- HIV/AIDS Research and Interventions
- Adolescent Sexual and Reproductive Health
- Sex work and related issues
- Breastfeeding Practices and Influences
- HIV, Drug Use, Sexual Risk
- Adolescent and Pediatric Healthcare
- Homelessness and Social Issues
- Poverty, Education, and Child Welfare
- HIV/AIDS drug development and treatment
- Pregnancy and Medication Impact
- HIV-related health complications and treatments
- Global Maternal and Child Health
- Reproductive Health and Technologies
- LGBTQ Health, Identity, and Policy
- Animal Disease Management and Epidemiology
- Optimism, Hope, and Well-being
- Qualitative Research Methods and Ethics
- Gestational Diabetes Research and Management
- Mental Health and Patient Involvement
- Multilingual Education and Policy
- Food Security and Health in Diverse Populations
- Language, Discourse, Communication Strategies
- Child and Adolescent Health
- Gender, Labor, and Family Dynamics
- Migration, Health and Trauma
Mentor
2021-2025
Zero to Three
2022-2023
Lancaster University
2022
Queen's Medical Centre
2022
University of Nottingham
2022
Wythenshawe Hospital
2022
Greater Manchester Mental Health NHS Foundation Trust
2022
Sciences, Philosophie, Histoire
2022
Independent Age
2017
ABSTRACT In the UK, up to 700 people with HIV give birth annually; majority are Black African migrant cisgender women. Infant‐feeding decisions for parents complex, requiring weigh‐up small risk of transmission via breastmilk and UK guidelines recommending formula milk, against strong personal societal expectations breastfeed. We explored this situation in a qualitative study. paper, we discuss our experiences co‐producing research on infant‐feeding practices among women HIV. particular,...
Abstract Effective antiretroviral treatment means that people with HIV are living for longer. This includes Black African women, who represent a large proportion of aging in the United Kingdom. Despite this, impact and on well-being women has not been investigated. Interpretative phenomenological analysis interviews eight ages 50 years older developed six superordinate themes. Findings demonstrated how experiences HIV-related stigma negatively affected social, occupational, psychological...
The proportion of people who are diagnosed late is a key metric to measure the public health response HIV. But this percentage remains stubbornly high in nearly every country. Delays accessing antiretroviral therapy affects both (i) individual health, due higher risk mortality, and (ii) population-based continued transmission. Despite huge efforts increase testing, diagnosis continues be an indication failure.This short review includes community perspectives on why how it may reduced. We...
Language matters. It impacts on how we think about ourselves, as individuals within our families and society. As advocates activists, constantly use language a tool to effect change. People living with HIV have been critical in shaping this over the last 30 years still play central role ensuring that new discourse field does not stigmatize, but rather it catalyzes empowerment for community members. In annotation, seek shift used relation medical condition, bodies, identities events face,...
The World Health Organisation advice for post-partum women living with HIV (WLHs) in low- and middle-income countries is to breastfeed on suppressive antiretroviral treatment use infant postnatal prophylaxis. In resource-rich settings, where formula feeding safe, avoidance of advised. A questionnaire was created survey attitudes breastfeeding WLHs the United Kingdom. This offered all eligible pregnant third trimester or within 3 months who attended outpatient clinics from 2017 2018....
As new antiretrovirals (ARVs), including long-acting ARVs for treatment and prevention, are approved introduced, surveillance during pregnancy must become the safety net evaluating birth outcomes, especially those that rare require large numbers of observations. Historically, drug pharmacovigilance in has been limited fragmented between different data sources, resulting inadequate to assess risk. The International Maternal Pediatric Adolescent AIDS Clinical Trials Network World Health...
Abstract Background The World Health Organization (WHO) recommends that women with HIV breastfeed for a minimum of one year. In contrast, United Kingdom (UK) guidelines encourage formula feeding, but breastfeeding can be supported under certain circumstances. Infant-feeding decisions often involve personal and social networks. Currently, little research addresses how individuals in high-income countries navigate infant-feeding the father their children. Methods Semi-structured remote...
Third-sector organizations, an important support for people living with HIV, increasingly use digital technology to improve service efficiency and reach. However, there is limited empirical evidence on this by women HIV. The 4M Network (4MNet) a peer-run UK-wide network of trained Mentor Mothers (MMs) HIV; it uses the WhatsApp platform as its primary communication tool. We report qualitative study about 4MNet MMs’ experiences using WhatsApp, inform design future services. Seven telephone...
This article outlines progress in realizing the sexual and reproductive health rights of women girls living with HIV over last 30 years from perspective HIV. It argues that response needs to go beyond bio-medical aspects achieve our rights, considers relevant Joint United Nations Programme on HIV/AIDS (UNAIDS), World Health Organization, States President's Emergency Plan for AIDS Relief (PEPFAR), Global Fund other guidelines, what engagement there has been whether guidelines/strategies have...
The World Health Organization (WHO) recommends that women with HIV breastfeed for a minimum of one year. In contrast, across high-income countries, and infant-feeding guidelines recommend exclusive formula feeding if parents want to avoid all risk postpartum transmission. However, recently these (including in the United Kingdom (UK)) increasingly state individuals should be supported breast/chest feed they meet certain criteria; such as an undetectable maternal viral load consent additional...
End-user involvement in HIV guidelines development is often little, late or absent. Other disciplines have long advocated 'handing over the stick' (i.e. power and control), as both ethical strategic. Women activists called this respectful engagement with, learning from, communities 'MIWA' (meaningful of women living with AIDS).
HIV transmission risk via breastfeeding is greatly reduced by antiretroviral therapy but not zero. Current UK guidelines recommend exclusive formula feeding; however, women can breastfeed if they meet certain criteria. We examine the narrative accounts of mothers with (pregnant or recently given birth) who navigated divergent cultural and national policy norms regarding infant feeding. Mothers HIV, majority whom in are Black African ethnicity, face a complex decision feeding, which has...
Abstract Introduction There is growing interest in health, developmental and survival outcomes of children who are born HIV‐free to women living with HIV (children HIV‐free). To date, the research agenda has been largely determined by researchers, funders policy makers, limited involvement parents, key stakeholders. Researchers at UCL Great Ormond Street Institute Child Health partnership community‐based organisation 4M Network Mentor Mothers conducted two workshops parents March 2022...
We the authors of following commentary, as women with HIV from around world, have personal experience issues contained in this special edition Reproductive Health Matters. welcome edition, especially language its title, which explicitly establishes a norm openness, possibility and positivity. contend that work policy makers, practitioners, donors academics needs to incorporate human rights-based, holistic view what pregnancy, motherhood mean for children alike, our hope is articles...
Since the beginning of HIV epidemic, community engagement and activism have played a critical role in shaping clinical research drug development. Community is complex interactive relationship between researchers, policymakers community. Such has been acknowledged as component successful outcomes by key health agencies, including World Health Organization (WHO) [1]. Good practice involves participants advocates partners rather than merely trial subjects or users intervention [2]. When done...
Safe conception and healthy motherhood starts with upholding all women's reproductive desires rights. This includes a pleasurable sex life, access to comprehensive non-judgmental factual information, choices over range of contraceptive methods, determine if when become pregnant. For women who do not yet have, or know that they HIV may unknowingly be in serodifferent relationships, this should include information about, capacity avoid, horizontal acquisition transmission. Up half people...
HIV in the UK is concentrated a few key populations, and African migrants are among them. To date, there has been no documented record of personal experiences this group to accompany significant amount epidemiological data on these communities. There celebrating contribution, resilience lived experience Africans living with UK, their allies response epidemic. A women who long-standing activists advocates, much respected for leadership within community, considered that it was important...
While advances in treatment have dramatically improved the life-expectancy of people living with HIV (PLHIV), a number unmet needs remain. We conducted an international survey PLHIV to explore their level satisfaction current and potential areas improvement for ARVs. Qualitative in-depth interviews were performed identify key hypotheses. A steering group developed questions which was fielded online from November 2016 April 2017 9 countries across North America, Europe Australia. mixed...
Since the start of HIV epidemic, care has often had a strong focus on quality life. In early days, this was in part due to limited treatment options available for people living with HIV, alongside humanistic desire those working specialty provide optimum care. Advances treatments have led having more medical focus, national and international targets concentrating prevention new infections. Despite progress, impact being diagnosed significant many people, across all aspects their Factors that...