Abstract Background Family caregivers in cancer and palliative care often face heavy responsibilities feel insufficiently prepared for the situation as caregivers. This study evaluates short‐term long‐term effects of a psycho‐educational group intervention aiming to increase preparedness family caregiving specialized home care. Methods The design was randomized control trial where were allocated either an or group. delivered program including three sessions by health professionals...

Our aim was to explore the presence of symptoms, symptom relief, and other key aspects palliative care during final week life among older people residing in nursing homes.Our study employed data from Swedish Palliative Care Register on all registered individuals aged 60 who had died homes years 2011 2012. Variables pertaining monitoring treatment end-of-life discussions, circumstances around death, individual characteristics deceased were explored using descriptive statistics.The most common...

The loss of a parent to cancer is considered one the most traumatic events teenager can experience. Studies have shown that teenagers, from time diagnosis, are already extremely worried about consequences parent's but tend be left manage these concerns on their own. present study aimed explore young adults' advice healthcare professionals how support teenagers who losing cancer.This work derives Swedish nationwide survey and employs qualitative approach with descriptive/interpretive design...

Family caregivers often report having unmet support needs when caring for someone with life-threatening illness. They are at risk psychological distress, adverse physical symptoms and negatively affected quality of life. This study aims to explore associations between family caregivers' life a spouse receiving specialized palliative home care.A descriptive cross-sectional design was used: 114 completed the Carer Support Needs Assessment Tool (CSNAT) Quality Life in Life-Threatening Illness -...

It is widely recognised, that family members are central to care of people with advanced illness, and support should be provided all in need thereof. The aim this study was investigate members' experiences received during the last three months life, at time death after a person illness.A retrospective cross-sectional survey design employed, using VOICES(SF) questionnaire multiple methods for data analyses. sample consisted 485 bereaved (aged: 20-90 years old, 70% women) who died hospital...

Background In Swedish intensive care units, nine percent of patients do not survive despite receiving advanced life-sustaining treatments. As these transition to end-of-life care, ethical considerations may become paramount. Aim To explore the challenges that critical nurses encounter when caring for at end life in an context. Research design The study used a qualitative approach with interpretive descriptive design. context and participants Twenty from eight units urban region Sweden were...

Heart failure is a disease with high morbidity, mortality, and physical psychological burden. More knowledge about the care provided for patients heart close to death needed.The aim was describe key aspects of palliative during last week life in failure, as reported by healthcare professionals.This national register study.The study included 3981 diagnosed underlying cause death.Data were obtained from Swedish Register Palliative Care, quality that focuses on patients' life, independent...

Family communication is a known protective factor for minor children's psychological health following the death of parent, but there little research describing within such families specifically from perspective children. The purpose this study was therefore to explore in parentally bereaved children and surviving parent.Interviews with four parents were analyzed using inductive content analysis. Interviews took place family's home or at center based on wishes 4-14 months after parent had...

In palliative care, family caregivers are often faced with experiences of grief in anticipation the loss a close person. An instrument designed to measure this form is Anticipatory Grief Scale, which includes 27 items and has been used several studies various contexts. However, not validated. The aim was evaluate psychometric properties, focusing on factor structure, Scale sample care. study had cross-sectional design. Data were collected from an intervention home care that took place...

Abstract Aims and objectives To explore palliative care nurses’ work experiences caring for patients at the end of life in private homes. Background The home continues to be a desired place dying; however, professional competence is needed specialist nurses play crucial role, often highly valued by their family members. as physical environment explored, with both positive negative aspects being described. ensure future high‐quality end‐of‐life care, there need describe how Design...

Children’s experiences of information and family communication when a parent has life-threatening illness have been sparsely studied, though such is important for the child’s wellbeing. The aim this study was to explore children’s reports illness-related living with illness. Forty-eight children, aged 7 19 years, were recruited from four specialized palliative home care units in Stockholm, Sweden. All but one child reported that someone had told them about parent’s illness; however, two...

Abstract Aims This study aimed to describe symptom prevalence of pain, shortness breath, anxiety, and nausea identify factors associated with relief in patients heart failure during their last week life. Methods results nationwide used data from the Swedish Register Palliative Care Causes Death Certificate Register. The sample included 4215 as underlying cause death. Descriptive statistics logistic regression were analyse data. Pain was most prevalent (64.0%), followed by anxiety (45.1%),...

The purpose of this study was to (1) explore associations between preparedness for caregiving and death among family caregivers patients with advanced cancer (2) modifiable factors, such as communication support. Data derived from a baseline questionnaire collected in specialized home care. included socio-demographics, the Preparedness Caregiving Scale, single items addressing death, received support about incurable illness. analyzed using descriptive statistics Spearman correlations....

Abstract Objectives In home-based care for severely ill patients, family caregivers’ contributions are crucial. This study aimed to explore how a web-based psychoeducational intervention influences experiences in addressing challenges while caring patient with life-threatening illnesses during specialized home care. Methods qualitative undertook semi-structured interviews caregivers of patients illness receiving Family participated randomized controlled trial evaluating delivered through...

Abstract Background The Support Needs Approach for Patients (SNAP) enables patients to reflect on, identify and prioritise their own support needs from a holistic perspective enable tailored support. Therefore, the aim of this study was examine content validity response processes Swedish version SNAP Tool among with life-threatening illness palliative care needs, registered nurses (RN) in specialized home services. Methods This two-stage validation study: (I) translation original English...

Life-threatening illness affects both patients and spouses, spousal caregivers report high levels of distress. Web-based interventions could benefit spouses' patients' needs shared everyday life. To explore how a family caregiver-targeted web-based psychoeducational intervention influences couples' experiences sharing life at home while facing life-threatening illness. This qualitative sub-study involved dyadic interviews with couples (spouse-patient) where the spouse was allocated to arm...

ABSTRACT Objective: Patients who receive palliative home care are in need of support from family members, take on great responsibility related to caregiving but often feel unprepared for this task. Increasing numbers interventions aimed at supporting members have been described and evaluated. It is not known whether how these actually affect the or provided a patient, even though it has suggested that would be likely provide better thus allow positive experiences patients. However, studied...

The aim of this study was to investigate symptom prevalence, relief, and palliative care indicators during the last week life, comparing them for patients with motor neuron disease (MND), central nervous system tumors (CNS tumor), other neurological diseases (OND). Data were obtained from Swedish Register Palliative Care, which documents life. Logistic regression used compare MND (n = 419), CNS tumor 799), OND 1,407) as cause death. most prevalent symptoms all groups pain (52.7% 72.2%)...

Abstract The aim of this study was to explore patients’ experiences using the Integrated Palliative care Outcome Scale (IPOS) during specialized palliative home care. adopted a qualitative approach with an interpretive descriptive design. Interviews were performed 10 patients, whom majority diagnosed incurable cancer. Our findings suggest that use IPOS as basis for conversation promotes safe by making patients feel confident provided adapted them which gives sense safety. facilitated...

Parentally bereaved children and adolescents are at risk of developing psychological health problems. Evidence for a correlation between communication broad measures exists in other populations. The aim this study was to examine associations family specific aspects following parent’s death from cancer using parent-proxy adolescent self-reports. Parent-proxy reports adolescents, self-reports Parent–Adolescent Communication, Strengths Difficulties Questionnaire, Prolonged Grief-13 child were...

Family caregivers of patients with severe illness and in need for a palliative care approach, face numerous challenges report having insufficient preparedness the caregiver role as well information psychosocial support. Preparing to severely ill family members also means becoming aware death. Feelings being prepared are associated positive aspects regarded protective against negative health consequences.The study adheres SPIRIT-guidelines (Supplementary 1), uses pre-post design include...

Objectives The aim was: (1) to investigate preferred place for end-of-life care and death bereaved family members who had recently lost a person with advanced illness (2) associations between members’ preferences individual characteristics, health-related quality of life, as well their perception the that ill received, person’s involvement in decision-making about care. Methods A cross-sectional survey members, employing descriptive statistics multinominal logistic regression analyses....