A5007740417- Health Systems, Economic Evaluations, Quality of Life
- Health Policy Implementation Science
- Chronic Disease Management Strategies
- Genomics and Rare Diseases
- Telemedicine and Telehealth Implementation
- COVID-19 and healthcare impacts
- Mobile Health and mHealth Applications
- Mental Health and Patient Involvement
- Dementia and Cognitive Impairment Research
- Prenatal Screening and Diagnostics
- Geriatric Care and Nursing Homes
- Neurobiology of Language and Bilingualism
- Homelessness and Social Issues
- Healthcare Policy and Management
- Healthcare Decision-Making and Restraints
- Ethics in Clinical Research
- Non-Invasive Vital Sign Monitoring
- Health and Medical Research Impacts
- Interpreting and Communication in Healthcare
- Economic and Environmental Valuation
- COVID-19 Clinical Research Studies
- Occupational Therapy Practice and Research
- Healthcare innovation and challenges
- Delphi Technique in Research
- Artificial Intelligence in Healthcare and Education
University College London
1966-2025
UK Dementia Research Institute
2023
St. Luke's Hospital
2019
St. Vincent's Medical Center
2019
UnityPoint Health
2019
University of Edinburgh
1994
Tarleton State University
1990
Morriston Hospital
1960-1967
Objectives To understand whether interventions are effective, we need to know the delivered as planned (with fidelity) and engaged with. measure fidelity engagement effectively, high‐quality measures needed. We outline a five‐step method which can be used develop quality of for complex health interventions. provide examples from study conducted within an evaluation intervention aimed increase independence in dementia. Methods propose five steps that systematically checklists researchers,...
Abstract Objectives In October 2020, rapid prenatal exome sequencing (pES) was introduced into routine National Health Service (NHS) care in England. This study aimed to explore parent experiences and their information support needs from the perspective of parents offered pES health professionals involved its delivery. Methods this qualitative study, semi‐structured interviews were conducted with 42 women 6 male partners 63 fetal medicine genetic professionals. Interviews transcribed...
Abstract Background Care coordination is considered important for patients with rare conditions, yet research addressing the impact of care limited. This study aimed to explore how (or lack of) impacts on and carers. Semi-structured interviews were conducted 15 carers/parents in UK, representing a range conditions (including undiagnosed conditions). Transcripts analysed thematically an iterative process. Results Participants described experiences views relation coordination. Reports...
Remote home monitoring models were implemented during the COVID-19 pandemic to shorten hospital length of stay, reduce unnecessary admission, readmission and infection appropriately escalate care. Within these models, patients are asked take record readings care if advised. There is limited evidence on how carers experience services. This study aimed evaluate patient experiences of, engagement with, remote for COVID-19.A rapid mixed-methods was carried out in England (conducted from March...
Improving care coordination for people with rare conditions may help to reduce burden on patients and carers improve the that receive. We recently developed a taxonomy of different ways coordinating conditions. It is not yet known which models are appropriate in situations. This study aimed to: (1) explore what types be situations, (2) use these findings develop hypothetical
There has been a growing focus on functional communication interventions for primary progressive aphasia (PPA). These aim to support individuals participate in life situations. One such intervention, partner training (CPT) aims change conversation behaviours both the person with PPA and their (CP). CPT evidence base stroke aphasia; however, these programmes are not designed meet needs of people difficulties. To address this, authors developed program entitled Better Conversations (BCPPA)...
Introduction In October 2020, rapid prenatal exome sequencing (pES) was introduced into routine National Health Service (NHS) care in England, requiring the coordination of from specialist genetics, fetal medicine (FM) and laboratory services. This mixed methods study explored experiences professionals involved delivering pES service during first 2 years its delivery NHS. Methods A survey ( n = 159) semi-structured interviews 63) with healthcare professionals, including clinical geneticists,...
A framework to evaluate implementation of Major System Change (MSC) in healthcare has been developed and applied longer-term system changes. This was the first study apply five domains MSC rapid change. We aimed to: i) MSC, using England COVID-19 remote home monitoring services as a case ii) consider whether how can be MSC. mixed-methods evaluation England, across 28 primary secondary sites (October 2020-November 2021; data collection: 4 months). conducted 126 interviews (5 national leads,...
Support after a diagnosis of dementia may facilitate better adjustment and ongoing management symptoms. The aim the Promoting Independence in Dementia (PRIDE) study was to develop postdiagnostic social intervention help people live as well independently possible. facilitates engagement evidence-based stimulating cognitive, physical activities.Theories promote diagnosis, including theories learning self-efficacy, were reviewed alongside self-management selective optimization model, form basis...
Background Remote home monitoring services were developed and implemented for patients with COVID-19 during the pandemic. Patients monitored blood oxygen saturation other readings (e.g. temperature) at escalated as necessary. Objective To evaluate effectiveness, costs, implementation, staff patient experiences (including disparities mode) of remote in England pandemic (waves 1 2). Methods A rapid mixed-methods evaluation, conducted two phases. Phase (July–August 2020) comprised a systematic...
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There was a national roll out of 'COVID Virtual Wards' (CVW) during England's second COVID-19 wave (Autumn 2020 - Spring 2021). These services used remote pulse oximetry monitoring for patients following discharge from hospital. A key aim to enable rapid detection patient deterioration. It anticipated that the would support early discharge, reducing pressure on beds. This study is an evaluation impact CVW hospital activity.Using retrospective patient-level admissions data, we built...
Improving care coordination is particularly important for individuals with rare conditions (who may experience multiple inputs into their care, across different providers and settings). To develop evaluate strategies to potentially improve coordination, it necessary a method organising ways of coordinating conditions. Developing taxonomy would help describe in turn facilitate development evaluation pre-existing new models the authors' knowledge, no studies have previously developed...
Abstract Background It is important to evaluate fidelity of delivery and engagement during feasibility trials. However, there little guidance on how systematically develop strategies improve implementation if problems arise. We aimed to: 1) Assess engagement, 2) Identify factors influencing 3) Develop of, with, a complex intervention independence in dementia, within trial. Methods A mixed methods evaluation an that dementia. To assess observation self-report were used: 60% audio-recorded...
Abstract Background Prioritisation processes are widely used in healthcare research and increasingly social care research. Previous has recommended using consensus development methods for inclusive agenda setting. This highlighted the need transparent systematic priority Yet there been little on how to conduct prioritisation rapid methods. is a particular concern when needs happen rapidly. paper aims describe discuss process of rapidly identifying prioritising shortlist innovations...
Background A condition is defined as rare if it affects fewer than 1 in 2000 people the general population. Limited evidence suggests that care poorly co-ordinated for affected by conditions. Objectives To investigate and how of with conditions UK, would like to be co-ordinated. Design mixed-methods study comprising (1) a scoping review develop definition identify components ( n = 154 studies); (2) an exploratory qualitative interview understand impact lack 15 participants); (3) national...
Abstract There is variation in provision of social care prisons. Our research aimed to understand across adult prisons England and Wales, including: (1) what provided? (2) who delivers care? (3) peer support initiatives are used? (4) indicators relevant? (5) there differences between prison type provision? We analysed Her Majesty’s Inspectorate Prisons (HMIP) reports (published 2017–2020) from 102 From these we extracted data on provision. Elements not consistently delivered; need...