Patricia A. Hurley

ORCID: 0000-0001-6898-7831
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About
Contact & Profiles
Research Areas
  • Electoral Systems and Political Participation
  • Ethics in Clinical Research
  • Health Systems, Economic Evaluations, Quality of Life
  • Biomedical Ethics and Regulation
  • Economic and Financial Impacts of Cancer
  • Family and Disability Support Research
  • Inclusion and Disability in Education and Sport
  • Health and Medical Research Impacts
  • Social Policy and Reform Studies
  • Cerebral Palsy and Movement Disorders
  • Political Influence and Corporate Strategies
  • Policy Transfer and Learning
  • Judicial and Constitutional Studies
  • Youth Development and Social Support
  • Social Media and Politics
  • Political Systems and Governance
  • American Constitutional Law and Politics
  • Biomedical and Engineering Education
  • Gender Politics and Representation
  • Populism, Right-Wing Movements
  • COVID-19 and healthcare impacts
  • Breast Cancer Treatment Studies
  • Erythropoietin and Anemia Treatment
  • Cutaneous Melanoma Detection and Management
  • Cancer Genomics and Diagnostics

American Society of Clinical Oncology
2014-2024

National Patient Safety Foundation
2024

AstraZeneca (Switzerland)
2022

Bayer (United States)
2022

RTI Health Solutions
2022

RTI International
2022

Pfizer (United Kingdom)
2022

Merck (United Kingdom)
2022

AstraZeneca (Brazil)
2022

Community Cancer Center
2022

Children with physical disabilities are at increased risk of limitations to participation in everyday activities. This study describes research examining the children day-to-day formal and informal activities (excluding mandated academic schooling). Using Children's Assessment Participation Enjoyment (CAPE) measure, data on patterns were collected from 427 (229 males, 198 females; mean age 10 y [SD 2 4 mo]; range 6-14 y) their families. The primary types disability sample included cerebral...

10.1017/s0012162206000740 article EN Developmental Medicine & Child Neurology 2006-04-11

Abstract There is a need for psychometrically sound measures of children’s participation in recreation and leisure activities, both clinical research purposes. This paper provides information about the construct validity Children’s Assessment Participation Enjoyment (CAPE) its companion measure, Preferences Activities Children (PAC). These are appropriate children youth with without disabilities between ages 6 21 years. They provide six dimensions (i.e. diversity, intensity, where, whom,...

10.1111/j.1365-2214.2006.00613.x article EN Child Care Health and Development 2006-04-23

Purpose To update the 2002 American Society of Clinical Oncology guideline on pharmacologic interventions for breast cancer (BC) risk reduction. Methods A literature search identified relevant randomized trials published since 2002. Primary outcome interest was BC incidence (invasive and noninvasive). Secondary outcomes included mortality, adverse events, net health benefits. An expert panel reviewed developed updated consensus guidelines. Results Seventeen articles met inclusion criteria....

10.1200/jco.2008.20.5179 article EN Journal of Clinical Oncology 2009-05-27

The coronavirus disease 2019 (COVID-19) pandemic has disrupted all aspects of clinical care, including cancer trials. In March 2020, ASCO launched a survey programs represented on its Cancer Research Committee and Community Forum Steering Group taskforces to learn about the types changes challenges that trial were experiencing early in pandemic. There 32 respondents; 14 academic programs, 18 community-based programs. Respondents indicated COVID-19 is leading halt or prioritize screening...

10.1200/op.20.00275 article EN JCO Oncology Practice 2020-05-12

A concerted commitment across research stakeholders is necessary to increase equity, diversity, and inclusion (EDI) address barriers cancer clinical trial recruitment participation. Racial ethnic diversity among participants key understanding intrinsic extrinsic factors that may affect patient response treatments. This ASCO Association of Community Cancer Centers (ACCC) Research Statement presents specific recommendations strategies for the community improve EDI in trials. There are six...

10.1200/jco.22.00754 article EN Journal of Clinical Oncology 2022-05-19

This commentary is a call to action for concerted commitment and effort transform clinical trials enable people with cancer participate in closer home. Three key strategies are identified address major barriers: confront challenges the interpretation of US Food Drug Administration Form 1572 requirements (Statement Investigator); broaden acceptance local laboratories imaging centers; invest creation effective, sustainable partnerships between research centers providers.

10.1002/cncr.35145 article EN cc-by-nc-nd Cancer 2024-01-09

Abstract Background The provision of family‐centred services (FCS) emphasizes a partnership between parents and service providers so that families are involved in every aspect for their child. There is evidence providing FCS associated with improvements parents’ satisfaction services, decreased parental stress, positive child outcomes. Methods purpose this study was to examine factors most important determining parent perceptions the family centredness care service. A cross‐sectional survey...

10.1046/j.1365-2214.2003.00351.x article EN Child Care Health and Development 2003-08-11

Abstract Structural equation modeling was used to test a theoretically based model of environmental, family, and child factors as determinants the leisure recreation participation children with physical disabilities. Participants were 427 families (229 boys 198 girls) functional limitations, in 3 age groups (6-8, 9-11, 12-14 years). Data collected via home interviews self-administered standardized questionnaires. The significant direct predictors children's intensity both formal informal...

10.1207/s15326888chc3503_2 article EN Children s Health Care 2006-08-31

The primary goal of occupational therapy intervention for children with disabilities is enabling participation in the daily activities childhood. World Health Organization conceptualizes chronic health conditions and disability as two distinct aspects health, concern on level condition being diagnosis rather than function. Participation, within International Classification Functioning, Disability (ICF), characterized by interactions between a child, its family, other personal environmental...

10.1080/11038120410020755 article EN Scandinavian Journal of Occupational Therapy 2004-11-01

In this paper the decline of party voting in U.S. House Representatives from 1887 to 1968 is analyzed. The levels (by Congress) are fitted a regression line, with results showing high period (1890-1910), an intermediate (1911-1940), and low (1941-1968). A model developed measure effects on external variables-party homogeneity, conflict, presidential partisanship, turnover; internal variables-centralized leadership caucus strength. Both types variables shown have some effect, but external-and...

10.2307/439581 article EN Legislative Studies Quarterly 1979-08-01

Despite the fairly extensive literature on developmental benefits of youth's participation in organised, out‐of‐school activities, little is known about school‐aged children with physical disabilities formal recreation and leisure both comparison their informal activities who are typically developing. Enjoyment was examined for 427 354 without disabilities, aged 6–14 years. It predicted that would report significantly greater enjoyment than whereas this not be case disabilities. This...

10.1080/10349120902868558 article EN International Journal of Disability Development and Education 2009-04-29

Similarities and differences were examined in the out‐of‐school recreation leisure activity participation of 422 children with physical disabilities 354 without disabilities. The roles age (six to eight years, nine 11 12–14 years), gender, disability status respect diversity, intensity, location, companionship, enjoyment five types activities, controlling for family income. findings indicate that dimensions are differentially influenced by age, disability. Age cohort comparisons indicated...

10.1080/10349120903537988 article EN International Journal of Disability Development and Education 2010-02-12

This report presents the American Society of Clinical Oncology's (ASCO's) evaluation adaptations in care delivery, research operations, and regulatory oversight made response to coronavirus pandemic recommendations for moving forward as recedes. ASCO organized its clinical around five goals ensure lessons learned from COVID-19 experience are used craft a more equitable, accessible, efficient system that protects patient safety, ensures scientific integrity, maintains data quality. The...

10.1200/jco.20.02953 article EN Journal of Clinical Oncology 2020-12-08

Clinical trial participants do not reflect the racial and ethnic diversity of people with cancer. ASCO Association Community Cancer Centers collaborated on a quality improvement study to enhance equity, diversity, inclusion (EDI) in cancer clinical trials. The groups conducted pilot examine feasibility, utility, face validity two-part site self-assessment enable diverse types research sites United States (1) review internal data assess disparities screening enrollment (2) their policies,...

10.1200/op.22.00560 article EN cc-by-nc-nd JCO Oncology Practice 2023-01-11

Cancer trial participants do not reflect the racial and ethnic diversity in population of people with cancer United States. As a result multiple system-, patient-, provider-level factors, including implicit bias, clinical trials are consistently offered to all potentially eligible patients.ASCO ACCC evaluated utility (pre- post-test knowledge changes) feasibility (completion rates, curriculum satisfaction metrics, survey questions, interviews) customized online training program combined...

10.1200/op.22.00378 article EN JCO Oncology Practice 2023-01-11
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