A5039687996- Palliative Care and End-of-Life Issues
- Grief, Bereavement, and Mental Health
- Family Support in Illness
- BRCA gene mutations in cancer
- Patient-Provider Communication in Healthcare
- Migration, Health and Trauma
- Childhood Cancer Survivors' Quality of Life
- Cancer survivorship and care
- Patient Dignity and Privacy
- Global Cancer Incidence and Screening
- Family and Patient Care in Intensive Care Units
- Glioma Diagnosis and Treatment
- Homelessness and Social Issues
- Geriatric Care and Nursing Homes
- Cancer-related cognitive impairment studies
- Intensive Care Unit Cognitive Disorders
- Healthcare Decision-Making and Restraints
- Dementia and Cognitive Impairment Research
- Obesity, Physical Activity, Diet
- Innovations in Medical Education
- Urban Transport and Accessibility
- Ethics and Legal Issues in Pediatric Healthcare
- Prenatal Screening and Diagnostics
- Empathy and Medical Education
- Nutrition, Genetics, and Disease
Calvary Hospital
2016-2025
University of Technology Sydney
2019-2025
The University of Notre Dame Australia
2015-2024
St Vincent's Hospital Sydney
2014-2018
Curtin University
2007-2015
University of Notre Dame
2014-2015
St Vincent's Health
2014-2015
UNSW Sydney
2014-2015
Sir Charles Gairdner Hospital
2015
The Kids Research Institute Australia
2015
To identify preferences for the process of prognostic discussion among patients with incurable metastatic cancer and variables associated those preferences.One hundred twenty-six (58%) 218 invited onto study participated. Eligible were consecutive 30 oncologists, who diagnosed within 6 weeks to months before recruitment, over 18 years age, without known mental illness. Patients completed a postal survey measuring patient manner delivery information, including how doctors might instill...
Purpose To identify preferences for and predictors of prognostic information among patients with incurable metastatic cancer. Patients Methods One hundred twenty-six cancer seeing 30 oncologists at 12 outpatient clinics in New South Wales, Australia, participated the study. were diagnosed disease within 6 weeks to months recruitment. completed a survey eliciting their information, including type, quantity, mode, timing presentation; anxiety depression levels; involvement preferences. Results...
Abstract Mendelian-like inheritance of germline DNA methylation in cancer susceptibility genes has been previously reported. We aimed to scan the genome for heritable marks associated with breast by studying 25 Australian multiple-case families. Here we report genome-wide measured 210 peripheral blood samples provided family members using Infinium HumanMethylation450. develop and apply a new statistical method identify based on complex segregation analysis. estimate carrier probabilities...
This longitudinal study aimed to document (i) the information-giving and patient-communication styles of clinical geneticists genetic counsellors (consultants) in familial breast cancer clinics (ii) assess effect these on women's knowledge, whether their expectations were met, satisfaction, risk perception psychological status. A total 158 women from high-risk families completed self-report questionnaires at 2 weeks preconsultation 4 postconsultation. The consultations audiotaped,...
Patients diagnosed with high-grade gliomas have a poor prognosis and limited life expectancy, often experience rapid decline in function. Caring for patient glioma is particularly stressful because caregivers are faced not only cancer-related caregiving issues, but also issues relating to caring someone cognitive impairment. This study aimed articulate the experiences of family people describe their information support needs. A grounded theory method was adopted. Twenty-one were interviewed...
HALKETT G.K.B., KRISTJANSON L.J., LOBB E., O'DRISCOLL C., TAYLOR M. & SPRY N. (2010) European Journal of Cancer CareMeeting breast cancer patients' information needs during radiotherapy: what can we do to improve the and support that is currently provided? Previous research has reported patients require specific relating radiotherapy; however, these studies fail describe over time. The aims this study were determine who are receiving radiotherapy identify when prefer receive information....
High-grade glioma (HGG) is a rapidly progressing and debilitating disease. Family carers take on multiple responsibilities experience high levels of distress. We aimed to deliver nurse-led intervention (Care-IS) improve their preparedness care reduce distress.We conducted randomised controlled trial (ACTRN:12612001147875). Carers HGG patients were recruited during patients' combined chemoradiation treatment. The complex comprised four components: (1) initial telephone assessment carer unmet...
To determine the degree to which women with early breast cancer understand prognostic information communicated by clinicians after diagnosis, and their preferences for how this is presented.Cross-sectional survey conducted within two months of using a self-administered written questionnaire.One hundred attending five Sydney teaching hospitals one country hospital, who were diagnosed stage between January December 1997.The 100 respondents represented 70% 143 originally approached participate....
Abstract Introduction : Radiotherapy is a common treatment for breast cancer. However, previous studies have shown that women who present radiotherapy fear its use and associated side effects. The aims of this study were to develop further understanding cancer patients' fears radiotherapy, ascertain how patients deal with these determine the best time in planning trajectory health professionals address concerns. Methods Semi‐structured interviews conducted early at four points during their...
Telegenetics offers an alternative model of delivering genetic counseling to rural and outreach areas; however there is a dearth qualitative research into the patient's experience. Twelve women who had received telemedicine for hereditary breast and/or ovarian cancer (HBOC) within previous 12 months participated in semi-structured telephone interview. The interview explored women's experience with telegenetics, satisfaction, perceived advantages disadvantages quality interaction their...
Background: Ethnic minority patients have unique challenges in accessing health services. These include language difficulties, unfamiliarity with the system, lower rates of cancer screening and survival, higher reported side effects from treatment poorer quality life. Little is known about this patient group when transitioning to palliative care. Aim: To elicit experiences care professionals providing for culturally linguistically diverse backgrounds which differ mainstream Australian...