A5053972619- COVID-19 Clinical Research Studies
- Ophthalmology and Visual Impairment Studies
- Neurogenetic and Muscular Disorders Research
- Dementia and Cognitive Impairment Research
- Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis
- Long-Term Effects of COVID-19
- Blood Coagulation and Thrombosis Mechanisms
- Retinal Diseases and Treatments
- Congenital Anomalies and Fetal Surgery
- Venous Thromboembolism Diagnosis and Management
- Sleep and related disorders
- Congenital Heart Disease Studies
- Fungal Infections and Studies
- thermodynamics and calorimetric analyses
- Vitamin D Research Studies
- Pericarditis and Cardiac Tamponade
- Optical Imaging and Spectroscopy Techniques
- Psychosomatic Disorders and Their Treatments
- Pediatric health and respiratory diseases
- Family and Disability Support Research
- Photoacoustic and Ultrasonic Imaging
- Cardiac, Anesthesia and Surgical Outcomes
- Endometrial and Cervical Cancer Treatments
- Sarcoidosis and Beryllium Toxicity Research
- Endometriosis Research and Treatment
Adelphi Group (United Kingdom)
2020-2024
Saint Vincent Hospital
2024
Auckland City Hospital
2023
Middlemore Hospital
2023
Hôpital de la Conception
2023
Aix-Marseille Université
2023
Health Promotion Agency
2023
St John of God Hospital
2020
St John of God Murdoch Hospital
2020
IQVIA (India)
2020
The 32-item Motor Function Measure (MFM32) is an assessment of motor function used to evaluate fine and gross ability in patients with neuromuscular disorders, including spinal muscular atrophy (SMA). Reliability validity the MFM32 have been documented individuals SMA. Through semi-structured qualitative interviews (N = 40) online survey eight countries 217) Types 2 3 SMA aged 2-59 years old caregivers, meaning changes on a patient-friendly version was explored. In independent analysis...
Kidney transplant recipients develop atypical infections in their epidemiology, presentation and outcome. Among these, meningitis meningoencephalitis require urgent adapted anti-infectious therapy, but published data is scarce KTRs. The aim of this study was to describe outcome, order improve diagnostic management. We performed a retrospective, multicentric cohort 15 French hospitals that included all 199 cases M/ME KTRs between 2007 2018 (0.9 case per 1,000 annually). Epidemiology different...
Abstract Background The 32-item Motor Function Measure (MFM32) is a clinician-reported outcome measure used to assess the functional abilities of individuals with neuromuscular diseases, including those spinal muscular atrophy (SMA). This two-part study explored relationship between assessed in MFM32 and activities daily living (ADLs) from perspective Type 2 3 (non-ambulant ambulant) SMA their caregivers through qualitative interviews quantitative online survey. Methods In-depth,...
Amblyopia is a reduction in vision one or both eyes due to impaired development of the visual pathway. This study explored experience amblyopia and treatment from patient, caregiver, clinician perspectives.A targeted literature review, including review social media listening (SML) studies, was conducted. Next, qualitative interviews were conducted with patients, caregivers children amblyopia, ophthalmologists treating patients amblyopia. The findings informed disease model. clinical experts...
The lower-risk (low and intermediate-1 risk based on IPSS) myelodysplastic syndrome (MDS) has a negative impact patients' health-related quality of life (HRQoL). Patient Reported Outcomes (PROs) instruments, which are used to collect HRQoL data, should have established content validity in the target population ensure that instrument is comprehensive comprehensible. present study was conducted evaluate Quality Life Myelodysplasia Scale (QUALMS) Functional Assessment Cancer Therapy-Anemia...
Objective: Patients with mental health disorders frequently have difficulties their cognitive functioning. Assessment of cognition in this population can be complicated by psychiatric symptomatology, making standard written and verbal assessment methods difficult. In these situations, observations nursing allied staff patients’ routine activities provide an important source information about ability. The Behavioural Tool for Cognition Higher Function (BATCH) was developed to record daily...
Abstract Purpose Endometriosis is a chronic disorder of the female reproductive system characterized by debilitating symptoms, particularly endometriosis-related pain (ERP). Patient-reported outcome (PRO) measures symptoms and impacts are required to assess disease severity in ERP clinical studies practice. A content-valid instrument was developed modifying Dysmenorrhea Daily Diary (DysDD) form (EDD), an electronic PRO administered via handheld device. Methods Qualitative research with US...
Amblyopia is a neurodevelopmental vision disorder, characterized by poor in one or both eyes. Given the lack of existing clinical outcome assessments (COA) considered fit-for-purpose for amblyopia trials, this study developed new COAs to assess symptoms and health-related quality life (HRQoL) impacts adult pediatric populations that conform with best practice standards regulatory guidelines.
To the Editor: Transbronchial lung cryobiopsy (TBLC) is evolving as an alternative to thoracoscopic biopsy in diagnosis of interstitial disease.1,2 As a newly developing diagnostic technique, there lack procedural standardization, and thus significant technical variations exist among different interventional pulmonary centers. Life-threatening bleeding most feared complication, lead difficulty estimating true incidence. This further compounded by internationally accepted severity scale...
Venous thromboembolism (VTE) is widely understood to be an important cause both of morbidity and mortality in hospital inpatients. This has led the development guidelines for management VTE prophylaxis adults by national institute Health Clinical Excellence. In acknowledgement importance this issue, there are government incentives form Commissioning Quality innovation payments that dependent on performance trusts certain quality indicators, such as risk assessment adult patient.
Since the start of COVID-19 pandemic, studies emerged reporting occurrence cardiovascular complications in patients affected by SARS-CoV-2.Initial data were likely skewed higher risk populations and those with severe disease.Recent, larger have corroborated this association provide estimates for complications.Patients are at increased myocardial infarction, myocarditis, venous thromboembolism, arrhythmias, exacerbation heart failure.Furthermore, a subset who recover from acute illness...