A5000183547- Multiple Myeloma Research and Treatments
- Cancer Treatment and Pharmacology
- Cancer survivorship and care
- Palliative Care and End-of-Life Issues
- Spondyloarthritis Studies and Treatments
- Psychosomatic Disorders and Their Treatments
- Autoimmune and Inflammatory Disorders Research
- Fibromyalgia and Chronic Fatigue Syndrome Research
- Neurological disorders and treatments
- Genetic Neurodegenerative Diseases
- Childhood Cancer Survivors' Quality of Life
- Long-Term Effects of COVID-19
- Dermatologic Treatments and Research
- Neuroscience and Neural Engineering
- Patient Dignity and Privacy
- Cancer Mechanisms and Therapy
- Family and Patient Care in Intensive Care Units
- Cancer-related Molecular Pathways
- Psychoanalysis and Social Critique
- Systemic Sclerosis and Related Diseases
- Psoriasis: Treatment and Pathogenesis
- Family Support in Illness
- Management of metastatic bone disease
- Skin Diseases and Diabetes
- Psychiatric care and mental health services
Universitätsklinikum Würzburg
2016-2024
University of Würzburg
2016-2024
European Neuroendocrine Tumor Society
2024
Abstract Background: Patients with axial spondyloarthritis (axSpA) benefit from regular home-based exercise (HbE). In spite of recommendations, a relevant proportion German axSpA patients does not adhere to recommended HbE practices. To enhance care, we developed the novel digital therapeutic (DTx) “Axia” compliant European medical device regulation (MDR). Axia offers modern app-based solution patient educative content and further integrated features. Objective: We aimed assess Axia’s...
Abstract Li‐Fraumeni syndrome (LFS) is a rare autosomal dominant cancer predisposition associated with highly elevated lifetime risk. This and the recommended intense surveillance program represent large psychological burden on families. In order to develop targeted psychosocial interventions, we conducted needs assessment. Adults (≥18 years) LFS were included via regular hospital visits online support groups newsletters. Individuals filled out questionnaire addressing among others: fear of...
Several publications have focused on accompanying non-motor symptoms (NMS) in essential tremor (ET) patients; however, it remains unclear if NMS are an intrinsic part of the disease or secondary phenomena. We present results several neuropsychiatric tests and their impact quality life (QoL) community-dwelling patients with ET.Participants were recruited via a newspaper article about ET published local media internet. All participants completed standard tests, including those that assess QoL....
<strong>Background:</strong> Several publications have focused on accompanying non-motor symptoms (NMS) in essential tremor (ET) patients; however, it remains unclear if NMS are an intrinsic part of the disease or secondary phenomena. We present results several neuropsychiatric tests and their impact quality life (QoL) community-dwelling patients with ET. <strong>Methods:</strong> Participants were recruited via a newspaper article about ET published local media internet. All participants...
Although the vast majority of COVID-19 cases are treated in primary care, patients' experiences during home isolation have been little studied. This study aimed to explore patients with acute and identify challenges after initial adaptation German health system pandemic (after first infection wave from February June 2020).A mixed-method convergent design was used gain a holistic insight into experience. The consisted cross-sectional survey, open survey answers semi-structured telephone...
Standard echocardiography (SE) is an essential part of the routine diagnostic work-up after ischemic stroke (IS) and also serves for research purposes. However, access to SE often limited. We aimed assess feasibility accuracy point-of-care (POC) in a unit (SU) setting.IS patients were recruited on SU University Hospital Würzburg, Germany. Two team members trained POC three-month period set predefined cardiac parameters including left ventricular ejection fraction (LVEF). Diagnostic agreement...
Autologous hematopoietic stem cell transplantation (aHSCT) represents an effective treatment for systemic sclerosis (SSc), but it also can cause immunological adverse events (iAEs). Therefore, we aimed to determine the frequency of iAEs [engraftment syndrome (ES) and secondary autoimmune disorder (sAD)] identify potential risk factors their development in a retrospective analysis on 22 patients similarly transplanted due SSc. While nine (41%) suffered from ESs, seven sADs occurred six (27%)....
Abstract Purpose Multiple myeloma is a largely incurable disease. Patients suffer from the cancer, therapeutic side effects, and often psychological symptoms. Not only multiple patients but also with precursor diseases show high distress. Today, treatment option evaluations are increasingly performed in combination health-related quality of life (HRQoL) assessments. One factor that positively associated HRQoL social support. Methods Our recent study used questionnaires (EORTC QLQ-C30, EORTC...
Abstract Background Patients with axial spondyloarthritis (axSpA) benefit from regular home-based exercise (HbE). In spite of recommendations, a relevant proportion German axSpA patients does not adhere to recommended HbE practices. To enhance care, we developed the novel digital therapeutic (DTx) “Axia” compliant European medical device regulation (MDR). Axia offers modern app-based solution patient educative content and further integrated features. A first survey involved who assessed...
Bei der tumorassoziierten Fatigue handelt es sich um eine häufige Begleiterscheinung Krebserkrankung oder -therapie, die in vielen Fällen nicht erkannt und unzureichend behandelt wird, obwohl vielversprechende therapeutische Optionen zur Verfügung stehen. Dieser Beitrag soll dabei helfen, tumorassoziierte korrekt zu diagnostizieren therapieren.
Abstract Purpose To investigate the trade-off between survival outcome and quality of life (QoL) in Multiple Myeloma (MM). Methods We developed a questionnaire that asked patients amongst others, whether they would choose shortened time progression-free (PFS) favor an increased QoL Results Of 194 MM who answered this question, 81 (42%) subjects were willing to accept shorter PFS for better QoL. On other hand, 92 (47%) preferred longer at cost reduced Twenty-one (11%) indicated be undecided....