Helen Terry

ORCID: 0000-0002-8920-5752
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About
Contact & Profiles
Research Areas
  • Microscopic Colitis
  • Inflammatory Bowel Disease
  • Health Systems, Economic Evaluations, Quality of Life
  • Fibromyalgia and Chronic Fatigue Syndrome Research
  • Adolescent and Pediatric Healthcare
  • Gastrointestinal motility and disorders
  • Eosinophilic Esophagitis
  • Chronic Disease Management Strategies
  • Diverticular Disease and Complications
  • Childhood Cancer Survivors' Quality of Life
  • Autoimmune and Inflammatory Disorders
  • Healthcare Systems and Reforms
  • Pregnancy and Medication Impact
  • Family and Patient Care in Intensive Care Units
  • Personality Disorders and Psychopathology
  • Palliative Care and End-of-Life Issues
  • Biomedical Ethics and Regulation
  • Global Healthcare and Medical Tourism
  • Celiac Disease Research and Management
  • Healthcare Systems and Technology
  • Therapeutic Uses of Natural Elements
  • Nutrition and Health in Aging
  • Healthcare Systems and Public Health
  • Infectious Disease Case Reports and Treatments
  • Delphi Technique in Research

Crohn's and Colitis UK
2012-2022

London North West Healthcare NHS Trust
2021

University of South Florida
2014

KU Leuven
2008

Agaplesion Markus Hospital
2008

We examined the internal and external validity of Narcissistic Personality Inventory (NPI). Study 1 explored structure NPI responses 1,018 subjects. Using principal-components analysis, we analyzed tetrachoric correlations among item found evidence for a general construct narcissism as well seven first-order components, identified Authority, Exhibitionism, Superiority, Vanity, Exploitativeness, Entitlement, Self-Sufficiency. 2 NPI's with respect to variety indexes derived from observational...

10.1037//0022-3514.54.5.890 article EN Journal of Personality and Social Psychology 1988-01-01

Background and aims: Fatigue is one of the main symptoms inflammatory bowel disease (IBD) frequently reported by people in both active quiescent disease. Many different fatigue assessment scales have been used to measure fatigue, but none has developed or tested IBD. This study aimed develop a scale specific needs experiences with

10.1016/j.crohns.2014.04.013 article EN Journal of Crohn s and Colitis 2014-05-22

Abstract Aims To explore fatigue, the impact it has on daily life and strategies used to ameliorate symptom, as described by people with inflammatory bowel disease. Background Fatigue is most troublesome symptom during remission of affects people's functioning, impacting quality life. There limited understanding nature ways fatigue in disease experienced managed everyday adult Design An epistemological interpretive approach understand participants' self‐reported experiences disease‐related...

10.1111/jan.12060 article EN Journal of Advanced Nursing 2012-12-06

Abstract Aim There is a requirement of an expansive and up to date review surgical management inflammatory bowel disease ( IBD ) that can dovetail with the medical guidelines produced by British Society Gastroenterology. Methods Surgeons who are members ACPGBI recognised interest in were invited contribute various sections guidelines. They directed produce procedure based document using literature searches systematic, comprehensible, transparent reproducible. Levels evidence graded. An...

10.1111/codi.14448 article EN cc-by Colorectal Disease 2018-12-01

Fatigue is one of the top complaints people with inflammatory bowel disease (IBD); however this often not addressed in clinical consultations. This study aimed to gain an understanding healthcare practitioners' (HCPs) perception IBD fatigue as experienced by IBD. Descriptive phenomenology was conducted 20 HCPs who work In-depth semi-structured interviews were audio recorded and transcribed verbatim. Colazzi's framework used analyse data. Three themes several sub-themes identified. The main...

10.1016/j.crohns.2014.01.004 article EN Journal of Crohn s and Colitis 2014-02-02

Background Fatigue is commonly reported by patients with inflammatory bowel disease (IBD), both in quiescent and active disease. Few fatigue scales have been tested IBD. Aim To assess three assessment IBD to determine correlates of fatigue. Methods Potential participants (n = 2131) were randomly selected from an organisation's members' database; 605 volunteered posted scales: Inflammatory Bowel Disease scale, Multidimensional Inventory Assessment scale questionnaires assessing anxiety,...

10.1111/apt.13255 article EN Alimentary Pharmacology & Therapeutics 2015-05-19

Despite being in clinical remission, many people with inflammatory bowel disease (IBD) live fatigue, chronic abdominal pain and urgency or incontinence that limit their quality of life. We aim to test the effectiveness an online self-management programme (BOOST), developed using cognitive behavioural principles a theoretically informed logic model, delivered facilitator support.In IBD who report symptoms express desire for intervention, does facilitator-supported tailored (to patient needs)...

10.1186/s13063-021-05466-4 article EN cc-by Trials 2021-08-03

Ulcerative colitis (UC) is an inflammatory bowel disease with increasing prevalence worldwide. Current treatment strategies place considerable economic and humanistic burdens on patients. The aim of this study was to determine the socioeconomic burden UC in adult patients European countries a real-world setting.In retrospective, cross-sectional observational pan-European study, moderate or severe were assigned ARM 1 who had but achieved mild remission status 12 months before index date (or...

10.1186/s12876-021-02028-5 article EN cc-by BMC Gastroenterology 2021-12-01

Inflammatory bowel disease, comprising Crohn’s disease and ulcerative colitis, is a life-long currently incurable illness. It causes bouts of acute intestinal inflammation, in an unpredictable relapsing-remitting course, with bloody diarrhoea extreme urgency to access toilet. Faecal incontinence devastating social hygiene problem, impacting heavily on quality life ability work socialise. affects 2–10 % adults the general population. People inflammatory have high risk up 74 affected. No...

10.1186/s13063-015-0962-0 article EN cc-by Trials 2015-10-06

10.12968/gasn.2011.9.5.6 article EN Gastrointestinal Nursing 2011-06-01

Fatigue in inflammatory bowel disease (IBD) has been reported to be a major issue terms of its understanding, assessment, and management, for both patients clinicians. This paper summarises the results three separate but interlinked studies reporting on: health-care practitioners' perceptions fatigue IBD patients, an patient self-assessment scale, checklist assess possible reversible factors contributing fatigue. Health-care practitioners lack understanding need more information education...

10.12968/gasn.2014.12.8.13 article EN Gastrointestinal Nursing 2014-10-02

Background:Infliximab is an anti-tumour necrosis factor-α chimeric monoclonal antibody that established treatment for Crohn's disease.Reactions during or within 2 hours of infusions are defined as infusion reactions.Thus, the recommended administration a 2-hour followed by monitoring practised

10.1093/ecco-jcc/jjw019.650 article EN Journal of Crohn s and Colitis 2016-03-01

The purpose of this article is to describe the Doctoral Student Leadership Institute, an initiative developed hone leadership skills doctoral students from a wide range disciplines. components Institute and preliminary assessment measures with findings are discussed. We particularly were pleased outcomes Fellows through examination their assessments (especially portfolios), evaluation course, success community service project. hope will inspire other institutions be forward-thinking in how...

10.12806/v13/i1/i2 article EN Journal of Leadership Education 2014-01-15

<h3>Introduction</h3> Fatigue is frequently reported by patients with Inflammatory Bowel Disease (IBD), despite disease remission. However, no previous intervention trial has studied this symptom. We tested the effects on fatigue in IBD from (i) individual advice to increase physical activity (PA) and/or (ii) supplementation omega-3 fatty acids. <h3>Method</h3> Design:a randomised controlled 2 × factorial study compared change-from-baseline scores and control groups. Primary outcome: change...

10.1136/gutjnl-2015-309861.179 article EN Gut 2015-06-01

der and axillary region continuous without scars or stumps.Palpation showed the clavicle scapula in normal position on both sides, no sign of humérus arms could be made out.Complete View Monster.Abdominal examination nothing abnormal inspection palpation.From pelvic each side extended a stump rudimentary lower limb, about two inches long.On right, what is probably femur 1| long freely movable an apparently acetabulum.Articulating with end one bone, tibia, 5 inch long, fibula seems to...

10.1056/nejm191207041670104 article EN Boston Medical and Surgical Journal 1912-07-04

The aims of this study were to test a noninvasive self-management intervention supported by specialist nurses versus alone in patients with inflammatory bowel disease (IBD) experiencing fecal incontinence and conduct qualitative evaluation the trial.Multicenter, parallel-group, open-label, mixed-methods randomized controlled trial (RCT).The sample comprised from preceding case-finding who reported met requirements; RCT was delivered via IBD outpatient clinics 6 hospitals (5 major UK cities,...

10.1097/won.0000000000000979 article EN Journal of Wound Ostomy and Continence Nursing 2023-05-01

Background: Extensive studies have documented the impacts of inflammatory bowel disease (IBD) on patient quality life, but this study addresses gap concerning IBD outcomes for family members adult patients. Aims: To explore lived experience patients and their regarding coping strategies. Methods: Semi-structured, in-depth, online interviews were held via Skype, Microsoft Teams Zoom from February to June 2020, with 12 purposively selected participants, comprising six partners. Interviews...

10.12968/gasn.2022.20.3.40 article EN Gastrointestinal Nursing 2022-04-02

<h3>Introduction</h3> Patients with inflammatory bowel disease (IBD) report fatigue in both quiescent (41%) and active (86%);<sup>1</sup>however, due to its subjective nature it is difficult assess. Many different scales exist, although most have not been tested IBD populations. Only one scale has developed specifically for people IBD.<sup>2</sup>We aimed assess validity reliability of three assessment an adult population determine factors correlated fatigue. <h3>Method</h3> A...

10.1136/gutjnl-2015-309861.976 article EN Gut 2015-06-01

<h3>Introduction</h3> The IBD-Control Questionnaire is a self-completed patient reported outcome measure developed to rapidly capture disease control from the perspective.<sup>1</sup>Eight of question items generate summary score (IBD-Control-8) ranging 0 (worst control) 16 (best control). We aimed evaluate feasibility capturing electronically (rather than on paper) and validate their measurement properties independently within setting large-scale UK experience survey. <h3>Method</h3>...

10.1136/gutjnl-2015-309861.503 article EN Gut 2015-06-01

Background: Value-based healthcare aims to achieve the best possible health outcomes for lowest cost. Key its success involves measuring that matter most patients. Currently inflammatory bowel disease (IBD), registries and clinical trials lack a unifying set of well-defined outcomes, making comparisons between populations difficult. Our goal was develop minimum Standard Set patient-centered IBD provide common language can be tracked systematically in variety settings. Methods: An...

10.1093/ecco-jcc/jjx002.366 article EN Journal of Crohn s and Colitis 2017-01-26

<h3>Introduction</h3> Patients with IBD have difficulty revealing concerns about bowel control problems to clinicians,<sup>1</sup> who do not actively ask this symptom<sup>2</sup> despite clinical guidelines recommending active-case finding in high-risk populations.<sup>3</sup> With no available evidence advise clinicians on how ask, we aimed determine the results of face-to-face or self-reported screening identify faecal incontinence (FI) patients. We also asked patients' desire for...

10.1136/gutjnl-2018-bsgabstracts.126 article EN 2018-06-01
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