A5087391248- Ophthalmology and Visual Health Research
- Family and Disability Support Research
- Intraocular Surgery and Lenses
- Diverse Approaches in Healthcare and Education Studies
- Pediatric health and respiratory diseases
- Global Maternal and Child Health
- Infant Development and Preterm Care
- Ophthalmology and Visual Impairment Studies
- Health and Wellbeing Research
- Retinal and Optic Conditions
- Diabetes Management and Education
- Neonatal Respiratory Health Research
- Health Literacy and Information Accessibility
- Health, psychology, and well-being
- Childhood Cancer Survivors' Quality of Life
- Health and Well-being Studies
- Ocular Infections and Treatments
- Pediatric Pain Management Techniques
- Family and Patient Care in Intensive Care Units
University of Gothenburg
2015-2025
Sahlgrenska University Hospital
2019-2025
Region Västra Götaland
2019-2025
Abstract Aim To analyse the challenges faced by parents of extremely preterm infants born before 24 weeks gestation and potential buffering effect perceived resources on family's health continuum. Methods The qualitative data were obtained from 70 gestation, through open‐ended questions in a survey. An inductive content analysis was conducted to identify themes patterns parents' experiences. enhance understanding findings, salutogenic theory incorporated contextualise emerging deficits....
Abstract Purpose To investigate the incidence and risk factors of retinal detachment (RD) bacterial endophthalmitis in a cohort children who underwent cataract surgery before age eight. Methods Data was retrieved from Swedish national paediatric register. All eyes with congenital or infantile that between January 1, 2007, December 31, 2023 at least one follow‐up were included. Cases associated trauma, uveitis RD excluded. Parameters could be important for complications analysed. Results...
Abstract Purpose To report on the occurrence of postoperative visual axis opacification (VAO) in children younger than 5 years age operated for cataract Sweden, and to analyse correlations with at surgery surgical method. Methods Data were derived from Swedish Pediatric Cataract Register (PECARE). All between 1 January 2007 31 December 2020 included. Follow‐ups 1, 2 analysed. Results performed 770 eyes belonging 549 ( n = 282 boys, 51.4%); 327/770 (42.5%) underwent before 3 months 216/770...
The aim was an in-depth exploration of uncertainty and self-efficacy among parents a child with congenital cataract by means two theoretical frameworks to re-design family care.A directed content analysis in accordance Hsieh & Shannon, using Mishel's theory Bandura's theory.Open-ended, interviews were conducted 23 cataract; six mothers, five fathers couples.In this novel study, interpreted as the ability balance between acceptance. performance accomplishment bridges gap acceptance reducing...
Parents are a crucial part in the care of children with pediatric cataract. The aim this study was to explore and explain sense coherence, family self-efficacy, perceived social support, fatigue parent reported experiences (PREM), order improve clinical care. Questionnaires were sent parents registered Swedish national Paediatric Cataract Register, PECARE, from 2006-2019 (n = 506). response rate 46% 231), 185 mothers 44 fathers mean age 40.39 years (SD ± 6.41 years). In total, 38% severe...
To assess experience of care, well-being parents and children's development in a cohort extremely premature infants born <24 weeks gestation Sweden from 2007 to 2018.
To investigate the main concerns associated with being a parent of child cataract and how parents deal these concerns.Twenty-three parents; 6 mothers, 5 fathers couples were included in this study. The some personal experience without. Data was collected through 17 in-depth interviews, which recorded transcribed verbatim for analysis by method Grounded Theory developed Charmaz.The describes parents' efforts to balance child's inability ability order maintain their social functioning lead...
Analysis of age at time detection and surgery dense unilateral cataract investigation best-corrected visual acuity (BCVA) in a nationwide register-based cohort study, based on the routine maternity ward eye screening.Data were derived from Paediatric Cataract Register (PECARE). All children (n = 54) diagnosed with congenital between January 2007 September 2014 who had before 1 year age, for whom 5-year follow-up records available, included.The majority, 35/54 (65%), detected operated 6 weeks...
Purpose: The aim of this study was to improve concordance by investigating important sources information on self-management for families children with paediatric cataracts from the perspective parents and ophthalmologists. Methods: This mixed methods involved a deductive approach using questionnaire administered 69 operated registered Swedish Pediatric Cataract Register (PECARE Sweden) in southern Sweden, as well 30 ophthalmologists who monitored patients their return local health care...
To analyze non-directed parental feedback to health care providers responsible for pediatric cataract in Sweden.A directed content analysis was used data consisting of text representing free comments provided by 40 parents. A deductive approach employed applying the model balancing child's inability and ability, which includes categories mastering, collaborating, facilitating, adapting.Parents lacked piloting self-management support. They experienced an absence partnership with team not...