Little is known about the provision of care coordination to children with medical complexity (CMC) and their families in Japan. The aim this study was describe explore factors associated quality for Japanese CMC families.We used an exploratory cross-sectional design. Participants were recruited at a children's hospital located one prefecture, Primary caregivers raising aged between <1 20 years receiving reimbursements home-based eligible participants study. examined relationship parents'...

Family caregivers raising children with severe motor and intellectual disabilities (SMID) experience the enormous burden of care. The concept family empowerment is one important assessment indexes nursing from perspective providing comprehensive support for these families. objective this study was to identify factors associated families a child SMID in Japan.We conducted nationwide questionnaire survey involving 1659 primary through 89 special schools. We assessed main outcomes using...

ObjectivesThis study investigated employment, financial, and health issues of Japanese mothers with school-aged children disabilities, factors associated participants' employment.MethodsA survey was conducted 243 aged 6 to 18 years old enrolled in a Special Education Needs School for intellectually disabled children. The mothers' income, health, time spent caregiving were compared those other using population data. Multiple logistic regression analysis identify the employment...

Abstract This study examined quality of life and its associated factors in siblings children with severe motor intellectual disabilities Japan. The participants were 789 a disability their primary caregivers. We used the Kinder Lebensqualität Fragebogen questionnaire to assess siblings. mean age was 12.21 ± 3.07 years, score 69.63 12.55 points, which is higher than that general population same age. It revealed following contributed scores: closer relationship child disability, younger age,...

Few studies have examined the actual conditions of fatal neglect in Japan. The aims this study were to investigate persistent among child fatalities using medico-legal documents, and describe characteristics socio-familial background biological data.The current analyzed documents all postmortem external examinations autopsies children <2 years old carried out one prefecture Japan from 2006 2011. After examining 59 autopsy cases modified Maltreatment Classification System, we identified six...

Background The empowerment of families raising children with disabilities (CWD) is crucial in maintaining their health. We developed an evidence-based, family intervention program focusing on social resource utilization and reducing care burden. Objective This study aimed to determine the program's effectiveness promoting empowerment. Methods compared group that started online a week after initial evaluation received delayed (waitlist-controlled group) at three time points: (T1), post-course...

Few studies have investigated the hospital-based care utilization of children with medical complexity (CMC) in Japan. This study examined frequency and differences for CMC according to level (moderate severe).Medical records three pediatric tertiary hospitals one prefecture were 2014. We number outpatient visits admissions hospital 5 years after introduction home care.Of 92 CMC, 55 had that was moderate (CMC-moderate) 37 severe (CMC-severe). The who introduced at increased year by year,...

Few studies have investigated the care coordination for children with disabilities and their families in Japan. Care enhances quality of these families. This study explores mothers' experiences coordinated provided to We used a qualitative descriptive approach, conducting semi-structured interviews 11 Japanese mothers/primary caregivers describe experiences. Four main themes were identified: shared decision-making key workers, receiving an assessment entire family, timely access health...

The aim of this study was to explore and clarify the healthcare service utilization children dependent on medical technology (CMT), parental health-related quality life (HRQOL).Participants recruited primary caregivers with complexity (CMC), identified using an existing registry raising CMC aged 1-20 years receiving reimbursements for their home-based care at a children's hospital. We used exploratory cross-sectional design sent questionnaires 286 parents. To characteristics CMT families, we...

Objective: For both children with disabilities and their families to continue living at home, should achieve maintain healthy family functioning. This is achieved by enhancing empowerment. pilot study systemizes the program development process identifies problems results move implementation. Methods: The was developed through a step-by-step emphasizing on previous research findings, theories, collaboration families. We identified factors related empowerment from an in-depth interview of 34...

Abstract Background Families raising children with disabilities assume risks to their health and lives. Therefore, it is necessary support these families improve family empowerment, which the ability of control own lives promote collaborative disabilities. This first online intervention program focusing on empowerment who live at home in Japan. Method The consists four peer-based group sessions. Moreover, engage several activities stages wherein they discover issues, find measures resolve...

Abstract BackgroundFamilies raising children with disabilities assume risks to their health and lives. Therefore, it is necessary support these families improve family empowerment, which the ability of control own lives promote collaborative disabilities. This first online program development interventional study focusing on empowerment who live at home in Japan.MethodThe consisted four peer-based group sessions. Moreover, engage several activities stages wherein they discover issues, find...

Factors related to workforce participation by mothers caring for children with disabilities