A5049456065- Cancer survivorship and care
- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Patient-Provider Communication in Healthcare
- Economic and Financial Impacts of Cancer
- Cancer Treatment and Pharmacology
- Health Systems, Economic Evaluations, Quality of Life
- Breast Cancer Treatment Studies
- Mobile Health and mHealth Applications
- Family Support in Illness
- Chronic Disease Management Strategies
- Health Literacy and Information Accessibility
- Health Policy Implementation Science
- Cancer-related cognitive impairment studies
- Diabetes Management and Education
- Cerebral Palsy and Movement Disorders
- Optimism, Hope, and Well-being
- Global Cancer Incidence and Screening
- Patient Satisfaction in Healthcare
- Clinical practice guidelines implementation
- Medication Adherence and Compliance
- Telemedicine and Telehealth Implementation
- Social Media in Health Education
- Digital Mental Health Interventions
- Assistive Technology in Communication and Mobility
Northwestern University
2016-2025
Indo-American Center
2019-2025
Robert H. Lurie Comprehensive Cancer Center of Northwestern University
2010-2025
European Committee for Standardization
2023
Roche (Spain)
2022
ORCID
2022
The University of Texas MD Anderson Cancer Center
2021
Dana-Farber Cancer Institute
2021
The University of Texas Southwestern Medical Center
2021
Vanderbilt University Medical Center
2021
Distress is defined in the NCCN Guidelines for Management as a multifactorial, unpleasant experience of psychologic (ie, cognitive, behavioral, emotional), social, spiritual, and/or physical nature that may interfere with ability to cope effectively cancer, its symptoms, and treatment. Early evaluation screening distress leads early timely management distress, which turn improves medical management. The panel recently added new principles section including guidance on implementation...
To develop psychometrically sound, culturally relevant, and linguistically equivalent English Spanish self-report measures of social health guided by a comprehensive conceptual model applicable across chronic illnesses.The Patient-Reported Outcomes Measurement Information System (PROMIS) Social Health Workgroup implemented mixed methods approach to evaluate earlier results (v1.0); expand refine domain definitions items; translate items into Spanish; obtain qualitative feedback....
Patients with triple-negative breast cancer (TNBC) and residual invasive disease (RD) after completion of neoadjuvant chemotherapy (NAC) have a high-risk for recurrence, which is reduced by adjuvant capecitabine. Preclinical models support the use platinum agents in TNBC basal subtype. The EA1131 trial hypothesized that disease-free survival (iDFS) would not be inferior but improved patients subtype treated compared
These NCCN Guidelines for Distress Management discuss the identification and treatment of psychosocial problems in patients with cancer. All experience some level distress associated a cancer diagnosis effects disease its regardless stage disease. Clinically significant levels occur subset patients, are utmost importance. The Panel meets at least annually to review comments from reviewers within their institutions, examine relevant new data publications abstracts, reevaluate update...
PURPOSE Cancer-related cognitive impairment (CRCI) is common during adjuvant chemotherapy and may persist. TAILORx provided a novel opportunity to prospectively assess patient-reported among women with early breast cancer who were randomly assigned chemoendocrine therapy (CT+E) versus endocrine alone (E), allowing us quantify the unique contribution of CRCI. METHODS Women 21-gene recurrence score 11 25 enrolled in TAILORX CT+E or E. Cognitive was assessed subgroup 552 evaluable using 37-item...
BACKGROUND Young adults (YAs; ages 18‐39 years) with cancer face interrupted developmental milestones and increased stressors that can adversely influence psychosocial adjustment. Transitioning from active treatment to posttreatment survivorship be particularly challenging. The purpose of this study is describe the health‐related quality life (HRQL) psychological adaptation YAs after treatment, relative young without cancer. METHODS Three cohorts mixed diagnoses (N = 120, 0‐12 months...
Oncology practice can be enhanced by the integration of assessment patient-reported symptoms and concerns into electronic health record (EHR) clinical workflows.
<h3>Importance</h3> Racial disparities in survival outcomes among Black women with hormone receptor–positive breast cancer have been reported. However, the association between individual-level and neighborhood-level social determinants of health on such has not well studied. <h3>Objective</h3> To evaluate race clinical (ie, relapse-free interval overall survival) adjusting for individual insurance coverage neighborhood deprivation index (NDI), measured using zip code residence, cancer....
Describe the feasibility and implementation of an electronic health record (EHR)-integrated symptom needs screening referral system in a diverse racial/ethnic patient population ambulatory oncology.
People with cancer experience symptoms that adversely affect quality of life. Despite existing interventions and clinical guidelines, timely symptom management remains uneven in oncology care. We describe a study to implement evaluate an electronic health record (EHR)-integrated monitoring program adult outpatient Our patient-reported outcomes (cPRO) is customized EHR-integrated installation. will cPRO across all Northwestern Memorial HealthCare (NMHC) hematology/oncology clinics. conduct...
Abstract The COVID-19 pandemic placed a spotlight on the potential to dramatically increase use of telehealth across cancer care continuum, but whether and how can be implemented in practice ways that reduce, rather than exacerbate, inequities are largely unknown. To help fill this critical gap research practice, we developed Framework for Integrating Telehealth Equitably (FITE), process evaluation model designed guide equitable integration into practice. In manuscript, present FITE showcase...
Abstract Objectives Patient-reported outcomes (PROs) describe a patient’s unique experiences with disease or treatment, yet effective use of this information during clinical encounters remains challenging. This project sought to build PRO based dashboard within the electronic health record (EHR), prioritizing interpretability and utility PROs for decision-making. Materials Methods Codesign principles were used define goal, features, visualization data elements on dashboard. sessions occurred...
Background Attending to patient-reported outcomes (PROs) using data visualisation dashboards could enhance shared decision-making (SDM) and care delivery for serious chronic illnesses. However, few studies have evaluated real-world strategies resulting implementation of PRO dashboards. Method From June 2020 January 2022, we implemented an electronic health record (EHR)-integrated dashboard advanced cancer kidney disease. Based on science guidelines (eg, Framework Reporting Adaptations...
Methods of integrating qualitative data across diverse studies and within multi-site research consortia are less developed than those for quantitative data. The development ofsuchmethods is essential to support the exchange needed cross-study inquiry given increasing emphasis on sharing open science. We describe methods integration National Cancer Institute's Improving Management symPtoms During And following Treatment (IMPACT) Consortium funded by MoonshotSM. Data collection analysis were...
This study examined associations between patient characteristics, health behaviors, and outcomes explored the role of literacy as a potential mediator outcomes. English- Spanish-speaking adults with Type 2 diabetes used bilingual multimedia touchscreen to complete questionnaires. The behavioral model for vulnerable populations guided multivariable regression mediation testing. Dependent variables were self-care, status, satisfaction communication. Independent included sociodemographic...