A5052809737- Neuroethics, Human Enhancement, Biomedical Innovations
- Neurological disorders and treatments
- Ethics in Clinical Research
- Historical Psychiatry and Medical Practices
- Neuroscience and Neural Engineering
- Mental Health and Patient Involvement
- Mental Health and Psychiatry
- Ethics in medical practice
- Ethics and Social Impacts of AI
- Psychology of Moral and Emotional Judgment
- Interdisciplinary Research and Collaboration
- Healthcare innovation and challenges
- Hermeneutics and Narrative Identity
- American and British Literature Analysis
- Contemporary Sociological Theory and Practice
- History of Science and Medicine
- Public Health Policies and Education
- Food Allergy and Anaphylaxis Research
- Family and Patient Care in Intensive Care Units
- Data Analysis and Archiving
- Vagus Nerve Stimulation Research
- American Literature and Humor Studies
- German Social Sciences and History
- Aging, Elder Care, and Social Issues
- Privacy, Security, and Data Protection
University of California, San Francisco
2018-2024
Institute on Aging
2024
University of Pennsylvania
2024
Center for Neurosciences
2024
University Memory and Aging Center
2018-2023
Beth Israel Deaconess Medical Center
2020
University of Cambridge
2013-2020
University of Zurich
2016-2017
We explored the characteristics and motivations of people who, having obtained their genetic or genomic data from Direct-To-Consumer testing (DTC-GT) companies, voluntarily decide to share them on publicly accessible web platform openSNP. The study is first attempt describe open sharing activities undertaken by individuals without institutional oversight. In paper we provide a detailed overview distribution demographic engaged in sharing. geographical respondents showed USA as dominant....
This study reports on 13 semistructured in-depth interviews to qualitatively explore the experiences of individuals who publicly shared their direct-to-consumer genetic testing results platform openSNP. In particular, we focused interviewees' understanding privacy. Participants reported that likelihood and magnitude privacy harms depend gender, ethnicity, sexual orientation, stigma associated with certain clinical conditions, existence adequate legislation, nature national health care...
Background: Newer "closed-loop" neurostimulation devices in development could, theory, induce changes to patients' personalities and self-perceptions. Empirically, however, only limited data of patient family experiences exist. Responsive (RNS) as a treatment for refractory epilepsy is the first approved commercially available closed-loop brain stimulation system clinical practice, presenting an opportunity observe how conceptual neuroethical concerns manifest treatment.Methods: We conducted...
This article focuses on the social and cultural aspects of unprecedented unparalleled proliferation food-related allergies intolerances. It thus aims to contribute filling theoretical lacunae in current sociological approach this fairly recent phenomenon. The article’s framework is divided into four segments. First, rise food placed within field history medicalization allergies, seeks understand phenomenon context industrialized modern world. following section discusses how why lay experts...
This study explored illness experiences and decision-making among patients with epilepsy who underwent two different types of surgical interventions: resection versus implantation the NeuroPace Responsive Neurostimulation System (RNS). We recruited 31 participants from a level four center in an academic medical institution. observed 22 patient clinic visits (resection: n = 10, RNS: 12) conducted 18 in-depth interviews seven, 11); most included caregivers. Using applied ethnographic approach,...
Responsive and human-centered neurotechnology development requires attention to public perceptions, particularly among groups underserved by existing treatments.
Abstract This article reports an ethnographic study of the handover routines in Germany's first dementia village, with a central focus on how care is balanced between domestic intimacy and institutional detachment. The term ‘professionalised intimacy’ used for vivid interplay comfort that renders interaction workers residents far more complex than previous theories have articulated. Because involved community building, however, promise personalised must clash bureaucratic structures official...
“To eat is human, to digest, divine”: Mark Twain’s characterization of dining seems just most us. Yet had he considered food allergies, would need have added a postscript. While digesti...
Through historical division of roots in the field medicine, care and cure became positioned at opposite extremes. In this article, we merge conceptual framings with empirical data to consider how dialectic between caring curing shaped understandings during spring 2020 wave COVID-19 infections. We utilised interviews obtained from healthcare clinicians a medical centre who volunteered New York City surge 2020. analysis, reflect upon examples illustrate unpredictability temporarily...
OPINION article Front. Public Health, 02 November 2020Sec. Health Policy Volume 8 - 2020 | https://doi.org/10.3389/fpubh.2020.573742
<h3>Objective:</h3> To examine perceptions of implanted neural devices among groups underserved by prevailing neuropsychiatric treatment approaches. <h3>Background:</h3> "Closed-loop" that both sense and modulate brain activity represent a new paradigm for treatment. However, neurotechnologists even neuroethicists are not demographically representative U.S. society, so the concerns most in need paradigms may be reflected current neurotechnology development. <h3>Design/Methods:</h3> We...
Objective: Persons with behavioral variant frontotemporal dementia (bvFTD) have been shown to exhibit altered morality, manifested as atypical utilitarian tendencies towards sacrificial moral dilemmas. This takes the form of endorsing harmful actions single individuals, including vulnerable or relationally close individuals (e.g. children, loved ones), in order promote greater good for community society a whole. The dual process model cognition interprets such deriving from lack emotional...
This bold and important book attempts to better understand social suffering through history between societies. It brings together Iain Wilkinson Arthur Kleinman from two neighbouring disciplines (sociology medical anthropology respectively) as a result, the authors’ different backgrounds overlap form rich fertile analysis. They begin by charting conceptual origin of suffering, stretching early references in 16th 17th century poetry declining relevance Providentialism public affairs birth...