A5075302132- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Family and Patient Care in Intensive Care Units
- Grief, Bereavement, and Mental Health
- Ethics and Legal Issues in Pediatric Healthcare
- Child and Adolescent Health
- Interprofessional Education and Collaboration
- Child Nutrition and Feeding Issues
- Dialysis and Renal Disease Management
- Qualitative Research Methods and Applications
- Family and Disability Support Research
- Ethics in medical practice
- Geriatric Care and Nursing Homes
- Health and Well-being Studies
- Nursing Roles and Practices
University of Bristol
2024
University of Birmingham
2020-2024
Birmingham Women’s and Children’s NHS Foundation Trust
2019
Birmingham Children's Hospital
2014-2018
To provide an in-depth insight into the experience and perceptions of bereaved parents who have experienced end life care decision-making for children with life-limiting or life-threatening conditions in paediatric intensive unit (PICU).An qualitative interview study a sample had died PICU within previous 12 months. A thematic analysis was conducted on transcripts.A large National Health Service (NHS) tertiary children's hospital West Midlands, UK.17 11 PICU.Five interconnected themes were...
Background Understanding why children die is important for grieving parents and informing system improvements aimed at prevention future care. Many countries have child death review (CDR) process, but little known about how best to engage parents. The aim of this study was use experience-based co-design create a toolkit support parental involvement in CDR. Methods A survey English paediatric intensive care units (PICUs) palliative services explored practices identified diverse sample sites...
Background Perinatal advance care planning (PnACP) is a process of formal decision-making to help families plan for their baby’s when recognised that they may have life-limiting condition. While PnACP recommended in policy, there lack evidence support implementation and development the perinatal setting. Objective To conduct an online survey UK Ireland providers examine how operationalised current practice. Methods A secure questionnaire was developed collect data on (1) ‘what’ being...
Objective The proportion of people having home dialysis for kidney disease varies considerably by treating centre, socioeconomic deprivation levels in the area and to some extent ethnicity. This study aimed gain in-depth insights into cultural organisational factors contributing this variation uptake. Design is first ethnographic centre culture focus on NASSS (non-adoption, abandonment, scale-up, spread, sustainability) framework was used map that influence use dialysis. Setting We conducted...
<h3>Background and aims</h3> In a regional Paediatric Intensive Care Unit (PICU) the research team have been recruiting to three multi-centre randomised controlled trials. The were interested explore parent’s preference for nurses wearing uniform whilst these <h3>Method</h3> 62 questionnaires given out non-research PICU staff (nursing, administrative medical staff). Multiple choice questions asked what they would prefer see when approaching parents about research. 24 who had approached trial...
Background and aims: To explore staff parental preference for research nurses (RNs) wearing a uniform whilst recruiting to multi-centre randomised controlled trials in regional Paediatric Intensive Care Unit (PICU). Methods: 62 questionnaires were given non-research PICU staff. Multiple choice questions asked what they would prefer see RNs when approaching parents about research. 24 out who had been approached trial participation PICU. whether be consent by RN clinical nurse uniform,...
Aims & Objectives: Advances in technology have made wireless monitoring of paediatric vital signs possible. This study was performed during the Real-time Adaptive Predictive Indicator Deterioration (RAPID) to understand impact and sources stress for parents when their child is monitored using standard systems RAPID monitoring. Methods an in-depth qualitative study. Purposive sampling identified whose children had been through Paediatric Intensive Care (PIC) were being cared on one two...
Background The Child and Young Person’s Advance Care Plan (CYPACP) is a set of resources to help families professionals agree plan care be followed when child/young person with life-limiting condition develops potentially (i) reversible intercurrent illnesses or (ii) life-threatening complications their condition. It covers clinical, psychosocial spiritual issues, designed for use in all environments that the child encounters, can used as resuscitation and/or end-of-life plan. Little known...