A5074601884- Congenital Heart Disease Studies
- Cardiovascular Conditions and Treatments
- Tracheal and airway disorders
- Congenital Diaphragmatic Hernia Studies
- Healthcare Policy and Management
- Cardiovascular Issues in Pregnancy
- Congenital Anomalies and Fetal Surgery
- Adolescent and Pediatric Healthcare
- Neonatal Respiratory Health Research
- Prenatal Screening and Diagnostics
- Coronary Artery Anomalies
- Cardiac Structural Anomalies and Repair
- Autopsy Techniques and Outcomes
- Child and Adolescent Psychosocial and Emotional Development
- Child and Adolescent Health
- Food Security and Health in Diverse Populations
- Esophageal and GI Pathology
- Cardiac Arrest and Resuscitation
- Metabolism and Genetic Disorders
- Cardiovascular and Diving-Related Complications
- Pregnancy and preeclampsia studies
- Demographic Trends and Gender Preferences
- Cardiovascular Function and Risk Factors
- Non-Invasive Vital Sign Monitoring
- Health, Environment, Cognitive Aging
National Center on Birth Defects and Developmental Disabilities
2014-2024
Centers for Disease Control and Prevention
2014-2024
CDC Foundation
2023-2024
Glidewell (United States)
2022
University of Birmingham
2019
Starship Children's Health
2019
Leiden University Medical Center
2019
Leipzig Heart Institute
2019
Triangle
2018
John Wiley & Sons (United States)
2018
Although newborn screening for critical congenital heart disease (CCHD) was recommended by the US Health and Human Services Secretary's Advisory Committee on Heritable Disorders in Newborns Children to promote early detection, it deemed Secretary of HHS as not ready adoption pending an implementation plan from agencies.To develop strategies safe, effective, efficient screening.A work group convened with members selected Children, American Academy Pediatrics, College Cardiology Foundation,...
Newborn screening for critical congenital heart defects (CCHD) was added to the US Recommended Uniform Screening Panel in 2011. Within 4 years, 46 states and District of Columbia had adopted it into their newborn program, leading CCHD being nearly universal United States. This rapid adoption occurred while there were still questions about effectiveness recommended protocol barriers follow-up infants with a positive screen. In response, Centers Disease Control Prevention partnered American...
BACKGROUND AND OBJECTIVE: New Jersey was the first state to implement legislatively mandated newborn pulse oximetry screening (POxS) in all licensed birthing facilities detect critical congenital heart defects (CCHDs). The objective of this report evaluate implementation Jersey’s statewide POxS mandate. METHODS: A 2-pronged approach used collect data on infants screened from August 31, 2011, through May 2012. Aggregate results were submitted by each facility. Data failed screens and clinical...
To examine the financial burdens and mental health needs of families children with special healthcare (CSHCN) congenital heart disease (CHD).Data from 2009-2010 National Survey Children Special Health Care Needs (NS-CSHCN) were used to parent-reported (out-of-pocket expenses, problems, employment impact, caregiving hours) family members' need for services in CSHCN CHD. Multivariable logistic regression was compare among without Among CHD, multivariable regression, stratified by age (0-5 6-17...
In 2011, the U.S. Department of Health and Human Services added critical congenital heart disease (CCHD), which occurs in two every 1,000 births, to list conditions recommended states for universal newborn screening (1). Without early detection, infants with CCHD are at risk substantial morbidity death first weeks months life (2). Based on 2007-2013 data, deaths from other cardiac causes aged <6 significantly declined born eight after they had fully implemented mandated policies by June 2013...
Improved treatment of congenital heart defects (CHDs) has increased survival persons with CHDs; however, no U.S. population-based systems exist to assess prevalence, healthcare utilization, or longer-term outcomes among adolescents and adults CHDs.Novel approaches identified individuals aged 11-64 years who received ICD-9-CM codes for CHDs at three sites: Emory University in Atlanta, Georgia (EU), Massachusetts Department Public Health (MA), New York State (NY) between January 1, 2008 (2009...
Objective. Critical congenital heart disease (CCHD) was recently added to the U.S. Recommended Uniform Screening Panel for newborns. This evaluation aimed estimate screening time and hospital cost per newborn screened CCHD using pulse oximetry as part of a public health economic assessment screening. Methods. A survey motion study were conducted in well-newborn special/intensive care nurseries random sample seven birthing hospitals New Jersey, where state legislature mandated 2011. The...
Background The Centers for Disease Control and Prevention's Surveillance of Congenital Heart Defects Across the Lifespan project uses large clinical administrative databases at sites throughout United States to understand population-based congenital heart defect (CHD) epidemiology outcomes. These individual are also relied upon accurate coding CHD estimate population prevalence. Methods Results This validation assessed a sample 774 cases from 4 surveillance determine positive predictive...
The prevalence, co-morbidities, and healthcare utilization in adolescents with congenital heart defects (CHDs) is not well understood. Adolescents (11 to 19 years old) a encounter between January 1, 2008 (January 2009 for MA) December 31, 2010 CHD diagnosis code were identified from multiple administrative data sources compiled at 3 US sites: Emory University, Atlanta, Georgia (EU); Massachusetts Department of Public Health (MA); New York State (NY). estimated prevalence any was 4.77 (EU),...
As epidemiological studies expand to examine gene-environment interaction effects, it is important identify factors associated with participation in genetic studies. The National Birth Defects Prevention Study a multisite case-control study designed investigate environmental and risk for major birth defects. includes maternal telephone interviews mailed buccal cell self-collection kits. Because subjects can participate the interview, independent of collection, detailed analysis collection...
Socioeconomic factors may lead to a disproportionate impact on health care usage and death among individuals with congenital heart defects (CHD) by race, ethnicity, socioeconomic factors. How neighborhood poverty affects racial ethnic disparities in CHD across the life span is not well described.
Background: Neonates born to women with congenital heart disease (CHD) are at high risk for adverse outcomes. We sought describe these outcomes and maternal/pregnancy factors. Methods: analyzed linked clinical, administrative, birth certificate data in 3 geographic areas Georgia, North Carolina Utah from 2011 through 2014. Birth certificates provided neonatal, maternal pregnancy characteristics. Maternal CHD was identified clinical administrative categorized as severe , shunt valve or...
Children with chronic illnesses report being bullied by peers, yet little is known about bullying among children heart conditions. Using 2018-2020 National Survey of Children's Health data, the prevalence and frequency in past year (never; annually or monthly; weekly daily) were compared between aged 6-17 years without Among conditions, associations demographic health characteristics bullied, diagnosed anxiety depression status examined. Differences assessed chi-square tests multivariable...
Background We sought to characterize health care usage for adolescents with congenital heart defects (CHDs) using population-based multisite surveillance data. Methods and Results Adolescents aged 11 18 years ≥1 CHD-related diagnosis code residing in 5 US sites were identified clinical administrative data sources the 2011 2013. Sites linked on all inpatient, emergency department (ED), outpatient visits. Multivariable log-binomial regression models including age, sex, unweighted Charlson...