A5051878406- Cerebral Palsy and Movement Disorders
- Occupational Therapy Practice and Research
- Assistive Technology in Communication and Mobility
- Spinal Cord Injury Research
- Stroke Rehabilitation and Recovery
- Disability Rights and Representation
- Childhood Cancer Survivors' Quality of Life
- Health Policy Implementation Science
- Delphi Technique in Research
- Mobile Health and mHealth Applications
- Health Systems, Economic Evaluations, Quality of Life
- Down syndrome and intellectual disability research
- Cancer survivorship and care
- Chronic Disease Management Strategies
- Technology Use by Older Adults
- Disability Education and Employment
- Family and Disability Support Research
- Geriatric Care and Nursing Homes
- Mechanical Circulatory Support Devices
- Inclusion and Disability in Education and Sport
- Mental Health and Patient Involvement
- Health disparities and outcomes
- Infant Development and Preterm Care
- Sports injuries and prevention
- Health Literacy and Information Accessibility
University of Illinois Chicago
2016-2025
Roosevelt University
2022
University of Illinois Urbana-Champaign
2021
Westat (United States)
2013-2016
University of Washington
2013-2016
Northwestern University
2007-2015
University of Lucerne
2014
Indiana University – Purdue University Indianapolis
2013
University of Wisconsin–Milwaukee
2013
University of Connecticut
2011-2013
Purpose. Although participation is an important construct and valued goal, how it conceptualized, defined measured varies widely. This qualitative, multi-site study sought to gain insider perspective from people with disabilities in grounding what means, characterize it, the barriers supports participation.Method. Sixty-three self-identifying diverse participated qualitative focus groups across sites.Results. Participants conceptualized as a cluster of values that included active meaningful...
Although the validity of sit-to-stand (STS) test as a measure lower limb strength has been questioned, it is widely used such among older adults. The purposes this study were: 1) to describe five-repetition STS (FRSTST) performance
Abstract Introduction: Both grip and knee extension strength are often used to characterize overall limb muscle strength. We sought determine if the measures actually reflect a common construct. Methods: The isometric of 164 healthy men women (range, 18–85 years) were measured bilaterally using standard procedures. Pearson correlations (r), Cronbach alpha, principal components analysis, multiple regression/correlation investigate dimensionality measures. Results: Left right forces torques...
Motor function involves complex physiologic processes and requires the integration of multiple systems, including neuromuscular, musculoskeletal, cardiopulmonary, neural motor sensory-perceptual systems. Motor-functional status is indicative current physical health status, burden disease, long-term outcomes, integrally related to daily functioning quality life. Given its importance overall neurologic function, was identified as a key domain for inclusion in NIH Toolbox Assessment...
People with disabilities are largely absent from mainstream health research. Exclusion of people may be explicit, attributable to poorly justified exclusion criteria, or implicit, inaccessible study documents, interventions, research measures. Meanwhile, experience poorer health, greater incidence chronic conditions, and higher care expenditure than without disabilities. We outline our approach "accessible design"-research accessible inclusive describe a model that includes 3 tiers:...
Eliminating cancer-related disparities is a global public health priority. Approximately 40% of cancer survivors experience long-term effects which can lead to activity limitations and participation restrictions; yet discussions disability are largely absent from clinical research equity agendas. The purpose this study was explore how make sense the disabling its treatments. In qualitative study, data were collected via in-depth semi-structured interviews with breast cancer, head neck...
Latino/a cancer survivors (LCSs) and their family caregivers (FCs) experience barriers to participation. The occupational therapy literature centered on Latinos affected by is limited, including the examination of cultural values such as familismo. To explore impact familismo LCSs FCs during treatment survivorship from perspectives several stakeholders. Qualitative, cross-sectional study using semistructured interviews with various stakeholders recruited via purposive sampling. A detailed...
Although the Six-Minute Walk Test (6MWT), as recommended by American Thoracic Society, is widely used a measure of functional endurance, it may not be applicable in some settings and populations. We sought to examine, therefore, performance over first 2 minutes full 6 6MWT. Specifically, we investigated completion rates, distances walked, test-retest reliability, relationship between walked 6MWT.Community-dwelling children adults age 3-85 years (n = 337) were asked walk back forth on 15.24...
There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD significantly underrepresented health research. Even when researchers purposively seek to include studies, challenges emerge related recruitment and retention, leading inadequate representation surface understandings of this population. This turn contributes perpetuation implicit explicit disparities that already experienced by Grounded within a qualitative, community-based participatory research...
Background/Objective: To report an evidence-based review of participation instruments that have been used in spinal cord injury (SCI) clinical practice and research.Methods: Rehabilitation literature was searched for by at least 2 independent SCI researchers since 2000. Each instrument reviewed committee members. One person the scale documented level use psychometric properties. The second member verified values made suggestions changes.Results: Three met criteria: Craig Handicap Assessment...
To examine how participation is conceptualized by different rehabilitation stakeholder groups.Qualitative case study design.A total of 148 participants from groups in 2 US states and the District Columbia. Stakeholders included people with disabilities (n = 63), caregivers 28), professionals 32), funders 10), policy makers 15).Eighteen focus were conducted to what means, it conceptualized, barriers realizing full participation. Focus transcribed verbatim; transcripts analyzed using a...
Tester strength can limit the forces that be measured using a hand-held dynamometer (HHD). A solution is to use belt stabilization in conjunction with an HHD. The purposes of this study were determine if portable belt-stabilized HHD (BSHHD) setup was capable measuring broad range isometric knee extension torques and whether BSHHD system comparable those obtained Biodex isokinetic dynamometer. Participants 113 women 71 men (14-85 years age) community-dwelling enrollees National Institutes...