A5007884389- Family and Disability Support Research
- Childhood Cancer Survivors' Quality of Life
- Infant Development and Preterm Care
- Adolescent and Pediatric Healthcare
- Child and Adolescent Health
- Congenital Heart Disease Studies
- Cerebral Palsy and Movement Disorders
- Pediatric Pain Management Techniques
- Breastfeeding Practices and Influences
- Prenatal Substance Exposure Effects
- Healthcare innovation and challenges
- Pharmaceutical studies and practices
- Neuroscience of respiration and sleep
- Maternal Mental Health During Pregnancy and Postpartum
- Research in Social Sciences
- Family Support in Illness
- Occupational Therapy Practice and Research
- Geriatric Care and Nursing Homes
- Participatory Visual Research Methods
- Musculoskeletal pain and rehabilitation
- Primary Care and Health Outcomes
- Qualitative Research Methods and Applications
- Cardiac Arrest and Resuscitation
- Qualitative Research Methods and Ethics
- Interprofessional Education and Collaboration
Eunice Kennedy Shriver National Institute of Child Health and Human Development
2024
Research Network (United States)
2024
National Institutes of Health
2024
University of Alberta
2005-2021
Chiang Mai University
2016
Alberta Hospital Edmonton
2010-2012
In-Q-Tel
2010
University of Alberta Hospital
2010
Stollery Children's Hospital
2007
Glenrose Rehabilitation Hospital
2004
We have observed a growth in the number of qualitative studies that no guiding set philosophic assumptions form one established methodologies. This lack allegiance to an approach presents many challenges for “generic qualitative” studies, which is literature lacks debate about how do generic study well. encourage such and offer four basic requirements as point departure: noting researchers' position, distinguishing method methodology, making explicit rigor, identifying analytic lens.
Contemporary rehabilitation literature emphasises functional goals for children with disabilities and use of a collaborative goal-setting process grounded in principles family centred service delivery.To explore parents' experiences goal setting.We conducted qualitative study 11 focus groups two individual interviews 39 parents cerebral palsy living western Canada. We used an inductive, thematic analysis to identify prominent themes.The revealed five themes representing that were meaningful...
Importance The function-based eat, sleep, console (ESC) care approach substantially reduces the proportion of infants who receive pharmacologic treatment for neonatal opioid withdrawal syndrome (NOWS). This reduction has led to concerns increased postnatal exposure in treatment. However, effect ESC on hospital outcomes pharmacologically treated NOWS is currently unknown. Objective To evaluate differences and total length stay (LOS) managed with vs usual Finnegan tool. Design, Setting,...
This article describes the collaborative development of a nurse-led transition clinic within Comprehensive Epilepsy Program at Stollery Children's Hospital and University Alberta Hospital. Developed in 2005, our program has been instrumental assisting 97 teens their parents' from pediatric to adult epilepsy care. Through Adolescent Transition Clinic, we address concerns expressed by parents when shifting healthcare services, including fear unknown, change appointment location, loss...
Abstract Background Family‐centred service, functional goal setting and co‐ordination of a child's move between programmes are important concepts rehabilitation services for children with cerebral palsy identified in the literature. We examined whether these three could be objectively providing to Alberta, Canada. Methods Programme managers ( n = 37) occupational physical therapists 54) representing 59 participated individual 1‐h semi‐structured interviews. Thirty‐nine parents eleven focus...
Social support plays a key role in improving health outcomes for children with chronic conditions. Internet connections are an important component of adolescents' social networks and may overcome geographic environmental barriers those disabilities. This article focuses on the processes associated 6-month online intervention adolescents cerebral palsy or spina bifida. Specifically, purpose was to determine extent which used peer intervention, used, perceived benefits satisfaction...
Importance Infants with neonatal opioid withdrawal syndrome (NOWS) cared for the Eat, Sleep, Console (ESC) care approach receive less pharmacologic treatment and have shorter hospital stays compared to usual Finnegan Neonatal Abstinence Scoring Tool, but effects of these approaches on feeding weight are unknown. Objective To evaluate practices trajectories in infants ESC vs care. Design, Setting, Participants ESC-NOW is a cluster randomized trial NOWS born at 36 weeks’ gestation or later 26...
This descriptive qualitative study facilitates the application of family-centered care within a tertiary interdisciplinary neurodevelopmental diagnostic assessment clinic by furthering an understanding parent perceptions relevance information provision. An team completed open-ended questionnaire to describe Parents from 9 families in-depth interviews following attendance discuss received. Interviews were audiotaped, transcribed, and coded related themes. did not perceive in way professionals...
This article presents the findings of a secondary analysis data from 30 interviews with parents who are raising children chronic health conditions. Using Giddens’s structuration theory, social and institutional conditions that shape special-needs parenting examined. The include professional attitudes, categorical allocation services, lack information, poor service coordination, school access challenges, societal perceptions disability, responsibility debates, feminization family care giving,...
The delivery of paediatric rehabilitation services is complex due to the involvement different service sectors and diverse models care. Parents children with disabilities find it challenging navigate successfully through complicated systems. Cross-sectoral collaboration improve continuity care for their families viewed as ideal in public policies. purpose this research was explore how ministerial cultures, processes structures influence inter-ministerial enhancing a Western Canadian...
Children and adolescents who live with chronic conditions are rarely participants in research specifically focused on meeting their needs, nor intervention planning research. There are, however, special considerations required when conducting children adolescents. This article offers Interview Guidelines designed to ensure adolescents’ control of comfort interviewing maximize the caliber ethically co-constructed data. We developed, tested, revised these guidelines 80 aged 5 17 years: 27...
This focused ethnographic study aimed at exploring how the Thai socio- cultural context influenced perceptions and practices of families caring for infants, 3 months to 17 months, with symptomatic, acyanotic or cyanotic, congenital heart disease (CHD), prior cardiac surgery. Purposive sampling was used recruit twelve parents two family members, from eight families, who brought their infant a CHD, university hospitals in Bangkok. Data were collected through in-depth interviews, participant...
Pain is a complex symptom to assess properly and it often poorly managed in the Emergency Department. The majority of research has focused on exploring oligoanalgesia samples patients with heterogeneous injuries. occurrence homogeneous injury, such as Colles fracture, yet be explored. A retrospective chart review was conducted determine incidence adults fractures admitted two urban Departments Western Canada. Data were collected from one hundred fifty charts 5-year period (2009-2014). Age...