A5067605481- Multiple Sclerosis Research Studies
- Occupational Therapy Practice and Research
- Mental Health and Patient Involvement
- Patient-Provider Communication in Healthcare
- Health Policy Implementation Science
- Dementia and Cognitive Impairment Research
- Delphi Technique in Research
- Autoimmune and Inflammatory Disorders Research
- Geriatric Care and Nursing Homes
- Acute Lymphoblastic Leukemia research
- Healthcare Systems and Technology
- Social Media in Health Education
- Interprofessional Education and Collaboration
- Telemedicine and Telehealth Implementation
- Health Systems, Economic Evaluations, Quality of Life
- Cognitive Abilities and Testing
- Nonprofit Sector and Volunteering
- COVID-19 and Mental Health
- Healthcare Systems and Practices
- Interpreting and Communication in Healthcare
- Educational and Psychological Assessments
- Ethics in Clinical Research
- Tourism, Volunteerism, and Development
- Family and Disability Support Research
- Cerebral Palsy and Movement Disorders
Ollscoil na Gaillimhe – University of Galway
2016-2025
St. James's Hospital
2023
National University of Ireland
2019-2021
Memorial University of Newfoundland
2021
University of British Columbia
2015-2019
Nottingham University Hospitals NHS Trust
2015
North East London NHS Foundation Trust
2014
MRC Cognition and Brain Sciences Unit
2014
Goodmayes Hospital
2014
We aimed to estimate the clinical effectiveness of Community Occupational Therapy for people with dementia and family carers-UK version (Community in Dementia-UK [COTiD-UK]) relative treatment as usual (TAU). hypothesised that COTiD-UK would improve ability perform activities daily living (ADL), carers' sense competence, compared TAU.The study design was a multicentre, 2-arm, parallel-group, assessor-masked, individually randomised controlled trial (RCT) internal pilot. It conducted 15 sites...
A community-based occupational therapy intervention for people with mild to moderate dementia and their family carers (Community Occupational Therapy in Dementia (COTiD)) was found clinically cost effective the Netherlands but not Germany. This highlights need adapt implement complex interventions specific national contexts. The current trial aims evaluate United Kingdom-adapted living community (COTiD-UK) compared treatment as usual. study is a multi-centre, parallel-group, pragmatic...
Reliable remote cognitive testing could provide a safer assessment of impairment in multiple sclerosis (MS) during the COVID-19 pandemic and thereafter. Here we aimed to investigate reliability feasibility administering Brief International Cognitive Assessment for MS (BICAMS) Trail-Making Test (TMT) people with online. Between-group differences on BICAMS TMT were examined sample 68 participants. Group 1 (N = 34) was tested in-person pre-pandemic. 2 remotely. Within-group virtual...
Abstract Public and patient involvement (PPI) has been identified as an increasingly desired and, often, required component of trial methodology – leading to higher quality, more accessible relevant clinical research, alongside increased recruitment, funding success insight into research impact. However, despite the great variety frameworks checklists available for assessing PPI, most are limited with respect important features (e.g. applicable in specific contexts only, fail clarify what...
Background: The menopause transition is a significant stage of woman’s life, marking the from reproductive to postreproductive life. Occupational identity often shifts in response life transitions but this has not been explored relation menopause. Therefore, our study aims explore women’s experiences through an occupational perspective, participation and identity. Method: A descriptive qualitative design was implemented. Semistructured interviews were completed with five perimenopausal women...
In the Netherlands, Graff et al. found Community Occupational Therapy in Dementia (COTiD) demonstrated benefits to people with dementia and family carers. this study, focus groups took place carers explore how make COTiD relevant UK context.Six (three living (n = 18) three 21)) place. Participants were asked for their impressions of intervention, extent which it could meet needs, what modifications needed. Audio-recordings transcribed analysed.Three key themes emerged covering 'loss...
To develop occupational therapy's evidence base and improve its clinical outcomes, therapists must increase their research involvement. Barriers to consumption leadership are well documented, but those relating delivering interventions, less so. Yet, interventions need be researched within practice demonstrate effectiveness. This study aims understanding of challenges enablers experienced by who deliver programmes.Twenty-eight participated in the Valuing Active Life Dementia (VALID)...
Cognitive impairments are common in MS and affect personal, social, occupational functioning. There is a developing body of evidence highlighting the role cognitive rehabilitation, but there still no for validated holistic approach. The aim this study was to assess effectiveness Occupation-Based Programme People with Multiple Sclerosis (COB-MS) improving daily life impairment. This used an experimental pretest/posttest design eight-week follow-up. Participants were recruited from networks...
Despite its importance, recruiting a sufficient sample size for randomised controlled trials (RCTs) can pose significant challenge, which has real-world impact on reliability of evidence, trial completion and ultimately, patient care. Technology potential to enhance the recruitment process, but there is lack evidence regarding current use effectiveness. Consistent with findings from PRioRiTy I study, research aims explore advantages disadvantages using technology during process RCTs.
Introduction A national survey was conducted with United Kingdom (UK) occupational therapists to scope therapy service provision for people dementia and their family carers in the community. Method This an online questionnaire topics on therapists’ roles, provision, referral, assistive technology assessment tools. Recruitment through direct invitation, promotion via networks, websites newsletters. Results total of 197 responded. Occupational referrals most commonly came from...
Cognitive difficulties have been reported to the greatest effect on function and quality of life in people with multiple sclerosis, affecting 50-60% people. To date, few interventions developed treat cognitive issues sclerosis. Here we report a Occupation-Based programme (COB-MS) for Multiple Sclerosis an evidence-based intervention address everyday problems encountered due difficulties. The aim this research was explore views sclerosis occupational therapists its potential implementation practice.
Abstract Background Cognitive difficulties experienced by people with multiple sclerosis (MS) impact their quality of life and daily functioning, from childcare work, to social self-care activities. Despite the high prevalence cognitive seen in MS, there is a lack developed programmes that target cognition, while also supporting patients helping them function well everyday life. The Occupation-Based programme for MS (COB-MS) was as holistic, individualised rehabilitation intervention. It...
Abstract Background Cognitive difficulties experienced by people with multiple sclerosis (MS) impact on quality of life and daily functioning, from childcare work to social self-care activities. The Occupation-Based programme for MS (COB-MS) was developed as a holistic, individualised cognitive rehabilitation intervention address the wide-ranging symptoms functional that present in MS, including ability maintain employment, activities, home management self-care. aim research is evaluate...
Background: Cognitive rehabilitation research in multiple sclerosis is ever-developing, but the impact of cognitive difficulties, seen 40% to 80% people, on daily occupations not well known. The aim this study explore needs people with MS who have self-reported deficits.
The current study-within-a-trial explored individuals’ decisions to decline participation in research trialling a chronic illness-focused therapy (i.e. multiple sclerosis). Four themes were identified from seven semi-structured interviews with decliners and confirmed by the host trial’s Patient & Public Involvement (PPI) panel: acknowledgement of value research; ‘fit’ study; misinterpretation participant information; ‘ignorance is bliss’ – discussed light theory research. This extends on...
The COVID-19 pandemic has likely had a negative impact on rehabilitation and quality of life (QoL) research in multiple sclerosis (MS).We explored perceived barriers to among 87 researchers, representing 18 countries, both prior since COVID-19.A Wilcoxon signed-rank test found that significantly more researchers reported experiencing the onset compared pre-COVID-19 (p < .001), with 78% respondents reporting at least some COVID-19. most commonly-cited related participant access (n = 38)...
<ns3:p><ns3:bold>Background:</ns3:bold> This protocol describes a double-blind, randomised non-inferiority study-within-a-trial (SWAT), comparing the effects of patient-designed-and-informed participant information sheet with standard, researcher-designed on recruitment, retention, decision certainty, understanding and likeability. The SWAT is part larger trial that aims to evaluate feasibility preliminary efficacy cognitive occupation-based programme for people MS (COB-MS) daily functioning...
Recent reports suggest that intensive, progressive training on working memory tasks can lead to generalized cognitive gains.A patient, following hypoxic brain damage, showed significant difficulties in and time-perception. This study examined the impact specificity of any benefits resulting from automated (AWMT) comparison with effects an equivalent programme emphasized novel problem-solving (APST) which served as active control. Following initial assessment, patient trained for 4 weeks (20...
A recent survey of 109 healthcare professionals explored how UK typically assess and treat multiple sclerosis (MS)-related cognitive impairment. Little is currently known about what constitutes usual care for impairment psychosocial people with MS in Ireland.The aim the current research was to (HCPs) who work MS, understand assessment management cognition Republic Ireland.A cross-sectional design used. Data were collected online through Microsoft forms postal responses. The original...