...

Patients with psoriatic arthritis (PsA) suffer from increased burden of disease and impairments in quality life. Early detection treatment PsA could contribute to the prevention clinical radiological progression.To analyse predictive value patient-reported outcomes for concomitant a population-based cohort patients psoriasis.We performed retrospective analysis data three independent national cross-sectional studies on health care psoriasis PsA, conducted Germany years 2005, 2007 2008. were...

<b><i>Aim:</i></b> To evaluate the impact of disease visibility on psychological stress factors in neurofibromatosis type 1 (NF1) and to explore body image NF1 patients. <b><i>Methods:</i></b> 228 adult patients participated this cross-sectional survey. The questionnaire assessed perceived patients’ image. Outcome parameters were depression, distress quality life. Mediation models performed test if experience mediated effect outcome parameters....

Abstract Background The successful treatment of atopic eczema ( AE ) should result in the improvement both physical symptoms and patient′s quality life (QoL). This study was conducted using a sample dermatologists throughout Germany. is due to being main health care providers . Objectives Obtaining reliable data on from patient's physician's perspective. Methods cross‐sectional assessed: individual clinical history; dermatology‐specific QoL DLQI ); state EQ ‐5d‐ VAS treatments; burden caused...

BackgroundDifferent phenotypes have been described in psoriasis. Few details are known about the topology of patients routine care.

Although nail psoriasis affects a substantial proportion of patients and causes significant psychologic distress, few epidemiologic data characterizing with involvement are available. The aim this research was to elucidate differences between those without any involvement, taking quality indicators health care from the patient's perspective into account.In total, 2449 patient members Deutscher Psoriasis Bund, largest organization for in Germany, were interviewed nationwide,...

Abstract Background Rosacea is a chronic inflammatory dermatosis affecting >2% of the population. Willingness to pay (WTP) well established method which reflects individual burden disease. Objectives Evaluation WTP and quality life (QoL) in patients with rosacea. Methods Nationwide postal survey on adult rosacea affiliated German patient advocacy group. was evaluated by three standardized items compared historical data vitiligo ( n = 1023). QoL assessed using Dermatology Life Quality...

<b><i>Background:</i></b> Psoriasis is frequently associated with obesity which possibly contributes to reduced treatment response. <b><i>Objectives:</i></b> Assessment of the prevalence in patients psoriasis Germany 2013/2014. <b><i>Patients and Methods:</i></b> The frequency overweight was assessed by body mass index (BMI) evaluated according severity [Psoriasis Area Severity Index (PASI)]....

The Dermatology Life Quality Index (DLQI) is the most frequently used health-related quality of life (HRQoL) instrument for skin diseases. According to DLQI instructions, responses 'not relevant' and 'my problem has not at all affected this aspect life' ('not all') have be scored as 0 = no HRQoL impairments.The aim study was estimate potential bias measurements patients with psoriasis based on items considered relevant.One thousand two hundred forty-three were surveyed in a cross-sectional...

Abstract Background Atopic eczema ( AE ) is a common and burdensome chronic skin disease. Clinical guidelines suggest an evidence‐based, personalized stepwise treatment approach. Only few studies have so far focused on the specific patient needs in treatment. Objectives To characterize therapeutic of patients with routine care. Methods Nationwide cross‐sectional study 91 dermatology practices outpatient clinics. Descriptive statistics were used for valuation. Comparisons HRQ oL general...

Abstract Background Progress in the management of atopic dermatitis (AD) and recent introduction first biologic have raised interest costs treating AD. Objectives Since there is a lack data, objective this study was to determine annual adults with AD from societal perspective. Methods A nationwide cross‐sectional conducted 111 dermatological offices under routine conditions. Cost parameters were collected standardised questionnaire on disease‐related costs. This allows determination for...

Though psoriasis poses a substantial chronic socio-economic burden, few studies have addressed the economic impact in Germany.The objective was to evaluate annual costs of Germany from societal perspective.A cross-sectional study performed randomly selected German dermatology practices and clinics 2013/2014 using standardized questionnaires illness-related costs. Costs were grouped by perspective category as well analysed sex age. Group differences tested non-parametric tests.Complete data...

Genital psoriasis affects 2-5% of patients; generalised plaque or intertriginous also the genital area in 29-40% cases. Anogenital has been associated with significant quality life impairments, but little is known about specific patient needs/treatment goals. This study aimed to examine overall and sex-related disease burden, needs treatment benefits patients anogenital psoriasis, compared not affecting anal/genital areas. Within cross-sectional nationwide survey, 2,009 participants were...

Congenital melanocytic nevi (CMN) are associated with mental stress as well medical risks for those affected. The German CMN registry was initiated in 2005. Herein, we present results from an interim analysis focusing on disease course, treatment modalities, and quality of life.One hundred patients enrolled the between 2005 2012 were included this prospective cohort study, asked to participate a follow-up survey. In addition, standardized questionnaires used collect data life (dermatology...

Assessment of disease severity is an essential component psoriasis management. Moderate‐to‐severe qualifies for systemic treatment but different definitions are used. To analyse the impact in real‐world healthcare. Cross‐sectional data on 3274 patients with from more than 200 dermatology offices and clinics across Germany were analysed based Psoriasis Area Severity Index (PASI) Dermatology Life Quality (DLQI). The proportions having moderate‐to‐severe determined accordingly. proportion...

Background In the study series PsoHealth first data from 2004/05 showed a poor quality of health care for psoriasis in Germany. Most patients lacked sufficient and only minor proportion received systemic drugs. Since 2007, national programme has been conducted. Objectives (1) To analyse most recent PsoHealth4 survey 2016/17, (2) to compare indicators with prior assessments since 2004/05. Materials methods The cross-sectional was conducted three preceding studies were performed 2004/05, 2007...

<b><i>Background/Aims:</i></b> Numerous therapies are recommended to treat atopic dermatitis. The German national health care study ‘Atopic Health' generated nationwide data on the situation from patients' perspective. <b><i>Methods:</i></b> Data for 1,678 adult patients were collected within a retrospective cohort throughout year 2010. Six scores capture satisfaction with care, quality of life (Dermatology Life Quality Index, EQ-5D-VAS),...

Two national surveys conducted in 2005 and 2007 indicated deficits psoriasis care Germany, although a significant improvement could be observed. When assessing health provision it is crucial to take the patient's perspective into consideration. Therefore different approaches may necessary. (1) To survey reliable data on situation of vulgaris from patient organisation members. (2) compare members 2008 with patients surveyed dermatological centres 2007. A nationwide, non-interventional,...