A5060818534- Adolescent and Pediatric Healthcare
- Family Support in Illness
- Geriatric Care and Nursing Homes
- Childhood Cancer Survivors' Quality of Life
- Healthcare Policy and Management
- Chronic Disease Management Strategies
- Food Security and Health in Diverse Populations
- Global Health Care Issues
- Frailty in Older Adults
- Cancer-related cognitive impairment studies
- Patient Satisfaction in Healthcare
- Interprofessional Education and Collaboration
- Glioma Diagnosis and Treatment
- Intergenerational Family Dynamics and Caregiving
- Dialysis and Renal Disease Management
- Gender, Labor, and Family Dynamics
- Dementia and Cognitive Impairment Research
University of Tennessee Health Science Center
2025
Duke University
2022-2024
University of North Carolina at Chapel Hill
2023-2024
ABSTRACT Increasing attention has been paid to investigations on how social determinants of health (SDOH; e.g., income, employment, education, housing, etc.) impact outcomes. However, these variables are often not collected in routine clinical practice. As a consequence, researchers may attempt link retrospective medical records those datasets that can provide additional SDOH information, such as the Area Deprivation Index (ADI). time‐consuming geographic calculations deter analyses. To...
Medical advances have increased the life expectancy of adolescents and young adults (AYA) with cystic fibrosis (CF) importance high-quality health care transitions (HCT) from pediatric-to-adult focused care. The purpose this study was to describe perceptions HCT readiness among caregivers AYA CF during COVID-19 pandemic. Using a qualitative descriptive design, aged 12–21 years old were recruited three large centers across eastern U.S. Data collected using an online questionnaire open ended...
Enhancing family readiness for the healthcare transition (HCT) to adult-focused care can help adolescents and young adults (AYA) thrive in adulthood. We aimed explore modifiable non-modifiable individual, family, factors associated with HCT of AYA among families cystic fibrosis (CF) during COVID-19. A multi-site, cross-sectional design was used an online survey deployed their from three US pediatric CF centers. The STARx Transition Readiness Questionnaire assessed caregiver- AYA-perceived...
We examined the influence of special healthcare needs, onset COVID-19 pandemic, and their interaction on receiving transition services to prepare for future adult care among US adolescents, whether social determinants health moderated relationship these factors with services.
Abstract Patient-clinician relationships are fundamental attributes of high-quality home health care (HHC); yet little is known about patient-clinician in HHC (where 5 million Medicare beneficiaries receive annually). The objective the study was to describe perspectives patients and clinicians HHC. We conducted a secondary qualitative analysis semi-structured interviews (n=34) from completed investigating older adult (or caregivers as proxy) their (17 pairs) on discharge preparedness large...
Abstract Transitional care is widely recognized as a set of time-limited services to support older adults during transfers between settings and providers care; however, little known about that prepare their caregivers for transitions from Home Health Care (HHC) independent self-care at home. The objective this study was describe HHC patients clinician perceptions unmet needs after discharge recommendations address them in future research. A multiple case-study design used single large...