A5042977644- Autism Spectrum Disorder Research
- Family and Disability Support Research
- Food Security and Health in Diverse Populations
- Hemoglobinopathies and Related Disorders
- Iron Metabolism and Disorders
- Infant Development and Preterm Care
- Adolescent and Pediatric Healthcare
- Family Support in Illness
- LGBTQ Health, Identity, and Policy
- Disability Education and Employment
- Child and Adolescent Health
- Child Development and Digital Technology
- Child Nutrition and Feeding Issues
- Musculoskeletal pain and rehabilitation
- Fibromyalgia and Chronic Fatigue Syndrome Research
- Vaccine Coverage and Hesitancy
- Prenatal Screening and Diagnostics
- Pain Management and Placebo Effect
- Childhood Cancer Survivors' Quality of Life
Boston University
2019-2024
<h3>Importance</h3> Early identification of autism spectrum disorder (ASD) is associated with improved cognitive and behavioral outcomes. Targeted strategies are needed to support equitable access diagnostic services ensure that children from low-income racial/ethnic minority families receive the benefits early ASD treatment. <h3>Objective</h3> To test efficacy family navigation (FN), an individually tailored, culturally informed care management strategy, increase likelihood achieving...
Abstract For Black children with sickle cell disease (SCD) and their families, high stigmatization pervasive racism increase susceptibility to discrimination in healthcare settings. Childhood experiences of can result medical nonadherence, mistrust providers, poorer health outcomes across the lifespan. Caregivers providers are essential childhood SCD management therefore well-positioned provide insight into context pediatric SCD. This mixed-methods study sought caregivers’ providers’...
Abstract Background Children with sickle cell anemia (SCA) have substantial medical needs and more unmet basic than children other conditions. Despite a recent focus on social determinants of health (SDoH), there remains an incomplete understanding the processes linking SDoH disease management, particularly for youth SCA. This study elucidated these identified ways to mitigate deleterious effects adverse SCA management. Methods Parents/primary caregivers ( N = 27) (≤12 years old)...
Early diagnosis and social support postdiagnosis (i.e., family involvement) can lead to improved outcomes for children with autism spectrum disorder (ASD) other developmental disorders. Children of minority ethnic racial groups are typically diagnosed later in childhood compared White children, contributing disparities outcomes. Research has not yet explored involvement during comprehensive evaluations nor accounted cross-cultural differences roles involvement. This qualitative study sought...
Abstract Introduction Sickle cell disease (SCD) is the most common genetic disorder among children. As type of SCD, sickle anemia (SCA) associated with severe complications across lifespan. parents/caregivers hold primary management responsibility during childhood, their involvement in activities, including medical decision‐making, critical to successful and timely pediatric SCD. However, processes through which caregivers make SCD‐related decisions remain unknown. The current paper examined...