A5086725260- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Ethics and Legal Issues in Pediatric Healthcare
- Geriatric Care and Nursing Homes
- Grief, Bereavement, and Mental Health
- Family and Patient Care in Intensive Care Units
- Cardiac Arrest and Resuscitation
- Adolescent and Pediatric Healthcare
- Disaster Response and Management
- Patient Dignity and Privacy
- Frailty in Older Adults
- Family Support in Illness
- Mental Health and Patient Involvement
- Health Systems, Economic Evaluations, Quality of Life
- Health Policy Implementation Science
- Respiratory Support and Mechanisms
- Mycobacterium research and diagnosis
- Religion, Society, and Development
- Healthcare Systems and Technology
- Patient-Provider Communication in Healthcare
- Cancer survivorship and care
- Cardiac, Anesthesia and Surgical Outcomes
- Tuberculosis Research and Epidemiology
- Healthcare Technology and Patient Monitoring
- Antibiotic Use and Resistance
University of Leeds
2023-2024
University of Sheffield
2020-2024
Monash Health
2024
Manchester Academic Health Science Centre
2023
University of Manchester
2023
University of Otago
2023
University of Warwick
2013-2022
Marie Curie
2022
University of Hertfordshire
2022
Linköping University
2021-2022
<h3>Background</h3> With increasing numbers of people living with complex life-limiting multimorbidity in the community, consideration must be given to improving organisation and delivery high-quality palliative end-of-life care (EOLC). <h3>Aim</h3> To provide insight into experience GPs providing EOLC particularly facilitators barriers good-quality care. <h3>Design setting</h3> A web-based national UK questionnaire survey circulated via Royal College General Practitioners, NHS, Marie Curie,...
We explored longitudinal changes associated with switching to hybrid closed-loop (HCL) insulin delivery systems in adults type 1 diabetes and elevated HbA1c levels despite the use of intermittently scanned continuous glucose monitoring (isCGM) pump therapy.We undertook a pragmatic, preplanned observational study participants included National Health Service England pilot. Adults using isCGM across 31 centers an ≥8.5% who were willing commence HCL therapy included. Outcomes change HbA1c,...
The isolation of rapidly growing mycobacteria (RGM), particularly Mycobacterium abscessus, from individuals with cystic fibrosis (CF) is associated poor clinical outcome due to broad drug resistance and the difficulty eradicating organisms. Susceptibility testing recommended guide therapy. A disc diffusion method used in United Kingdom, whereas States, CLSI (Clinical Laboratory Standards Institute) recommends broth dilution method. purpose this study was investigate whether two methods...
To provide an in-depth insight into the experience and perceptions of bereaved parents who have experienced end life care decision-making for children with life-limiting or life-threatening conditions in paediatric intensive unit (PICU).An qualitative interview study a sample had died PICU within previous 12 months. A thematic analysis was conducted on transcripts.A large National Health Service (NHS) tertiary children's hospital West Midlands, UK.17 11 PICU.Five interconnected themes were...
Thousands of people in the UK have required end-of-life care community during COVID-19 pandemic. Primary healthcare teams (general practice and nursing services) provided majority this care, alongside specialist colleagues. There is a need to learn from experience order inform future service delivery planning.To understand views GPs nurses providing first wave pandemic.A web-based, UK-wide questionnaire survey circulated via professional general networks, September October 2020.Responses...
There are marked inequalities in palliative care provision. Research is needed to understand how such can be addressed, so that everyone living with advanced illness receive the they need, when need it. into should guided by Patient and Public Involvement (PPI) includes people from diverse backgrounds, who less likely specialist services. Multi-disciplinary research partnerships, bringing together primary (the main providers of communities) care, have potential work new ways do address...
Background: The majority of children and young people who die in the United Kingdom have pre-existing life-limiting illness. Currently, most such deaths occur hospital, frequently within intensive care environment. Aim: To explore experiences senior medical nursing staff regarding challenges associated with Advance Care Planning relation to illnesses Paediatric Intensive Unit environment opportunities for improvement. Design: Qualitative one-to-one, semi-structured interviews were conducted...
Patient and public involvement (PPI) is important both in research quality improvement activities related to healthcare services . While PPI do not require formal ethical approval, they can raise a number of concerns, through the introduction complex technical medical concepts, challenging language or sensitive subject areas. There very little published literature guide practice this area. We have been conducting with children young people throughout study paediatric palliative care. started...
ABSTRACT In males it is frequently testosterone (T) that activates the expression of sexually selected morphological and behavioral displays, but role T in regulating similar traits females less clear. Here, we combine correlational data with results from gonadotropin-releasing hormone (GnRH) manipulations both sexes to assess mediating dimorphic coloration morphology red-backed fairy-wren (Malurus melanocephalus). We show that: (1) natural variation female ornamental (darkened bills red...
Objectives To understand the experiences and perceptions of healthcare services children with life-limiting life-threatening conditions their family members, including palliative care. Design Longitudinal qualitative interview study members. Up to three in-depth interviews were conducted over 13 months each child family. Data analysed using thematic analysis. Setting Community hospital settings in West Midlands, UK. Participants Children a diverse range conditions, aged between 5 18 years,...
AimTo assess patient socio-demographic and disease characteristics associated with the initiation, timing, completion of emergency care treatment planning in a large UK-based hospital trust.MethodsSecondary retrospective analysis data across 33 months extracted from digitally stored Recommended Summary Plan for Emergency Care Treatment (ReSPECT) plans within electronic health record system an acute trust England, UK.ResultsData analysed ReSPECT (n=23,729), indicate increase proportion...
Inequalities in access to palliative and end of life care are longstanding. Integration primary has the potential improve equity community. Evidence inform integration is scarce as research that considers services rare.
Objective Advance Care Planning (ACP) is nationally a core element of adult and paediatric palliative care strategies. It defined as process discussion between an individual, their providers those close to them, about future care. Formal procedures processes can help with some the most difficult elements communication related ACP. The majority children who die do so in Paediatric Intensive Unit (PICU). This survey aimed identify compare ACP documents that are use within UK hospitals PICU....
Objective To understand healthcare system facilitators and barriers to the delivery of palliative care for children with life-limiting life-threatening conditions their family members. Design Focus groups children’s professionals. Data were analysed using thematic analysis. Setting Four regions England (West Midlands, South West, Yorkshire Humber, London) from December 2017 June 2018. Participants Healthcare professionals (doctors, nurses allied professionals) working in services. Findings A...