A5080357195- Ethics in Clinical Research
- Ethics in medical practice
- Biomedical Ethics and Regulation
- Public Health Policies and Education
- Cancer Genomics and Diagnostics
- BRCA gene mutations in cancer
- Genomics and Rare Diseases
- Health Policy Implementation Science
- Health Systems, Economic Evaluations, Quality of Life
- Nutrition, Genetics, and Disease
- Neuroethics, Human Enhancement, Biomedical Innovations
- Patient-Provider Communication in Healthcare
- Genetics, Bioinformatics, and Biomedical Research
- Ethics and bioethics in healthcare
- Opioid Use Disorder Treatment
- Global Cancer Incidence and Screening
- Food Security and Health in Diverse Populations
- Biomedical and Engineering Education
- CRISPR and Genetic Engineering
- Demographic Trends and Gender Preferences
- Social Media in Health Education
- Reproductive Health and Technologies
- Racial and Ethnic Identity Research
- Data Quality and Management
- Psychology of Moral and Emotional Judgment
Tuskegee University
2016-2025
The
Background Although general trends in cancer outcomes are improving, racial/ethnic disparities patient continue to widen, suggesting disparity‐related shortcomings research designs. Methods Using convenience sampling, a total of 24 data sources, representing several designs and 5 high‐burden tumor types, were included for analyses. The percentages races/ethnicities across each design/tumor type compared with those the 2017 US Census data. authors used framework based on Belmont principles...
The Tuskegee University National Center for Bioethics in Research and Health Care was established 1999 partial response to the Presidential Apology United States Public Service's Study of Untreated Syphilis Negro Male conducted Macon County, Alabama, from 1932 1972. Center's mission promoting equity justice health care African Americans other underserved populations employs an integrative bioethics approach informed by moral vision. Etymological historical analyses are used delineate meaning...
Paying Tribute to Henrietta Lacks at Tuskegee University and The Virginia Commission, Richmond, Stephen Olufemi Sodeke, PhD, MA (bio) Lauren R. Powell, MPA Laypeople may be unfamiliar with Lacks, but most scientists in the fields of human biology medicine recognize have encountered her "HeLa" cell line laboratories biomedical research.1,2,3 Her story illustrates how intentions name scientific medical advancement can unanticipated consequences such as privacy violations consent breaches.4 In...
Abstract Importance The All of Us Research Program hypothesizes that accruing one million or more diverse participants engaged in a longitudinal research cohort will advance precision medicine and ultimately improve human health. Launched nationally 2018, to date has recruited than 345,000 participants. plans open beta access researchers May 2020. Objective To demonstrate the quality, utility, diversity Program’s initial data release launch cloud-based analysis platform, Researcher...
Lack of diversity among genomic research participants results in disparities benefits from genetic testing. To address this, the Alabama Genomic Health Initiative employed community engagement strategies to recruit diverse populations where they lived. In this paper, we describe our techniques and recruitment strategies, which resulted significant improvement representation African American participants. While participation has not reached as a percentage Alabama's overall population...
African Americans, other minorities and underserved populations are consistently under- represented in clinical trials. Such underrepresentation results a gap the evidence base, health disparities. The ABC Cardiovascular Implementation Study (CVIS) is comprehensive prospective cohort registry that integrates social determinants of health. CVIS uses real world practice data to address critical gaps care by facilitating robust participation Americans will include diverse patients from...
The tripartite partnership among Morehouse School of Medicine, Tuskegee University, and University Alabama at Birmingham is complex. In 2005, the three schools—with different institutional cultures, characters, resources—agreed to collaborate in efforts eliminate racial/ethnic disparities cancer burdens. Pursuing this laudable aim predictably involved some miscommunication. Bioethics Shared Resource (BSR) group foresaw such challenges monitored interactions prevent harm, noting that while...
This paper investigates the connection between local food systems, health disparities, and social justice in rural South. It begins with relationship insecurity disparities that disproportionately affect racial ethnic minority populations, non-minority women children. First, we discuss concept of within context bioethics public ethics order to explore link system as a issue. Second, define how they have historically plagued disadvantaged populations. Third, examine these structure related...
Background The scarcity of tissues from racial and ethnic minorities at biobanks poses a scientific constraint to research addressing health disparities in minority populations. Methods To address this gap, the Minority Biospecimen/Biobanking Geographic Management Program for region 3 (BMaP-3) established working infrastructure “biobanking” hub southeastern United States Puerto Rico. Herein we describe steps taken build infrastructure, evaluate feasibility collecting formalin-fixed,...
This tribute celebrates the life and work of Marian Gray Secundy (1938-2002), who was first director National Center for Bioethics in Research Health Care, a passionate advocate health equity, visionary scholar, skilled editor collaborator. Within are several short remembrances which individuals describe their association with to honor her as leader, friend, advocate, teacher bioethics.
Des questions concernant la bioéthique intégrative sont en train d’émerger et révèlent non seulement des différences de définition mais aussi perspective d’approche (Jurić, 2007; Schaefer-Rolffs, 2012; Bracanović, ten Have, Muzur, 2012). A partir ces ambiguïtés conceptuelles, un nouveau moment dans l’histoire méthodologie émerge aussi, ainsi donnant forme à une deux approches intégrative, l’une venant d’Europe (Croatie) autre USA (Tuskegee, Alabama). Dans cet article, les auteurs essayeront...