A5080386237- Stroke Rehabilitation and Recovery
- Traumatic Brain Injury Research
- Cerebral Palsy and Movement Disorders
- American and British Literature Analysis
- Childhood Cancer Survivors' Quality of Life
- Acute Ischemic Stroke Management
- Dementia and Cognitive Impairment Research
- Cancer survivorship and care
- Health Systems, Economic Evaluations, Quality of Life
- Musculoskeletal pain and rehabilitation
- COVID-19 and Mental Health
- Spine and Intervertebral Disc Pathology
- Cardiac Arrest and Resuscitation
- Health disparities and outcomes
- Family Support in Illness
- Religion, Spirituality, and Psychology
- Parkinson's Disease Mechanisms and Treatments
- Crime and Detective Fiction Studies
- Health, psychology, and well-being
- Genetic Neurodegenerative Diseases
- Medical Imaging and Analysis
- Botulinum Toxin and Related Neurological Disorders
- Family and Disability Support Research
- Multiple Sclerosis Research Studies
- Optimism, Hope, and Well-being
Trent University
2018-2022
University of Trento
2021
University of Rochester Medical Center
2015
University of Utah
2015
Northwestern University
2006-2015
VA Greater Los Angeles Healthcare System
2015
Olive View-UCLA Medical Center
2015
Shirley Ryan AbilityLab
2004-2015
Robert H. Lurie Comprehensive Cancer Center of Northwestern University
2013
DeltaQuest Foundation (United States)
2006-2012
To address the need for brief, reliable, valid, and standardized quality of life (QOL) assessment applicable across neurologic conditions.Drawing from larger calibrated item banks, we developed short measures (8-9 items each) 13 different QOL domains physical, mental, social health evaluated their validity reliability. Three samples were utilized during form development: general population (Internet-based, n = 2,113); clinical panel 553); outpatient (clinic-based, 581). All forms are...
To develop psychometrically sound, culturally relevant, and linguistically equivalent English Spanish self-report measures of social health guided by a comprehensive conceptual model applicable across chronic illnesses.The Patient-Reported Outcomes Measurement Information System (PROMIS) Social Health Workgroup implemented mixed methods approach to evaluate earlier results (v1.0); expand refine domain definitions items; translate items into Spanish; obtain qualitative feedback....
One of the goals NIH Toolbox for Assessment Neurological and Behavioral Function was to identify or develop brief measures emotion use in prospective epidemiologic clinical research. Emotional health has significant links physical exerts a powerful effect on perceptions life quality. Based an extensive literature review expert input, Emotion team identified 4 central subdomains: Negative Affect, Psychological Well-Being, Stress Self-Efficacy, Social Relationships. A subsequent psychometric...
The quality of our daily social interactions-including perceptions support, feelings loneliness, and distress stemming from negative exchanges-influence physical health well-being. Despite the importance relationships, brief yet precise unidimensional scales that assess key aspects relationship are lacking. As part National Institute Health (NIH) Toolbox for Assessment Neurological Behavioral Function, we developed self-report designed to companionship, across age cohorts. This article...
<b><i>Objectives:</i></b> To 1) develop a short instrument (Stroke Impact Scale–16 [SIS-16]) to assess physical function in patients with stroke at approximately 1 3 months poststroke using items from the composite domain of Stroke Scale (SIS) version 3.0, and 2) compare SIS-16 commonly used disability measure, Barthel Index (BI), terms their ability discriminate disability. <b><i>Methods:</i></b> A total 621 subjects enrolled GAIN Americas randomized trial were included this study. Rasch...
The need to measure and evaluate orthotics prosthetics (O&P) practice has received growing recognition in the past several years. Reliable valid self-report instruments are needed that can help facilities patient outcomes. objective of this project was develop a set assess functional status, quality life, satisfaction with devices services be used an clinic. Selecting items from variety existing instruments, authors developed revised four differentiate patients varying levels lower limb...
Objectives: To expand the ability to assess physical frailty by developing a Clinical Global Impression of Change in Physical Frailty (CGIC‐PF) instrument. Design: Qualitative and quantitative instrument development. Setting: Academic centers. Participants: Six expert panel members, 46 clinicians, 24 patients, 12 caregivers. Measurements: Literature review structured group processes with experts, consumers were used generate an initial list domains indicators. Structured interviews clinical...
Abstract Objective To assess the reliability and validity of Disease Activity Score (DAS), an instrument used to evaluate children with juvenile dermatomyositis (JDM). Methods Psychometric study internal consistency, reliability, rater agreement, relationship measures muscle strength disability was conducted. Results The DAS ratings are internally consistent (reliability = 0.89) describe a wide range disease activity. pediatric rheumatologists in this agree on presence most indicators. Their...
<h3>Objective:</h3> To determine the most critical symptoms in a national myotonic dystrophy type 1 (DM1) population and to identify modifying factors that have greatest effect on severity of these symptoms. <h3>Methods:</h3> We performed cross-sectional study 278 adult patients with DM1 from registry between April August 2010. assessed prevalence relative significance 221 14 disease themes. These themes were chosen for evaluation based prior interviews DM1. Responses categorized by age, CTG...
Background and Purpose— This study evaluated assessments of physical functioning social using the Stroke Impact Scale (SIS) Short Form-36 (SF-36) to characterize health-related quality life for patients after stroke. Methods— The SIS SF-36 were administered 278 stroke subjects ≈90 days SIS-16 Physical Functioning (PF) domain function, whereas Participation Social (SF) domains function. Descriptive statistics an analysis variance used across levels modified Rankin (MRS). Rasch was compare...
Autogenous Iliac Crest Bone Graft (ICBG) has been the "gold standard" for spinal fusion. However, bone graft harvest may lead to complications, such as chronic pain, numbness, and poor cosmesis. The long-term impact of these complications on patient function well-being not established but is critical in determining value expensive substitutes recombinant morphogenic protein. We thus aimed investigate ICBG. Our second aim was evaluate psychometric properties a new measure ICBG morbidity that...
Ten months before his death, a 36-year-old homosexual man with AIDS developed progressive symmetric paraparesis muscle wasting, paresthesias, reflex-uninhibited bladder function, and bowel incontinence. Neuropathologic postmortem examination revealed degeneration of the lateral anterior pyramidal tracts as well posterior columns. Scattered microglial nodules were present in brain spinal cord. The cause this cord complication remains uncertain. Possible etiologies demyelinating process...