A5032105439- Esophageal and GI Pathology
- Cleft Lip and Palate Research
- Congenital Anomalies and Fetal Surgery
- Folate and B Vitamins Research
- Prenatal Screening and Diagnostics
- Neonatal Respiratory Health Research
- Pregnancy and preeclampsia studies
- Birth, Development, and Health
- Child Nutrition and Water Access
- Pregnancy and Medication Impact
- Pharmacological Effects and Toxicity Studies
- Child and Adolescent Health
- Food Security and Health in Diverse Populations
- Autopsy Techniques and Outcomes
- Global Maternal and Child Health
- Pediatric Hepatobiliary Diseases and Treatments
- Congenital Heart Disease Studies
University Medical Center Groningen
2021-2024
University of Groningen
2021-2024
Background Congenital anomalies are a leading cause of childhood morbidity, but little is known about the long-term outcomes. Objective To quantify burden disease in for children with congenital by assessing risk hospitalisation, number days spent hospital and proportion extended stays (≥10 days). Methods European population-based record-linkage study 11 regions eight countries including (EUROCAT children) without (reference living same regions. The were born between 1995 2014 followed to...
Congenital anomalies (CAs) increase the risk of death during infancy and childhood. This study aimed to evaluate accuracy using certificates estimate burden CAs on mortality for children under 10 years old.Children born alive with a major CA between 1 January 1995 31 December 2014, from 13 population-based European registries were linked records up their 10th birthday or 2015, whichever was earlier.In total 4199 neonatal, 2100 postneonatal 1087 deaths in aged 1-9 reported. The underlying...
Abstract Background Congenital anomalies are a major cause of perinatal, neonatal and infant mortality. Objectives The aim was to investigate temporal changes geographical variation in survival children with congenital (CA) different European areas. Methods In this population‐based linkage cohort study, 17 CA registries members EUROCAT, the network for surveillance CAs, successfully linked data on 115,219 live births CAs mortality records. Registries estimated Kaplan–Meier at 28 days 5 years...
Linking routinely collected healthcare administrative data is a valuable method for conducting research on morbidity outcomes, but linkage quality and accuracy needs to be assessed bias as the were not research. The aim of this study was describe rates linking children with without congenital anomalies regional or national hospital discharge databases evaluate matched data. Eleven population-based EUROCAT registries participated in EUROlinkCAT anomaly (reference children) born between 1995...
Objective To quantify the hospital care for children born with a major congenital anomaly up to 10 years of age compared without anomaly. Design, setting and patients 79 591 anomalies 2 021 772 1995–2014 in six European countries seven regions covered by registries were linked inpatient electronic health records their 10th birthday. Main outcome measures Number days number surgeries. Results During first year life among regions, median 2.4% (IQR: 2.3, 3.2) accounted 18% (14, 24) 63% (62, 76)...
Abstract Electronic health care databases are increasingly being used to investigate the epidemiology of congenital anomalies (CAs) although there concerns about their accuracy. The EUROlinkCAT project linked data from eleven EUROCAT registries electronic hospital databases. coding CAs in was compared (gold standard) codes registries. For birth years 2010-2014 all live CA cases and children identified with a code were analysed. Registries calculated sensitivity Positive Predictive Value...