A5054668906- Health Policy Implementation Science
- Global Cancer Incidence and Screening
- Chronic Disease Management Strategies
- Palliative Care and End-of-Life Issues
- Health Systems, Economic Evaluations, Quality of Life
- Patient-Provider Communication in Healthcare
- Mobile Health and mHealth Applications
- Ethics in Clinical Research
- Primary Care and Health Outcomes
- Medication Adherence and Compliance
- Cancer survivorship and care
- Health and Medical Research Impacts
- Food Security and Health in Diverse Populations
- Electronic Health Records Systems
- Childhood Cancer Survivors' Quality of Life
- BRCA gene mutations in cancer
- Emergency and Acute Care Studies
- Chronic Obstructive Pulmonary Disease (COPD) Research
- Interprofessional Education and Collaboration
- Diabetes Management and Education
- Obesity, Physical Activity, Diet
- Cancer Risks and Factors
- Healthcare professionals’ stress and burnout
- LGBTQ Health, Identity, and Policy
- Digital Imaging in Medicine
Mayo Clinic in Arizona
2016-2025
WinnMed
2013-2024
Mayo Clinic in Florida
2013-2024
Mayo Clinic
2014-2024
Robert Morris University Illinois
2023
American Society of Clinical Oncology
2023
American Cancer Society
2023
Office of Diversity and Inclusion
2023
HealthPartners
2014
Minnesota Department of Health
2014
Burden of treatment refers to the workload health care as well its impact on patient functioning and well-being. We set out build a conceptual framework issues descriptive burden from perspective complex patient, first step in development new patient-reported measure.We conducted semistructured interviews with patients seeking medication therapy management services at large, academic medical center. All had regimen self-care (including polypharmacy), were coping one or more chronic...
This commentary is in many ways a follow-on to, and elaboration of, the published July issue of this journal.1 The previous introduced three characteristics that contribute to uniqueness learning health systems (LHSs) as an approach improvement. there were: "(1) multi-stakeholder community focused on (targeted) problem collaboratively executes entire cycle; (2) embracing, at outset, uncertainty how improve against by undertaking rigorous discovery process before any implementation takes...
Purpose: Patients with multiple chronic conditions (multimorbidity) often require ongoing treatment and complex self-care. This workload its impact on patient functioning well-being are, together, known as burden. study reports factors that patients multimorbidity draw to lessen perceptions of methods: Interviews (n=50) focus groups (n=4 groups, five eight participants per group) were conducted receiving care in a large academic medical center or an urban safety-net hospital. Interview data...
Purpose: The workload of health care and its impact on patient functioning well-being is known as treatment burden. purpose this study was to finalize a conceptual framework burden that will be used inform new patient-reported measure construct. Patients methods: Semi-structured interviews were conducted with 50 chronically ill patients from large academic medical center (n=32) an urban safety-net hospital (n=18). We coded themes identifying burden, the harmonized through discussion between...
Immigrants and refugees to the United States exhibit lower dietary quality than general population, but reasons for this disparity are poorly understood. In study, we describe meanings of food, health wellbeing through reported preferences, beliefs, practices adults adolescents from four immigrant refugee communities in Midwestern States. Using a community based participatory research approach, conducted qualitative study with 16 audio-recorded focus groups who self-identified as Mexican,...
The stigma of obesity is a common and overt social bias. Negative attitudes derogatory humor about overweight/obese individuals are commonplace among health care providers medical students. As such, school may be particularly threatening for students who overweight or obese. purpose our study was to assess the frequency that obese/overweight report being stigmatized, degree which internalized, impact these factors on their well-being. We performed cross-sectional analysis data from Medical...
Having multiple chronic conditions (MCCs) can lead to appreciable treatment and self-management burden. Healthcare provider relational quality (HPRQ) - the communicative interpersonal skill of may mitigate burden promote self-management. The objectives this study were 1) identify associations between HPRQ, burden, psychosocial outcomes in adults with MCCs, 2) determine if certain indicators HPRQ are more strongly associated than others these outcomes.This is a cross-sectional survey 332...
Immigrants and refugees are affected by diabetes-related health disparities, with higher rates of incident diabetes sub-optimal outcomes. Digital storytelling interventions for chronic diseases, such as may be especially powerful among immigrants because often limited English proficiency minimizes access to affects the applicability existing education opportunities. Community-based participatory research (CBPR), whereby community members academia partner in an equitable relationship through...
<h3>BACKGROUND:</h3> Pulmonary rehabilitation is an effective treatment for patients with COPD, but patient uptake and adherence to the current offering of center-based pulmonary modest due transportation, access, poverty, frailty, even more so in context COVID pandemic. Home-based options have been proposed were found noninferior rehabilitation; however, there a lack home-based programs, understanding needed. We aimed test feasibility, uptake, program COPD health coaching. <h3>METHODS:</h3>...
Background: Latinas with mammographic dense breasts are at increased risk of breast cancer. This randomized controlled trial tests the effectiveness three density (BD) educational approaches on adherence to subsequent mammography screening among receiving care a Federally Qualified Health Center (FQHC). Measure(s): Adherence was ascertained using electronic health record and survey responses. Kaplan-Meier estimates time mammogram were used obtain rates 1- 2-years post baseline mammogram. Cox...
Methods of integrating qualitative data across diverse studies and within multi-site research consortia are less developed than those for quantitative data. The development ofsuchmethods is essential to support the exchange needed cross-study inquiry given increasing emphasis on sharing open science. We describe methods integration National Cancer Institute's Improving Management symPtoms During And following Treatment (IMPACT) Consortium funded by MoonshotSM. Data collection analysis were...
Background: Artificial Intelligence (AI)-enabled devices are increasingly used in healthcare. However, there has been limited research on patients’ informational preferences, including which elements of AI device labeling enhance patient understanding, trust, and acceptance. Clear effective patient-facing communication is essential to address concerns support informed decision-making regarding AI-enabled care.Objective: Using simulated labels a cardiovascular context, we evaluated three...
Objectives/Goals: The Standards for Reporting Implementation Studies (StaRI) are the Enhancing Quality and Transparency of Health Research (EQUATOR) Network 27-item checklist Science. This study quantifies StaRI adherence among self-defined Science studies in published Learning Systems (LHS) research. Methods/Study Population: A medical librarian-designed a search strategy identified original research one top 20 journals between 2017 2021. Inclusion criteria included or protocols describing...
Jeff Sloan and colleagues describe the development of Patient-Reported Outcomes Quality Life (PROQOL) instrument, which captures stores patient-recorded outcomes in medical record for patients with diabetes. Please see later article Editors' Summary