A5053268966- Biomedical Ethics and Regulation
- Reproductive Health and Technologies
- Patient Dignity and Privacy
- Ethics in Clinical Research
- Neuroethics, Human Enhancement, Biomedical Innovations
- Ethics in medical practice
- Ethics and Legal Issues in Pediatric Healthcare
- CRISPR and Genetic Engineering
- European and International Law Studies
- Organ Donation and Transplantation
- Law, AI, and Intellectual Property
- Animal Genetics and Reproduction
- European history and politics
- BRCA gene mutations in cancer
- Health, Medicine and Society
- Intellectual Property and Patents
- Global Security and Public Health
- Healthcare, Law, Governance, and Management Studies
- French Historical and Cultural Studies
- Historical Studies on Reproduction, Gender, Health, and Societal Changes
- Palliative Care and End-of-Life Issues
- Psychology of Moral and Emotional Judgment
- Privacy, Security, and Data Protection
- Korean Peninsula Historical and Political Studies
- Ovarian function and disorders
Central European University
2008-2023
Institute for Legal Studies
2017-2019
Ghent University
2016
European Commission
2016
Despite the increasing availability of direct-to-consumer (DTC) genetic testing, it is currently unclear how such services are regulated in Europe, due to lack EU or national legislation specifically addressing this issue. In article, we provide an overview laws that could potentially impact regulation DTC testing 26 European countries, namely Austria, Belgium, Cyprus, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Latvia, Lithuania, Luxembourg,...
This article is concerned with the ultimate objectives of genetic biobanks set up to promote public interest—being sharing samples and data for medical research—and consequences personal privacy realising them. Our aim chart values, interests principles in play, consider challenges realizing biobanking on a global scale, propose viable ways forward that ensure, as far possible, access provisions remain fit purpose throughout entire life biobank, while adequately protecting at stake. It...
Neuroenhancement involves the use of neurotechnologies to improve cognitive, affective or behavioural functioning, where these are not judged be clinically impaired. Questions about enhancement have become one key topics neuroethics over past decade. The current study draws on in-depth public engagement activities in ten European countries giving a bottom-up perspective ethics and desirability enhancement. This informed design an online contrastive vignette experiment that was administered...
According to estimates more than 400 biobanks currently operate across Europe. The term 'biobank' indicates a specific field of genetic study that has quietly developed without any significant critical reflection European societies. Although scientists now routinely use this phrase, the wider public is still confused when word 'bank' being connected with collection their biological samples. There striking lack knowledge field. In recent Eurobarometer survey it was demonstrated even in 2010...
This report presents a comprehensive set of recommendations for protection human beings who are trafficked the purpose organ removal or targeted such trafficking. Developed by an interdisciplinary group international experts under auspices project Trafficking in Human Beings Purpose Organ Removal (also known as HOTT project), these grounded view that individual parts with money within illegal scheme is ipso facto victim and crime trafficking (THBOR) intersects organs. Consequently, victims...
Abstract Surveying the early responses to Covid‐19 pandemic among nation states, one finds a veritable babel of responses, some predictable and not. Would these results have been different half century or more ago, when smallpox was eradicated hopes were high that international cooperation would yield similar for other infectious diseases? Is this story about stability provided by bipolar postwar world, juxtaposed with complex geopolitical repositioning finally followed collapse Soviet...
Abstract With the technical possibility of genome editing, we have reached a new phase transforming human beings and even altering our genetic legacy. Genome editing constitutes responsibilities in many fields. Science society never been as dependent on each other they are today. We must also learn from past episodes eugenics need to investigate fraudulent practices cases failure scientific research that often occurred due merciless competition, profit-seeking commercial interests, or...
The paper aims to understand the various legacies of eugenics in postwar period recognize both continuities and discontinuities with an approach which is conceptually sound historically correct. Building on earlier work Lene Koch, endeavours chart historical trajectory by examining how its definition those related or oppositional concepts have evolved within selected lexicon entries across stages century. inclusion publication a concept indicate significance, linguistic vitality, prevalence...
State socialist Hungary undertook historically unparalleled action to satisfy the health needs of its population. To support efforts, it recognized in constitution protection as an essential state task and, later, a right health. Although formulated citizens, was not available enfranchise individual. Instead, expressed common social needs, well responsibility and institutional obligation take care those needs. This emphasis on over individual rights had crucial impact implementation...
The analysis of the 2008 Hungarian law on human genetic data.
This paper is an overview and analysis of the relevant Greek laws on data protection, genetic research.
The law has struggled to justify the unilateral use of individual genomic data, as it could never quite fit either into narrower data protection or broader privacy frameworks. This article aims explore this tension by examining rights and interests biobank participants.This offers a legal analysis, looking at how model fits framework. Hungarian is primary focus but reference made international norms, well.The first biobanks were designed with purpose achieving collective goals providing...