A5067753813- Systemic Sclerosis and Related Diseases
- Body Image and Dysmorphia Studies
- COVID-19 and healthcare impacts
- Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis
- Inflammatory Myopathies and Dermatomyositis
- Diagnosis and Treatment of Venous Diseases
- Delphi Technique in Research
- Telemedicine and Telehealth Implementation
- Rheumatoid Arthritis Research and Therapies
- Cystic Fibrosis Research Advances
- Nail Diseases and Treatments
- Cancer survivorship and care
- Biomedical Ethics and Regulation
- Cutaneous lymphoproliferative disorders research
- Behavioral Health and Interventions
- Genetic Syndromes and Imprinting
- Reliability and Agreement in Measurement
- Cardiac Health and Mental Health
- Attachment and Relationship Dynamics
- Powdery Mildew Fungal Diseases
- Multiple Sclerosis Research Studies
- Mast cells and histamine
Jewish General Hospital
2019-2023
McGill University
2019-2023
York University
2023
Contagious disease outbreaks and related restrictions can lead to negative psychological outcomes, particularly in vulnerable populations at risk due pre-existing medical conditions. No randomised controlled trials (RCTs) have tested interventions reduce mental health consequences of contagious outbreaks. The primary objective the Scleroderma Patient-centered Intervention Network COVID-19 Home-isolation Activities Together (SPIN-CHAT) Trial is evaluate effect a videoconference-based program...
Purpose People with systemic sclerosis (scleroderma) face difficulties being physically active. This study identified physical activity barriers and facilitators experienced by people scleroderma.Materials methods We conducted nominal group technique sessions scleroderma patients who shared barriers, barrier-specific facilitators, general facilitators. Participants rated importance of likelihood using from 0 to 10, indicated whether they had tried Barriers across were merged eliminate...
Objectives The Scleroderma Patient-centered Intervention Network—Scleroderma Support group Leader EDucation (SPIN-SSLED) Programme was designed to improve confidence and self-efficacy reduce burden for support leaders. were (1) evaluate feasibility of programme delivery, including required resources, management issues scientific aspects (eg, performance outcome measures) (2) assess user satisfaction identify any modifications needed content or delivery based on participant feedback. Design...
To support physical activity among people with systemic sclerosis (SSc [scleroderma]), we sought to determine the prevalence and importance of barriers likelihood using possible facilitators.We invited 1,707 participants from an international SSc cohort rate 20 (14 medical, 4 social or personal, 1 lifestyle, environmental) 91 corresponding barrier-specific 12 general facilitators.Among 721 respondents, 13 were experienced by ≥25% participants, including 2 (fatigue Raynaud's phenomenon) rated...
Objective Where people with systemic sclerosis (SSc) (or scleroderma) obtain diet and nutrition information to manage their disease is not known. Objectives were identify 1 ) resources used by SSc for 2 perceived advantages disadvantages of resources. Methods We conducted nominal group technique (NGT) sessions in which reported they have accessing using Participants indicated whether had tried each resource. They rated helpfulness importance possible disadvantages. Items elicited across...
Objective: People with chronic medical conditions are at risk of complications and mortality during the COVID-19 outbreak. Understanding mental health implications, including effects isolation movement restrictions, should consider specific fears level fear experienced. No questionnaires or scales, however, have been developed for this purpose. We sought input from people living autoimmune disease systemic sclerosis (SSc; scleroderma) on items inclusion in a preliminary version Fears...
Abstract Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. Functional impairment of hands common. The Scleroderma Patient-centered Intervention Network (SPIN)-HAND trial compared effects offering access to an online self-guided hand exercise program usual care on function (primary) and functional health outcomes (secondary) in people with SSc at least mild limitations. Methods pragmatic, two-arm, parallel-group cohort multiple randomized...
Purpose Explore trial participants’ and research team members’ perceptions of the impact videoconference-based, supportive care program (SPIN-CHAT Program) during early COVID-19 for individuals with systemic sclerosis (SSc).Methods Data were collected cross-sectionally. A social constructivist paradigm was adopted, one-on-one semi-structured interviews conducted SPIN-CHAT Trial participants members. hybrid inductive-deductive approach reflexive thematic analysis used.Results Of 40 28 members...
Abstract Young women with breast cancer (BC) and their partners generally face greater psychosocial difficulties relative to older couples, justifying the need for targeted support this group. Toward end, we examined how couples facing BC responded participating in a self‐in‐relationship observation exercise intended improve relationship. Participants ( N = 60) were 30 male who, over course of week, observed textually described/reported “turning‐towards‐and‐away‐behaviors” deemed contribute...
The SPIN-CHAT Program was designed to support mental health among individuals with systemic sclerosis (SSc; commonly known as scleroderma) and at least mild anxiety symptoms the onset of COVID-19. program formally evaluated in Trial. Little is about trial acceptability, factors impacting implementation from perspectives research team members participants. Thus, propose this follow-up study explore members' participants' experiences identify acceptability successful implementation. Data were...
ABSTRACT Background No studies have reported comparisons of mental health symptoms prior to and during COVID-19 in vulnerable populations. Objectives were compare anxiety depression among people with a pre-existing medical condition, the autoimmune disease systemic sclerosis (SSc; scleroderma), including continuous change scores, proportion ≥ 1 minimal clinically important difference (MCID), factors associated changes, country. Methods Pre-COVID-19 Scleroderma Patient-centered Intervention...
Abstract Purpose To identify physical activity barriers and facilitators experienced by people with systemic sclerosis (SSc; scleroderma). Materials Methods We conducted nominal group technique sessions SSc patients who shared to activities, barrier-specific facilitators, general facilitators. Participants rated importance of likelihood using from 0-10, indicated whether they had tried Barriers across were subsequently merged eliminate overlap; edited based on feedback investigators, patient...