A5044012375- Childhood Cancer Survivors' Quality of Life
- Economic and Financial Impacts of Cancer
- Cancer survivorship and care
- Family Support in Illness
- Smoking Behavior and Cessation
- Adolescent and Pediatric Healthcare
- Palliative Care and End-of-Life Issues
- Resilience and Mental Health
- Family and Disability Support Research
- Health Systems, Economic Evaluations, Quality of Life
- COVID-19 and Mental Health
- Global Cancer Incidence and Screening
- Infant Development and Preterm Care
- Cancer-related cognitive impairment studies
- Acute Lymphoblastic Leukemia research
- Health and Wellbeing Research
- Optimism, Hope, and Well-being
- Behavioral Health and Interventions
- Cancer Risks and Factors
- Autism Spectrum Disorder Research
- BRCA gene mutations in cancer
- Healthcare professionals’ stress and burnout
- Child and Adolescent Psychosocial and Emotional Development
- Migration, Health and Trauma
- Ethics in Clinical Research
Massachusetts General Hospital
2016-2025
Harvard University
2015-2025
Stanford Medicine
2024
MGH Institute of Health Professions
2016-2023
Benson-Henry Institute
2016-2022
Memorial Sloan Kettering Cancer Center
2021
Universitat de València
2019
Huntsman Cancer Institute
2015-2017
Huntsman (United States)
2017
Dana-Farber Cancer Institute
2015
Understanding how stigmatized identities contribute to increased rates of depression and anxiety is critical stigma reduction mental health treatment. There has been little research testing multiple aspects simultaneously. In the current study, we collected data from a diverse, urban, adult community sample people with concealed identity (CSI). We targeted 5 specific CSIs – illness, substance abuse, experience domestic violence, sexual assault, childhood abuse that have shown put at risk for...
The aim of this study was to test the efficacy a tailored cognitive-behavioral therapy (CBT) mobile application (app) treat anxiety in patients with incurable cancer.Patients cancers (n = 145) who reported elevated symptoms at two cancer centers were randomized receive either CBT app for or health education program (control) delivered via tablet computers, which self-administered over 12 weeks. To assess anxiety, depression symptoms, and quality life (QOL), we used Hamilton Anxiety Rating...
Purpose Survivors of childhood cancer may experience financial burden as a result health care costs, particularly because these patients often require long-term medical care. We sought to evaluate the prevalence and identify associations between higher percentage income spent on out-of-pocket costs (≥ 10% annual income) issues related (jeopardizing or changing lifestyle) among survivors sibling comparison group. Methods Between May 2011 April 2012, we surveyed an age-stratified, random...
<h3>Importance</h3> Persistent smoking may cause adverse outcomes among patients with cancer. Many cancer centers have not fully implemented evidence-based tobacco treatment into routine care. <h3>Objective</h3> To determine the effectiveness of sustained telephone counseling and medication (intensive treatment) compared shorter-term advice (standard to assist recently diagnosed quit smoking. <h3>Design, Setting, Participants</h3> This unblinded randomized clinical trial was conducted at...
PURPOSE: Fear of cancer recurrence is highly prevalent among adult survivors cancer. The role fear in the emotional distress cancer, as well health behaviors that may directly affect their health, remains unclear. To advance oncology practice, this study sought to examine extent which stemming from physical symptoms accounts for a large sample and extend model explain postdiagnosis self-reported behavior change. METHODS: In 2016, 258 at an academic hospital completed survey psychosocial...
Palliative care clinicians (PCCs) are susceptible to burnout, as they regularly witness immense patient and family suffering; however, little is known about their specific challenges training needs enhance long-term sustainability.The purpose of this qualitative study was explore common stressors, coping strategies, among PCCs in efforts inform the development a targeted Resiliency Program.Utilizing semistructured interview guide, we conducted series in-depth interviews with 15 at...
Abstract Background Individuals with serious mental illness (SMI) experience increased cancer mortality due to inequities in treatment. Psychiatric care at diagnosis may improve delivery, yet models for integrating psychiatry and are lacking. We assessed the feasibility acceptability of a person-centered collaborative trial SMI cancer. Subjects, Materials, Methods developed Bridge intervention patients (schizophrenia, bipolar disorder, severe major depression) includes proactive...
Cancer survivors face ongoing health issues and need access to affordable care, yet studies examining care affordability in this population are lacking.To evaluate a national sample of cancer compared with adults without temporal trends during implementation the Affordable Care Act.We used data from National Health Interview Survey 2010 through 2016 conduct population-based study 30 364 participants aged 18 years or older. We grouped as (n = 15 182) those no reported history cancer, whom we...
PURPOSE Childhood cancer survivors are at increased risk for underinsurance and health insurance–related financial burden. Interventions targeting insurance literacy (HIL) to improve the ability understand use needed. METHODS We codeveloped a four-session navigation tools (HINT) intervention, delivered synchronously by patient navigator, corresponding booklet. conducted randomized pilot trial with from Cancer Survivor Study comparing HINT enhanced usual care (EUC; booklet). assessed...
Childhood cancer survivors may be reluctant to make changes in their employment because of access health insurance.To examine the prevalence "job lock" (staying at a job keep work-related insurance) sample drawn from an established, multi-institutional cohort full-time employed childhood compared with random siblings and explore factors associated lock among survivors.Cross-sectional survey adult derived 25 US pediatric oncology centers.Data collection included sociodemographic factors,...
Adolescents and young adults (AYAs; age 18-39 years) with cancer report needing support health insurance. We conducted a pilot randomized controlled trial to assess the feasibility acceptability of virtual insurance navigation intervention (HIAYA CHAT) improve literacy (HIL), awareness Affordable Care Act (ACA) protections, financial toxicity, stress.
Purpose: Cancer organizations recommend cost-of-care (CoC) information be provided to patients with cancer by their care teams. Little is known about the CoC conversation experiences and preferences of adolescents young adults (AYAs) cancer. Methods: Eligible participants were 18-39 years old, diagnosed cancer, insured. Recruitment occurred at two centers in Utah from October 2019 March 2020. Data collected via survey semistructured telephone interviews, which recorded transcribed. Interview...
Background: Health insurance education could mitigate financial toxicity experienced by young adult (YA) cancer survivors increasing confidence when navigating care costs. This paper describes the protocol in a randomized controlled trial (RCT) to test virtual patient navigation program designed help YA understand their health insurance.
Background There is heterogeneity in conceptualizations of resiliency, and there is, to date, no established theoretically driven resiliency assessment measure that aligns with a targeted intervention. We operationalize as one’s ability maintain adaptive functioning response the ongoing, chronic stress daily living, we use novel assesses target components an evidence based present our theory, treatment model, corresponding (Current Experience Scale; CES). Methods To establish psychometric...
For adolescent and young adult (AYA) cancer patients aged 18 to 39 years, health insurance literacy is crucial for an effective use of the care system. AYAs often face high out-of-pocket costs or have unmet needs due costs. Improving could help obtain appropriate affordable care. This protocol illustrates a randomized controlled trial testing virtual education intervention among AYA patients.This two-arm multisite trial. A total 80 diagnosed with in Mountain West region will be allocated...
<h3>Importance</h3> Guidelines recommend cancer care clinicians offer smoking cessation treatment. Cost analyses will help stakeholders understand and plan for implementation of programs. <h3>Objective</h3> To estimate the incremental cost per quit (ICQ) adopting an intensive intervention among patients undergoing treatment at clinics, from a clinic perspective. <h3>Design, Setting, Participants</h3> This economic evaluation, secondary analysis Smokefree Support Study (conducted 2013-2018;...