Advance care planning (ACP) prepares patients and their families for future health decisions; however, the needs of adolescent oncology participation in ACP have not been well studied.To examine efficacy family-centered ACP.Two-group randomized controlled trial a pediatric program.Sixty adolescents aged 14 to 21 years with cancer surrogates or were enrolled study between January 17, 2011, March 29, 2012.Thirty dyads received 3- 60-minute sessions 1 week apart. Intervention completed (1) Lyon...

Abstract Background Establishing the ability of children and adolescents with cancer to complete NIH‐sponsored PROMIS pediatric measures electronically preliminary validity estimates (both full item banks short forms) in oncology will contribute our knowledge impact treatment on these young patients. Procedures A total 203 8‐ 17‐year olds were administered eight a cross‐sectional study design establish known‐group validity. Of 200 who completed all or most items, slight majority male (55.5%)...

<h3>Objective:</h3> To determine the neurocognitive deficits associated with newly diagnosed untreated childhood absence epilepsy (CAE), develop a model describing factorial structure of items measuring academic achievement and 3 neuropsychological constructs, short-term differential effects on attention among ethosuximide, valproic acid, lamotrigine. <h3>Methods:</h3> Subjects CAE entering double-blind, randomized controlled clinical trial had testing including assessments general...

Background Little is known about how well family members accurately represent adolescents when making EOL decisions on their behalf. This study reports surveys given to with cancer and parents as part of a larger facilitating advanced care discussions, the results survey for health providers. Procedure Trained facilitators administered orally families in intervention arm FAmily CEntered Advance Care Planning (ACP) Teens Cancer (FACE-TC) study. In addition, post-hoc was sent oncology Results...

<h3>Importance</h3> The associations of spiritual and religious factors with patient-reported outcomes among adolescents cancer are unknown. <h3>Objective</h3> To model the association constructs anxiety, depressive symptoms, fatigue, pain interference. <h3>Design, Setting, Participants</h3> This cross-sectional study used baseline data, collected from 2016 to 2019, an ongoing 5-year randomized clinical trial being conducted at 4 tertiary-referral pediatric medical centers in US. A total 366...

Recruiting large samples from hidden populations of injection drug and crack-cocaine users who are not in treatment has been a troubling methodological problem that increased significance the face AIDS pandemic. This article describes sampling strategy developed for prevention research Montgomery County (Dayton) Ohio combines targeted with systematic derivation proportional quotas. The ethnographic mapping use indicators by outreach workers plays key role design. triangulation independent...

The Diagnostic Interview Schedule for DSM-IV was used to assess the lifetime prevalence of psychiatric disorder among not-in-treatment crack cocaine users (N = 313). most common dependencies involved (59.7%), alcohol (37.7%), and cannabis (12.1%). nondependency disorders were antisocial personality (ASPD; 24%), depression (17.8%), posttraumatic stress (PTSD; 11.8%). Comorbidity present in 36.4% sample. Proportionately more white than black dependent on cocaine, alcohol, amphetamine,...

To evaluate the association between physician's patient-centered communication patterns and parental satisfaction during decision-making family conferences in PICU.

OBJECTIVE: Health care disparities have been described for children of limited English-proficient (LEP) families compared with (EP) families. Poor communication the medical team may contribute to these worse health outcomes. Previous studies exploring in PICU excluded LEP We aimed understand experiences and preferences 3 primary settings PICU. also explored families’ views on interpreter use PATIENTS AND METHODS: EP Spanish-speaking admitted a large tertiary pediatric hospital completed...

Objectives: The prevalence of tracheostomy-dependence in critically ill children is increasing the United States. We do not know impact this decision on parental outcomes. aimed to determine decisional conflict and regret explore quality life among parents considering tracheostomy placement for their child. Subjects: Parents facing Design: Prospective, mixed-methods longitudinal study. Setting: PICU, cardiac ICU, neonatal ICU a single quaternary medical center. Interventions: None....

Background Children with cancer experience multiple symptoms due to their disease and as a result of treatment. The purpose this study was demonstrate the feasibility potential utility using latent profile analysis (LPA), type cluster analysis, in children identify groups patients who similar levels symptom severity impairment physical function. Procedure We analyzed patient‐reported functional data previously collected Pediatric Patient Reported Outcomes Measurement Information System...

Executive function, a set of cognitive skills important to social and academic outcomes, is specific area weakness in children with congenital heart disease (CHD). We evaluated the prevalence profile executive dysfunction heterogeneous sample school aged CHD, examined whether are receiving services support, identified risk factors for at age.Ninety-one patients completed questionnaires, including Behavior Rating Inventory Function (BRIEF) medical history questionnaire. An age- gender-...

Abstract Purpose This study assessed the responsiveness to change over time and theorized associations of Patient‐Reported Outcomes Measurement Information System (PROMIS) pediatric measures in children adolescents treatment for cancer determine measure readiness use clinical trials. Methods We administered eight PROMIS (three symptom, two psychological, three performance) short‐form Symptom Distress Scale (SDS) 96 oncology patients at points during a course chemotherapy. using paired t...

It is unknown if religiousness/spirituality influences end-of-life treatment preferences among adolescents. Investigators assessed whether moderates the relationship between an advance care planning intervention and 85 primarily African-American adolescents living with HIV/AIDS in outpatient-hospital-based HIV-specialty clinics United States. Adolescents aged 14–21 years their families were randomized to three-weekly-60-minute sessions either: (survey, goals of conversation, directive); or...

<h3>Importance</h3> Lack of pediatric advance care planning has been associated with poor communication, increased hospitalization, quality life, and legal actions. Clinicians presume that families understand adolescents' treatment preferences for end-of-life care. <h3>Objective</h3> To examine patient-reported values needs adolescents cancer congruence their families' understanding these needs. <h3>Design, Setting, Participants</h3> This cross-sectional survey was conducted among...

Objective: Use and production of methamphetamine (MA) has dramatically increased in the United States, especially rural areas, with concomitant burdens on treatment criminal justice systems. However, cocaine is also widely used many areas. The purpose this article to contrast MA users three geographically distinct areas States. Method: Participants were recent not-in-treatment adult living Ohio, Arkansas, Kentucky, who recruited by a referral recruitment method for sampling hidden community...

Depression has been identified as a disorder of clinical significance among cocaine users. Even so, its prevalence in cocaine-abusing populations is uncertain. This research employed cross-sectional design to determine the current depressive symptomatology sample 430 not-in-treatment crack-cocaine was assessed with Beck Inventory (BDI). The mean BDI score 19.1. Overall, 80% had scores that suggested more than minimal depression, and 55% symptoms moderate severe depression. results cumulative...