A5008547563- Childhood Cancer Survivors' Quality of Life
- Medication Adherence and Compliance
- Pharmaceutical studies and practices
- Resilience and Mental Health
- Hematopoietic Stem Cell Transplantation
- Vaccine Coverage and Hesitancy
- Family Support in Illness
- Palliative Care and End-of-Life Issues
- Family and Disability Support Research
- COVID-19 and Mental Health
- COVID-19 Impact on Reproduction
- Renal Transplantation Outcomes and Treatments
- Pediatric Pain Management Techniques
- Health disparities and outcomes
- Acute Myeloid Leukemia Research
- Ethics and Legal Issues in Pediatric Healthcare
- Acute Lymphoblastic Leukemia research
- Infant Development and Preterm Care
Nationwide Children's Hospital
2022-2025
This cross-sectional study explores the types of preventive and chronic care survivors childhood cancer pediatric bone marrow transplant receive from their primary providers. We also identified barriers perceived by to utilization care. Survivors were recruited a large Midwestern hospital completed demographic an eight-item semi-structured survey. Parents <18 years survey for child >18 on own. A total 259 caregivers (55.7%) 206 (44.3%) participated. The mean survivor age was 19.76 ( SD...
COVID-19 public health measures caused significant disruptions to child and caregivers' mental physical well-being, including quality of life (QoL). However, in samples outside the United States (U.S.), greater resilience has been linked lower impact on QoL. Thus, understanding individual dyadic factors contributing QoL during within may provide important insight for points intervention. This study aimed characterize interdependent effects caregiver resilience, as well child-reported...
<sec> <title>BACKGROUND</title> In high-risk pediatric hematopoietic stem cell transplant (HCT) populations, caregivers must manage complex treatment regimens at home with limited logistic and social support. These factors increase the risk for medication non-adherence previously observed rates indicating 52% to 73% of HCT patients do not take their medications as prescribed during course. Poor adherence places high poor health outcomes, thus, post-HCT remains a critical issue. The...
Abstract Purpose The purpose of this paper is to describe the implementation evidence‐based, individualized coping plans and compare rates child anxiety, cooperation, parent anxiety before after these for children receiving recurring BoNT‐A injections emphasizing role Certified Child Life Specialists (CCLSs) within interdisciplinary team approach. Design Methods A retrospective chart review was conducted at a Physical Medicine clinic pre‐ post‐implementation plan. Descriptive statistics were...
Abstract Objective: The COVID-19 pandemic placed parents of school-aged children at risk for negative psychological outcomes. This study describes how much school aged-children were exposed to and impacted by the pandemic. Methods: Recruited via Facebook advertisements, completed an online survey about their exposure impact two time-points, May 2020-July 2020 (T1) November 2020-January 2021 (T2). Data from 580 in T1 232 T2 analyzed using descriptive statistics, Pearson correlations, t-tests....