This study explored patient preferences for involvement in the breast cancer treatment decision and concordance between patients' physicians' views on decisional role. The impact of demographic psychosocial characteristics role was also examined.Women with stage I or II who were candidates either mastectomy lumpectomy recruited from a university center. Patient interviews obtained before meeting surgical oncologist again after made but intervention. Clinician responses consultation.The 101...

Universal design principles advocate inclusion of end users in every stage, including research and development. Brain-computer interfaces (BCIs) have long been described as potential tools to enable people with amyotrophic lateral sclerosis (ALS) operate technology without moving. Therefore the objective current study is determine opinions priorities ALS regarding BCI design. This information will guide BCIs development meet end-user needs. A telephone survey was undertaken 61 from...

<h3>Objective:</h3> Autonomic symptoms may occur frequently in diabetic and other neuropathies. There is a need to develop simple instrument measure autonomic subjects with neuropathy test the validity of instrument. <h3>Methods:</h3> The Survey Symptoms (SAS) consists 11 items women 12 men. Each item rated by an impact score ranging from 1 (least severe) 5 (most severe). SAS was tested observational studies compared previously validated scale, Symptom Profile (ASP), series tests....

Abstract Background Sexual and gender minority (SGM) individuals often experience more discrimination worse health than non-SGM people. Less is known about SGM with inflammatory bowel disease (IBD). We studied IBD outcomes, discrimination, illness-related stigma, status in a cross-sectional survey. Methods In total, 1586 Partners e-cohort participants self-reported sexual orientation, identity, prior treatment. They completed the Short Crohn’s Disease Activity Index or Simple Clinical...

The purpose of the study was to develop and evaluate Taking CHARGE, a self-management intervention designed facilitate successful transitions survivorship after breast cancer treatment. CHARGE involves two-pronged approach building on self-regulation principles (1) equip women with skills address concerns following treatment, (2) provide information about common topics. program involved four contacts, two small group meetings individualized telephone sessions, delivered by nurse/health...

Brain-computer interfaces (BCI) are designed to enable individuals with severe motor impairments such as amyotrophic lateral sclerosis (ALS) communicate and control their environment. A focus group was conducted ALS (n=8) caregivers (n=9) determine the barriers mediators of BCI acceptance in this population. Two key categories emerged: personal factors relational factors. Personal factors, which included physical, physiological psychological concerns, were less important participants than...

Purpose To examine the relationship between various clinical measures of visual field and patient-reported symptoms health status in a large cohort patients with glaucoma at time diagnosis. Patients Methods The 607 Collaborative Initial Glaucoma Treatment Study received standardized examinations enrollment. In addition, they completed telephone-administered, health-related quality-of-life questionnaire, which included Visual Activities Questionnaire (VAQ) symptom problem checklist. Results...

<h3>Objectives</h3> To study the incidence of and predictors for cataract extraction (CE) in patients with newly diagnosed glaucoma, impact CE on visual function, changes time around CE. <h3>Methods</h3> Patients were randomized to medical or surgical treatments glaucoma at 14 centers followed up a median 7.7 years. Vision-specific quality life (VS-QOL) data collected by telephone interview during follow-up 607 glaucoma. The occurrence was signal event. Risk factors evaluated using survival...

To compare the baseline Collaborative Initial Glaucoma Treatment Study (CIGTS) visual field (VF) score and mean deviation (MD), investigate test-retest variability, identify variables associated with VF loss measurement variability.Baseline data from a randomized clinical trial of 607 patients newly diagnosed open-angle glaucoma were collected at 14 centers. The CIGTS MD obtained 24-2 tests (Zeiss-Humphrey Systems, Dublin, CA) two visits approximately 2 weeks apart.Although most scores...

In 1988, the Robert Wood Johnson Foundation awarded grants to 54 AIDS prevention and service projects. This article presents results from a survey of 37 projects that contained substantial effort embellishes these findings with qualitative data in-depth site visits 12 Survey respondents reported conducting mean 19 different intervention activities. Small-group discussion, outreach populations engaged in high-risk behaviors, training peers volunteers were activities rated most effective by...

Abstract Introduction : Assistive devices are prescribed for amyotrophic lateral sclerosis (ALS) patients with motor deficits, but little is known about their perceived benefit. Therefore, we assessed ALS patients' satisfaction commonly devices. Methods A telephone survey of 63 from a single multidisciplinary clinic was conducted to assess the frequency use, usefulness, and 33 assistive Results Of those technologies used “often or always” by ≥20% respondents, arm rails toilet, elevated...

Background It has been assumed that the symptoms measured in disease activity indices for ulcerative colitis reflect those patients find useful evaluating severity of a flare. Objective We aimed to identify which are important and compare these with comprehensive list commonly evaluate whether patient-reported represented current colitis. Methods Qualitative focus group study. Results Patients this sample confirmed 15 but not 11 other found common indices. identified an additional 14...

To compare drivers and nondrivers, to describe the specific concerns of drivers, among individuals with glaucoma.Six hundred seven patients newly diagnosed glaucoma treated at 14 clinical centers Collaborative Initial Glaucoma Treatment Study were randomly assigned initial medicine or surgery followed up every 6 months. Driving status (drivers versus nondrivers) patient-reported visual function determined by Visual Activities Questionnaire National Eye Institute Function Questionnaire....