A5066564303- Childhood Cancer Survivors' Quality of Life
- Palliative Care and End-of-Life Issues
- Adolescent and Pediatric Healthcare
- Family Support in Illness
- Infant Development and Preterm Care
- Autism Spectrum Disorder Research
- Ethics and Legal Issues in Pediatric Healthcare
- Family and Disability Support Research
- Cystic Fibrosis Research Advances
- Child and Adolescent Health
- Health disparities and outcomes
- Ethics in Clinical Research
- Ethics in medical practice
- Acute Lymphoblastic Leukemia research
- Food Security and Health in Diverse Populations
Nemours Children's Health System
2018-2025
Alfred I. duPont Hospital for Children
2017
Center for Cancer and Blood Disorders
2017
With published evidence-based Standards for Psychosocial Care Children with Cancer and their Families, it is important to know the current status of implementation. This paper presents data on delivery psychosocial care related in United States.Pediatric oncologists, leaders, administrators pediatric oncology from 144 programs completed an online survey. Participants reported extent which consistent was implemented comprehensive state art. They also specific practices services each Standard...
Fifteen evidence-based Standards for Psychosocial Care Children with Cancer and Their Families (Standards) were published in 2015. The cover a broad range of topics circumstances require qualified multidisciplinary staff to be implemented. This paper presents data on the availability psychosocial existing practices at pediatric oncology programs United States, providing that can used advocate expanded services prepare implementation Standards.Up three healthcare professionals from 144 (72%...
Abstract Objective Social-ecological factors are highly congruent with social determinants of health (SDOH): Economic Stability; Educational Access/Quality; Healthcare Neighborhood/Built Environment; and Social/Community Context. In this topical review, the correspondence social-ecological theory SDOH assessment approaches is reviewed. The Psychosocial Assessment Tool (PAT) used to show how existing tools may facilitate screening. Methods defined, their link pediatric outcomes presented,...
ABSTRACT Background The Standards for the Psychosocial Care of Children with Cancer and their Families (the Standards) support provision evidence‐based psychosocial care across pediatric cancer trajectory by specialized multidisciplinary staff. This paper presents data from Implementing Together: Engaging Parents Providers in (iSTEPPP) study on number type staff at oncology programs United States 2023, 8 years after publication Standards. Procedure Up to two healthcare professionals...
Individuals diagnosed with cancer between 15 and 39 years (adolescent young adult [AYA]) face unique vulnerability. Detail is lacking about care delivery for these patients, especially those ALL. We address knowledge gaps by describing AYA ALL details at National Cancer Institute Community Oncology Research Program (NCORP) (sub)affiliates model of care.
Abstract Background Childhood cancer affects and is affected by multiple levels of the social ecology, including relational determinants health (e.g., economic stability, housing, childcare, healthcare access, child family problems). The 2015 Standards Psychosocial Care in Pediatric Cancer outline optimal psychosocial care sensitive to these ecological factors, starting with assessment needs promote medical outcomes across all children cancer. To address first standard assessment, Assessment...
ABSTRACT Incorporating and elevating the voices of patients families is utmost importance in pediatric psychosocial research. While recognized as a priority, this practice not commonplace, specific guidance regarding best practices procedures largely absent. This paper describes partnering equitably with oncology patient advocacy groups to conduct Implementing Standards Together: Engaging Parents Providers Psychosocial Care (iSTEPPP) study. The partnership was critical for all steps research...
Abstract Background Children with cancer and their families are at risk for short- long-term psychosocial difficulties. Screening remains inconsistent, leading to inequitable access services. The Psychosocial Assessment Tool (PAT) is an evidence-based caregiver report screener of family ready implementation in a nationwide cluster randomized trial that will test two strategies across 18 pediatric centers. current study, conducted preparation the trial, solicited perspectives key stakeholders...
Abstract Background Unaddressed psychosocial risks may contribute to disparities in cancer care outcomes and be addressed by early risk screening. In a study implementing universal family screening 18 children's programs the United States, parents, clinicians, organizational leaders described importance of health equity. Purposes The purposes this were (1) describe perspectives regarding childhood (2) identify barriers facilitators improving equity decreasing through Methods Nineteen...
Abstract Objective This paper presents data on licensure/certification status, supervision of multidisciplinary pediatric psychosocial staff, and training opportunities in cancer programs the United States, that are critical to provide care aligned with Standards Psychosocial Care Pediatric Cancer (Psychosocial Standards). Methods An online survey consistent was completed from a national sample (144/200). Licensure/certification availability format for staff (social workers, psychologists,...
The Psychosocial Assessment Tool (PAT) is a well-validated, brief screener of family psychosocial risk. Since 2014 web-based version the PAT (WebPAT) has been available for use by clinicians and researchers, but psychometric properties have not examined. objective this article was to examine factor structure internal consistency WebPAT, which administered caregivers youth with cancer.The WebPAT 1,252 cancer across 29 institutions. Confirmatory analysis (CFA) used WebPAT. Internal...