- Congenital Heart Disease Studies
- Congenital Diaphragmatic Hernia Studies
- Tracheal and airway disorders
- Cardiovascular Issues in Pregnancy
- Congenital heart defects research
- Radiation Dose and Imaging
- Cardiovascular Conditions and Treatments
- Cardiac tumors and thrombi
- Mechanical Circulatory Support Devices
- Vascular anomalies and interventions
- Transplantation: Methods and Outcomes
- Healthcare Systems and Technology
- Cardiac Valve Diseases and Treatments
- Social Work Education and Practice
- Cardiac Structural Anomalies and Repair
- Labor Movements and Unions
- Congenital Anomalies and Fetal Surgery
- Pediatric Urology and Nephrology Studies
- Neonatal and fetal brain pathology
- Cardiac Arrhythmias and Treatments
- Public Health Policies and Education
- Interprofessional Education and Collaboration
- Renal and Vascular Pathologies
- Globalization and Cultural Identity
- Neonatal Respiratory Health Research
Children's Healthcare of Atlanta
2019-2024
Emory University
2019-2024
Children's Hospital of Philadelphia
2021
University of Georgia
2015
Clinical research in the treatment of patients with congenital heart disease (CHD) is limited by wide variety CHD manifestations and therapeutic options as well generally low incidence CHD. The availability comprehensive, contemporary outcomes studies therefore limited. This inadequacy may result a lack data-driven medical decision making. In 2013, clinician scientists at two centers began collaboration, Congenital Catheterization Research Collaborative (CCRC). Over time, CCRC has grown to...
Stenting of the patent ductus arteriosus (PDA) is an established palliative option for infants with ductal-dependent pulmonary blood flow. Following initial palliation, reintervention on PDA stent common, but risk factors have not been characterized.Infants flow palliated between 2008 and 2015 were reviewed within Congenital Cardiac Research Collaborative. Rates analyzed.Among 105 who underwent successful stenting, 41 patients (39%) a total 53 reinterventions stent, all one occurring 6...
Multicentre research databases can provide insights into healthcare processes to improve outcomes and make practice recommendations for novel approaches. Effective audits establish a framework reporting efforts, ensuring accurate reporting, spearheading quality improvement. Although variety of data auditing models standards exist, barriers effective including costs, regulatory requirements, travel, design complexity must be considered.The Congenital Cardiac Research Collaborative conducted...
Neonates with tetralogy of Fallot and symptomatic cyanosis (sTOF) require early intervention, utilizing either a staged repair (SR) or primary (PR) approach. They are exposed to several sources low-dose ionizing radiation, which may contribute increased cancer risk.
Objectives: This study examined how evaluation and intervention research (IR) studies assessed statistical change to ascertain effectiveness. Methods: Studies from six core social work journals (2009–2013) were reviewed ( N = 1,380). Fifty-two n 27) 25) met the inclusion criteria. These categorized by indices effect sizes reported. Only included in final analysis. Results: Multivariate analysis of variance (28%) was most frequently used primary statistic χ 2 (43%) frequent secondary...
Introduction: Absent ductus arteriosus (ADA) is a poorly described feature associated with tetralogy of Fallot (TOF). We compare characteristics and outcomes neonates symptomatic TOF (sTOF) ADA to those (DA). Hypothesis: hypothesized: sTOF would have similar born DA, small portion the cohort critically-deficient pulmonary blood flow (CDPBF). Methods: Consecutive who underwent intervention during neonatal period from 2005—2017 were identified Congenital Cardiac Research Collaborative. Those...
Neonates with symptomatic tetralogy of Fallot (sTOF) require early intervention either staged repair (SR) or primary (PR). SR patients may be palliated a transcatheter procedure (cath), but all undergo additional cardiac caths regardless treatment strategy, obligating exposure to ionizing radiation at an age, which increase lifetime risk for malignancy. sTOF who underwent PR from 2012-2017 were retrospectively reviewed the Congenital Cardiac Research Collaborative. All performed in first 18...
Complete repair (CR) can be delayed in neonates with symptomatic tetralogy of Fallot (sTOF) using surgical or transcatheter palliation to relieve cyanosis. Balloon pulmonary valvuloplasty (BPV) is an established treatment for valve stenosis; however, its effectiveness palliating sTOF has not been well investigated.
Introduction: Neonates with tetralogy of Fallot and pulmonary atresia (TOF/PA) blood flow supplied by the ductus arteriosus require early intervention. This may be accomplished by: initial palliation (IP) followed complete repair (CR) or primary (PR). The optimal approach for patients TOF/PA has not been established. Methods: who underwent IP PR from 2005-17 were retrospectively reviewed Congenital Catheterization Research Collaborative. outcome was mortality. Outcomes compared as vs IP+CR...
Introduction: Symptomatic neonates with tetralogy of Fallot (sTOF) and hypoplastic branch pulmonary arteries (hPA) are at high risk. Management strategies include staged repair (SR) - initial palliation (IP) followed by later complete (CR) or primary (PR). A balanced comparison these approaches is needed in the sTOF neonate hPA. Methods: Consecutive hPA defined as one z-score <-2.0 contralateral <0 who underwent SR PR from 2005-17 were retrospectively reviewed Congenital...