Researchers have studied how people use self-tracking technologies and discovered a long list of barriers including lack time motivation as well difficulty in data integration interpretation. Despite the barriers, an increasing number Quantified-Selfers diligently track many kinds about themselves, some them share their best practices mistakes through Meetup talks, blogging, conferences. In this work, we aim to gain insights from these "extreme users," who used existing built own workarounds...

New technologies for encouraging physical activity, healthy diet, and other types of health behavior change now frequently appear in the HCI literature. Yet, how such should be evaluated within context research remains unclear. In this paper, we argue that obvious answer to question - evaluations assess whether a technology brought about intended is too limited. We propose demonstrating often infeasible as well unnecessary meaningful contribution research, especially when early stages design...

Background: When patients need health information to manage their personal health, they turn both professionals and other patients. Yet, we know little about how the exchanged among (ie, patient expertise) contrasts with offered by clinician expertise). Understanding patients' experiential expertise medical of is necessary inform design peer-support tools that meet needs, particularly growing prevalence largely unguided advice sharing through Internet-based social software. Objective: The...

Integrating personal health information helps people manage their lives and actively participate in own care.

Social support is a critical, yet underutilized resource when undergoing cancer care. Underutilization occurs in two conditions: (a) patients fail to seek out information, material assistance, and emotional from family friends or (b) meet the individualized needs preferences of patients. networks are most effective kept up date on patient's status, updating everyone takes effort that cannot always put in. To improve this situation, we describe results our participatory design activities with...

Manual tracking of health behaviors affords many benefits, including increased awareness and engagement. However, the capture burden makes long-term manual challenging. In this study on sleep tracking, we examine ways to reduce while leveraging its benefits. We report design evaluation SleepTight, a low-burden, self-monitoring tool that leverages Android's widgets both improve access information. Through four-week deployment (N = 22), found participants who used SleepTight with enabled had...

Barriers to accessing mental health care leave the majority of people with illnesses without professional care. Peer support has been shown address gaps in care, and could scale wider audiences through technology. But technology design for peer lags far behind tools individuals clinicians. To identify opportunities design, we interviewed 18 a diverse range about their use support, invited them technologies that improve experience support. We found enhance by: (1) matching peers on...

Talk therapy is a common, effective, and desirable form of mental health treatment. Yet, it inaccessible to many people. Enabling peers chat online using effective principles talk could help scale this care. To understand how such chats be designed, we conducted two-week field experiment with 40 people experiencing illnesses comparing two types chats-chats guided by prompts, unguided chats. Results show that anxiety was significantly reduced from pre-test post-test. User feedback revealed...

Studies have shown positive impact of video blogs (vlogs) on patient education. However, we know little how patient-initiated vlogs shape the relationships among vloggers and viewers. We qualitatively analyzed 72 YouTube by users diagnosed with HIV, diabetes, or cancer 1,274 comments posted to understand viewers' perspectives vlogs. found that unique medium allowed intense enriched personal contextual disclosure viewers, leading strong community-building activities social support commenters,...

Informal caregivers, such as close friends and family, play an important role in a hospital patient's care. Although CSCW researchers have shown the potential for social computing technologies to help patients their caregivers manage chronic conditions support health behavior change, few studies focus on caregivers' during multi-day stay. To explore this space, we conducted interview observation study of inpatient setting. In paper, describe how coordinate collaborate patients' care...

Abstract Objective People who experience marginalization, including Black, Indigenous, of Color (BIPOC) and Lesbian, Gay, Bisexual, Transgender, Queer, Plus (ie, all other marginalized genders sexual orientations) people (LGBTQ+) discrimination during healthcare interactions, which negatively impacts patient–provider communication care. Yet, scarce research examines the lived unfair treatment among patients from groups to guide patient-centered tools that improve equity. Materials Methods We...

Health video blogs (vlogs) allow individuals with chronic illnesses to share their stories, experiences, and knowledge the general public. Furthermore, health vlogs help in creating a connection between vlogger viewers. In this work, we present qualitative study examining various methods that vloggers use establish We found used genres express specific messages viewers while using uniqueness of deeper also explicitly sought interaction Based on these results, design implications facilitate...

Patients going home after a hospitalization face many challenges. This transition period exposes patients to unnecessary risks related inadequate preparation prior leaving the hospital, potentially leading errors and patient harm. Although engaging in self-management have better health outcomes increased self-efficacy, little is known about processes place support develop these skills for hospital. Through qualitative interviews observations of 28 during their hospitalizations, we explore...

Objective The proposed Meaningful Use Stage 3 recommendations require healthcare providers to accept patient-generated health data (PGHD) by 2017. Yet, we know little about the tensions that arise in supporting needs of both patients and this context. We sought examine these when designing a novel, patient-centered technology – mobile Post-Operative Wound Evaluator (mPOWEr) uses PGHD for post-discharge surgical wound monitoring. Materials Methods As part iterative design process mPOWEr,...

Despite years of addressing disability in technology design and advocating user-centered practices, popular mainstream technologies remain largely inaccessible for people with disabilities. We conducted a course study investigating how student designers regard explored designing multiple disabled nondisabled users encouraged students to think about accessibility the process. Across two university offerings one year apart, we examined focused on project while learning concepts techniques,...