A5056243376- Palliative Care and End-of-Life Issues
- Liver Disease and Transplantation
- Liver Disease Diagnosis and Treatment
- Childhood Cancer Survivors' Quality of Life
- Family and Patient Care in Intensive Care Units
- Family Support in Illness
- Cancer survivorship and care
- Geriatric Care and Nursing Homes
- Hepatocellular Carcinoma Treatment and Prognosis
- Organ Transplantation Techniques and Outcomes
- Grief, Bereavement, and Mental Health
- Hepatitis C virus research
- Patient Dignity and Privacy
- Patient-Provider Communication in Healthcare
- Religion, Spirituality, and Psychology
- Optimism, Hope, and Well-being
- Renal Transplantation Outcomes and Treatments
- Family Caregiving in Mental Illness
- Intergenerational Family Dynamics and Caregiving
- Frailty in Older Adults
- Colorectal Cancer Treatments and Studies
- Obesity, Physical Activity, Diet
- Cholangiocarcinoma and Gallbladder Cancer Studies
- Heart Failure Treatment and Management
- Nutrition and Health in Aging
Oregon Health & Science University
2016-2025
Copenhagen University Hospital
2025
Rigshospitalet
2025
Chr. Hansen (Denmark)
2024
VA Portland Health Care System
2015-2024
National Institutes of Health
2024
National Institute of Nursing Research
2024
OHSU Knight Cancer Institute
2023
University of Portland
2023
Boston College
2022
Palliative care is defined as multidisciplinary, specialized medical that addresses the physical, spiritual, and psychosocial needs of patients with serious illness their caregivers.[1, 2] The benefits palliative are increasingly recognized across disease states for decompensated cirrhosis (DC).[3-5] This American Association Study Liver Diseases (AASLD) guidance to providing was developed support oversight AASLD Practice Guidelines Committee. Committee chose commission a guidance, rather...
<h3>Importance</h3> Palliative care is a patient-centered approach associated with improvements in quality of life; however, results regarding its association survival benefit have been mixed, which may be factor underuse. <h3>Objective</h3> To assess whether early palliative among patients advanced lung cancer. <h3>Design, Setting, and Participants</h3> This retrospective population-based cohort study was conducted cancer who were diagnosed between January 1, 2007, December 31, 2013,...
High-quality communication is a key determinant and facilitator of patient-centered care. Nurses engage in most the with patients patients' families intensive care unit.To perform qualitative analysis nurses' communications.Ethnographic observations 315 hours interactions 53 semistructured interviews 33 nurses were conducted 26-bed cardiac-medical unit an academic hospital general Veterans Affairs Portland, Oregon. Communication categorized into 5 domains Interviews analyzed to identify...
Background Nurses working in intensive care units may lack knowledge and skills end-of-life care, find caring for dying patients the patients’ families stressful, support to provide this care. Objectives To describe nurses’ perceptions of (1) ability, (2) work environment, (3) staff, (4) families, (5) stress related specific situations context before (phase 1) after 2) implementation approaches improve The were a nurse-developed bereavement program use palliative medicine comfort team,...
Background: Symptom-focused trials are critically needed for patients with cirrhosis. However, this work would benefit from standard processes and validated measures. Methods: A writing group was formed among hepatologists, nurses, palliative care providers, pharmacists, clinical trial experts focused on symptom management in cirrhosis to define the key (1) components of design, (2) targets, (3) measurement, (4) outcomes each target. From July 2022 January 2023, panelists participated an...
For patients hospitalized with life-threatening illnesses and their families, palliative care consultants can provide critical support by providing information about prognosis, ensuring that symptoms are managed, helping to clarify goals of care, addressing psychosocial spiritual concerns. However, once leave the hospital, many hospital-based teams (PCTs) cannot continue play active roles in patient care. Gaps discharge planning not only decrease quality life for patients, but also translate...
ABSTRACT Background Compared to children or older adults, young adults (age 18–29) who undergo liver transplantation are more likely have poor psychological health and a higher risk of graft failure. Understanding patient needs perspectives is important for caring improving long‐term outcomes. Aims Objectives To (1) understand recipients' experiences, views throughout the process (2) identify possible improvements in their care. Methodological Design Justification Three focus group...
In the United States, incidence of hepatocellular carcinoma (HCC) is rising. For those diagnosed with terminal HCC, there no curative treatment and duration survival typically 1 to 2 years. Research on illness experiences toward end life for patients HCC limited.The aim this study was explore as they approached life.This used a prospective, longitudinal descriptive design. Interview data were collected from 14 once month up 6 months, total 45 interviews. Data analyzed using conventional...
Abstract We conducted a prospective study in the ICU of life‐sustaining treatment and comfort care decisions over time patients with end‐stage liver disease (ESLD) from perspectives patients, family members, healthcare professionals. Six ESLD, 19 122 professionals participated. The overarching theme describing decision‐making process was “on train.” Four sub‐themes positioned members as passengers limited control, unable to fully understand process. Findings suggest that including...
Research on symptom distress experienced by patients with end-stage liver disease at the end of life is limited. The aims study were to describe presence, frequency, severity, and symptoms in toward variability psychological physical between within over time. This used a prospective, longitudinal descriptive design. Data collected from 20 once month for up 6 months. Participants completed Memorial Symptom Assessment Scale, which reports total score, Global Distress Index score. Patients...
Abstract Background: Hundreds of thousands incidental pulmonary nodules are detected annually in the United States, and this number will increase with implementation lung cancer screening. The lengthy period for active nodule surveillance, often several years, is unique among regimens. psychosocial impact longitudinal follow-up, however, has not been described. Aims: We sought to evaluate follow-up detection on patients. Methods: Veterans who participated our previous study had yearly...
Older adults dying from chronic illness in rural areas are understudied and of concern because their limited access to health services. The purpose this qualitative descriptive study was describe the perspectives primary family caregivers regarding experiences with formal informal care at end life for older one rural, agricultural county. Semi-structured interviews were conducted 23 following death an relative. Major themes that emerged data benefits challenges associated Benefits included...
Rationale: To understand how well palliative care is provided in the intensive unit (ICU) and to direct improvements, measurement of quality delivered requisite.Objectives: measure ICU, using chart review–derived process measures critically ill patients, compare these with family nursing perspectives on provided.Methods: We developed operationalized a comprehensive evaluation set from previously endorsed statements, rigorous multidisciplinary Delphi focused optimizing validity feasibility...