A5023678080- Biomedical Ethics and Regulation
- Intellectual Property and Patents
- BRCA gene mutations in cancer
- Law, AI, and Intellectual Property
- Discrimination and Equality Law
- Autism Spectrum Disorder Research
- Ethics in Clinical Research
- European and International Law Studies
- Insurance and Financial Risk Management
- Neuroethics, Human Enhancement, Biomedical Innovations
- Disability Rights and Representation
- European Union Policy and Governance
- Conflict of Laws and Jurisdiction
- Genomics and Rare Diseases
- European Criminal Justice and Data Protection
- Ethics and Legal Issues in Pediatric Healthcare
- Reproductive Health and Technologies
- Ethics and Social Impacts of AI
- Intellectual Property Law
- Health, Environment, Cognitive Aging
- Child Welfare and Adoption
- Genetically Modified Organisms Research
- Pharmaceutical industry and healthcare
- Comparative and International Law Studies
- Patient Dignity and Privacy
Dublin City University
2014-2024
Royal Dublin Society
2015
National University of Ireland, Maynooth
2015
University College Dublin
1991
We are living in an algorithmic age where mathematics and computer science coming together powerful new ways to influence, shape guide our behaviour the governance of societies. As these structures proliferate, it is vital that we ensure their effectiveness legitimacy. That is, need they effective means for achieving a legitimate policy goal also procedurally fair, open unbiased. But how can both? This article shares results collective intelligence workshop addressed exactly this question....
Despite the increasing availability of direct-to-consumer (DTC) genetic testing, it is currently unclear how such services are regulated in Europe, due to lack EU or national legislation specifically addressing this issue. In article, we provide an overview laws that could potentially impact regulation DTC testing 26 European countries, namely Austria, Belgium, Cyprus, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Latvia, Lithuania, Luxembourg,...
Scientific and technological developments are propelling genetics genetic technologies into the public sphere. innovation is becoming more refined, resulting in an increase availability use of testing, other cutting edge technologies, including gene editing. These advances not only signal a growing trend towards precision medicine, but also provoke consideration protection information as emerging human rights concern. Particular ethical legal issues arise from disability perspective,...
Anti-selection occurs when information asymmetry exists between insurers and applicants. When an applicant knows they are at high risk of loss, but the insurer does not, may try to use this knowledge differential secure insurance a lower premium that not match risk.
Against the backdrop of rapid developments in genetic science and technology, one main concerns arising this area is potential use testing to discriminate, especially employment insurance contexts.Employers companies may results tests discriminate (primarily for economic advantage), based on perceptions future health risks or disabilities.This article explores scope an EU effectively address discrimination misuse information.It first provides a theoretical overview choice regulatory...
With rapid scientific and technological advances, a new genetic era is emerging. However, these advances raise ethical legal issues, particularly discrimination, that may threaten advancing science in the absence of appropriate regulation. There currently no concrete legislative position this area at eu level, but rather patchwork diverging approaches amongst Member States. Genetic discrimination has been singled out as an reform Europe evidenced, for example Charter Fundamental Rights,...
Abstract Ground-breaking genetic discoveries and technological advances have opened up a new era in exploration, enabled geneticists to successfully uncover the basis of wide range diseases. Although currently limited predictive value, testing promises potentially revolutionise health care medical treatment. Among other things, technology may offer prospect being able detect onset future disabilities, including mental illness. In light science technology, questions arise as whether an...
Ground-breaking genetic discoveries and technological advances have introduced a new world of exploration, facilitated the discovery basis myriad diseases. Genetic testing promises to potentially revolutionise health care offer potential personalised medicine. technology may also means detect future disabilities. In light rapid in science technology, questions arise as whether an appropriate framework exists protect interests individuals, prevent misuse information by interested third...
Abstract With developments in the field of genetics, new technologies such as genetic testing are fast emerging. Although offering unparalleled opportunities, these raise many ethical, legal and other issues. One challenge relates to duty confidentiality disclosure obligations on doctors. Considering familial nature information, doctors will increasingly have access predictive health about individuals individuals’ relatives. This article examines whether should be expanded encompass an...
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Importance Governments worldwide have become increasingly cognizant of the spread genetic discrimination (negative treatment or harm on basis actual presumed characteristics). Despite efforts by a number governments to establish regulations addressing this phenomenon, public concern about persists. Objective To identify key elements an optimal nondiscrimination policy and inform policymakers as they seek allay related anxieties. Evidence Review Sixty multidisciplinary experts from 20...