A5022748100- BRCA gene mutations in cancer
- Ethics in Clinical Research
- Genomics and Rare Diseases
- Biomedical Ethics and Regulation
- COVID-19 Digital Contact Tracing
- Patient Dignity and Privacy
- Ethics and Legal Issues in Pediatric Healthcare
- Genetic factors in colorectal cancer
- Disaster Management and Resilience
- Race, Genetics, and Society
- Health Systems, Economic Evaluations, Quality of Life
- Data-Driven Disease Surveillance
- Viral Infections and Outbreaks Research
- Ethics in medical practice
- Vaccine Coverage and Hesitancy
- Nonprofit Sector and Volunteering
- Genetics, Bioinformatics, and Biomedical Research
- COVID-19 epidemiological studies
- Psychology of Moral and Emotional Judgment
- Doping in Sports
- Global Security and Public Health
- Family Support in Illness
University of Exeter
2024-2025
KU Leuven
2019-2025
Johns Hopkins University
2017
In order to combat the COVID-19 pandemic, policymakers around globe have increasingly invested in digital health technologies support 'test, track and trace' approach of containing spread novel coronavirus. These include mobile 'contact tracing' applications (apps), which can trace individuals likely come into contact with those who reported symptoms or tested positive for virus request that they self-isolate. This paper takes a critical public perspective advocates 'genuine participation'...
<ns4:p>An international workshop was held in Leuven, Belgium, on June 19–20, 2023, to discuss the communication of genetic risk information within families context personalized prevention. Organized as part Horizon Europe project PROPHET (PeRsOnalised Prevention roadmap for future HEalThcare Europe), event gathered interdisciplinary stakeholders explore benefits and challenges various policy approaches returning test results with implications family members. Five key themes emerged from...
The sudden and dramatic advent of the COVID-19 pandemic led to urgent demands for timely, relevant, yet rigorous research. This paper discusses origin, design, execution SolPan research commons, a large-scale, international, comparative, qualitative project that sought respond need knowledge among researchers policymakers in times crisis. form organization as commons is characterized by an underlying solidaristic attitude its members intrinsic organizational features which data study shared...
Abstract Genomic sequencing has emerged as a powerful tool with significant implications for patients and their relatives, however, empirical evidence suggests that effective dissemination of risk information within families remains challenge. Policy responses to address this issue vary across countries, Belgium notably lacking specific regulations governing nondisclosure genetic risk. In study, we conducted semi-structured interviews clinicians from Belgian clinical genetics centers gain...
Introduction: There has been no work that identifies the hidden or implicit normative assumptions on which participants base their views during COVID-19 pandemic, and reasoning how they reach moral ethical judgements. Our analysis focused participants' values, positions around transmission of SARS-CoV-2.Methods: We analyzed data from 177 semi-structured interviews across five European countries (Germany, Ireland, Italy, Switzerland United Kingdom) conducted in April 2020.Results: Findings...
Abstract Throughout the COVID-19 pandemic, concept of solidarity has been invoked frequently. Much interest centred around how citizens and communities support one another during times uncertainty. Yet, empirical research which accounts understands citizen’s views on pandemic solidarity, or their actual practices remained limited. Drawing upon analysis data from 35 qualitative interviews, this article investigates residents in England Scotland enacted, understood, criticised (the lack of)...
Objectives Hereditary cancer has implications not only for patients but also their at-risk relatives (ARRs). In current clinical practice, risk disclosure to ARRs involves collaboration between and healthcare providers (HCPs). However, the specific responsibilities of each party are intertwined at times unclear. this study, we explored public attitudes regarding moral legal disclose familial information uninformed ARRs. Design an online cross-sectional survey, participants were prompted with...
<title>Abstract</title> Genomic sequencing has emerged as a powerful tool with significant implications for patients and their relatives, however, empirical evidence suggests that effective dissemination of risk information within families remains challenge. Policy responses to address this issue vary across countries, Belgium notably lacking specific regulations governing nondisclosure genetic risk. In study, we conducted semi-structured interviews clinicians from Belgian clinical genetics...
Doping control samples may be used for research purposes by the World Anti-Doping Agency (WADA)-accredited laboratories after their compulsory storage period has expired. This study investigates opinions of stakeholders toward governance antidoping on these and to evaluate current framework. Semistructured interviews were conducted with in research. The distinction between quality assurance International Standard Laboratories (ISL) is neither well-understood nor interpreted uniformly...