A5039510600- Diabetes Management and Research
- Pancreatic function and diabetes
- Diabetes and associated disorders
- Adolescent and Pediatric Healthcare
- Childhood Cancer Survivors' Quality of Life
- Child and Adolescent Psychosocial and Emotional Development
- Electroconvulsive Therapy Studies
- Family and Disability Support Research
- Chronic Disease Management Strategies
- Diabetes Management and Education
- Lipoproteins and Cardiovascular Health
- Cardiac Health and Mental Health
- Psychology, Coaching, and Therapy
- Mobile Health and mHealth Applications
- Cardiovascular Health and Risk Factors
- Heart Rate Variability and Autonomic Control
- Asthma and respiratory diseases
- Peripheral Artery Disease Management
- Monoclonal and Polyclonal Antibodies Research
- Alcohol Consumption and Health Effects
- HIV/AIDS Impact and Responses
- Health Literacy and Information Accessibility
- Pharmacovigilance and Adverse Drug Reactions
- Disaster Response and Management
- Mental Health Research Topics
Joslin Diabetes Center
2016-2025
Harvard University
2017-2025
Stanford Medicine
2024
University of New Haven
2019-2022
Melrose-Wakefield Hospital
2021
Orlando Health
2020-2021
Houston Methodist Sugar Land Hospital
2020
University of Tampa
2020
Charlottesville Medical Research
2018
Continuous glucose monitoring (CGM) has potential to address challenges of type 1 diabetes (T1D) management for young children. CGM use is increasing, yet remains underutilized. Characterizing parents' experiences with can inform clinical strategies help parents make decisions about management, overcome obstacles initiating and sustaining use, maximize benefits in their children's care.
This study explored the incorporation of type 1 diabetes mellitus (T1DM) into self-identity among adolescents. Guided interviews 40 adolescents’ views T1DM in relation to their sense self and relationships with others. Responses were analyzed using thematic analysis. Results revealed that entire sample described as a significant burden; many how made them feel less “normal.” Adolescents both positive negative aspects self-management social relationships, though most reported benefits sharing...
Across all age groups, management of type 1 diabetes (T1D) places substantial responsibility and emotional burden upon families. This study explored parent perceptions the burdens caring for very young children with T1D.Semi-structured qualitative interviews were conducted parents (85% mothers) 79 T1D, aged to <8 years old, from four diverse pediatric clinical centers. Interviews transcribed, coded, analyzed using hybrid thematic analysis derive central themes.Youth (77% White) had T1D ≥6...
Background: Managing type 1 diabetes (T1D) in young children presents challenges to families and caregivers. Pump therapy may reduce benefit glycemic control. However, pump use is not universal; parent-reported reasons for lack of uptake are well described. Methods: Parents <7, with T1D ≥1 year, the Exchange registry completed surveys capturing demographic clinical characteristics, as barriers use. Data from users were compared nonusers, analyzed among parents who received recommendations,...
Objective: Older adults with cognitive impairment are at risk of medication-taking errors. This study assessed the impact providing medication adherence feedback to cognitively impaired older adults. Methods: Forty participants mild or dementia had their electronically monitored for 8 weeks. They were provided verbal and visual about results. Initial participant reactions elicited using a Motivational Interviewing approach, self-reported behavior changes during follow-up interview....
Managing type 1 diabetes in young children can cause significant stress for parents. Continuous glucose monitoring (CGM) may reduce parental burden. The Strategies to Enhance CGM Use Early Childhood (SENCE) trial randomized parents of (ages 2 <8 years) with family behavioural intervention (CGM + FBI), alone (Standard-CGM) or blood 26 weeks before receiving FBI (BGM-Crossover). This report assesses changes psychosocial outcomes all groups over 52 weeks.
Aims This cross-sectional study assessed the type of major life events occurring in a contemporary sample teens with 1 diabetes and association between event frequency demographic, management, psychosocial characteristics. Methods Parents 178 completed Life Events Checklist to report had experienced last year: 42% 0 (n = 75), 32% 2 3 57), 26% 4+ 46). Teens parents validated measures treatment adherence, diabetes-specific self-efficacy, quality life, family conflict. Parent-youth interview...
Objectives: Achieving optimal glycemic outcomes in young children with type 1 diabetes (T1D) is challenging. This study examined the durability of continuous glucose monitoring (CGM) coupled a family behavioral intervention (FBI) to improve glycemia. Study Design: one-year included an initial 26-week randomized controlled trial CGM FBI ( CGM+FBI) and alone Standard-CGM) compared blood (BGM), followed by extension phase wherein BGM Group received CGM+FBI BGM-Crossover) both original groups...
Background As new diabetes technologies improve to better manage glucose levels, users' priorities for future may shift prioritize burden reduction and ease of use. We used qualitative methods explore youth parent desired features an "ideal" artificial pancreas (AP) system. Methods conducted semi-structured interviews with 39 youth, ages 10–25 years, 44 parents. Interviews were audio-recorded, transcribed, coded using thematic analysis. Results Youth (79% female, 82% non-Hispanic white) (M ±...
Compensatory strategies can improve performance of instrumental activities daily living in people with cognitive impairment. This study investigated patient interest compensatory strategy interventions and preference for various intervention formats. Semi-structured qualitative interviews 38 older adults impairment queried motivation to use formats/delivery methods. Two coders used thematic analysis determine rates each type explore patient-reported barriers facilitators models. Most the...
Background The demands of diabetes care can place substantial burden on youth with type 1 (T1D), who must manage their treatment in conjunction the developmentally typical tasks adolescence. How affects normative task identity development deserves further exploration. Methods A sample 83 participants (ages 13-21) completed a qualitative interview about life and battery validated psychosocial measures. Individual interviews were analyzed using content analysis to create criteria for whether...
Managing type 1 diabetes (T1D) in youth can create substantial family distress and affect care efforts. The current study aimed to establish a cut-point on the PAID-PR, previously validated measure of parents with T1D. 18-item PAID-PR has shown construct validity BGM frequency, A1c, measures diabetes-specific conflict (DSFC) general quality life (QoL). Higher scores (range 0-100) indicate more distress. We applied standard approach identify meaningful cut-point: ≥75th percentile distribution...
There are multiple information sources available to assist families in learning about rapidly advancing diabetes technologies as care options for their children. This study explored where and from whom of young children with type 1 get the valence (positive vs. negative) that information. Semi-structured interviews were conducted parents (86% mothers) 79 youth <8 years old ≥6 months, ([mean ± standard deviation] age 5.2 1.5 years, duration 2.4 1.3 77% white, A1c 63 10 mmol/mol [7.9 0.9%],...