A5004660354- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Patient Dignity and Privacy
- Family and Disability Support Research
- Family Support in Illness
- Patient Safety and Medication Errors
- Patient-Provider Communication in Healthcare
- Pain Management and Opioid Use
- Ethics in medical practice
- Grief, Bereavement, and Mental Health
- Geriatric Care and Nursing Homes
- Medical Malpractice and Liability Issues
- Ethics and Legal Issues in Pediatric Healthcare
- Health Systems, Economic Evaluations, Quality of Life
- Delphi Technique in Research
- Pharmacological Effects and Toxicity Studies
- Family and Patient Care in Intensive Care Units
- Anesthesia and Pain Management
- Pediatric Pain Management Techniques
- Cardiac, Anesthesia and Surgical Outcomes
- Chronic Disease Management Strategies
- Opioid Use Disorder Treatment
- Cerebral Palsy and Movement Disorders
- Pharmaceutical Practices and Patient Outcomes
- Chronic Kidney Disease and Diabetes
Toronto Metropolitan University
2025
Beaumont Hospital
2014-2024
Irish Hospice Foundation
2015-2024
Royal College of Surgeons in Ireland
2021-2024
University of Ulster
2021
Altnagelvin Area Hospital
2021
Hospice UK
2019-2020
Dublin City University
2019-2020
University College Dublin
2019-2020
University Health Network
2014
Achieving choice is proposed as a quality marker. But little known about what influences preferences especially among older adults. We aimed to determine and compare, across three countries, factors associated with for place of death treatment, actual site death. recruited adults aged ≥65-years from hospital-based multiprofessional palliative care services in London, Dublin, New York, followed them >17 months. All offered consultation on hospital wards, support existing clinical teams,...
Caregiver burden affects the physical, psychological and emotional well-being of caregiver. The purpose this analysis was to describe an informal caregiver cohort (n = 81), their subjective assessment difficulties experienced as a result providing care people with Amyotrophic Lateral Sclerosis (ALS).Using mixed methods data collection analysis, we undertook comprehensive associated caregiving in ALS. As part semi-structured interview series standardised measures were used assess quality...
Background: Palliative care needs of patients with chronic heart failure are poorly recognised. Policy makers advise a patient-centred approach to holistically assess patients’ and goals. Patient-reported outcome measures proposed facilitate care. Aim: To explore whether how palliative care–specific patient-reported intervention involving the Integrated Outcome Scale influences experience in nurse-led disease management clinics. Design: A feasibility study using parallel mixed-methods...
Disability discrimination has been prohibited in Canada for decades, yet people with disabilities continue to experience inaccessible built environments. Canada’s most populous province – Ontario well-developed accessibility legislation but was recently evaluated be a ‘crisis state’ after 20 years of implementation. Planners have profound influence on environments, thus we ask planners about their attitudes, perceptions and knowledge disability through interviews. We find limited...
<p>Disability discrimination has been prohibited in Canada for decades, yet people with disabilities (PwD) continue to experience inaccessible built environments. Canada’s most populous province - Ontario well-developed accessibility legislation, however was recently evaluated be a “crisis state” after 20 years of implementation. Planners have profound influence on environments, thus we asked planners about their attitudes, perceptions and knowledge disability through interviews. We...
<p>Disability discrimination has been prohibited in Canada for decades, yet people with disabilities (PwD) continue to experience inaccessible built environments. Canada’s most populous province - Ontario well-developed accessibility legislation, however was recently evaluated be a “crisis state” after 20 years of implementation. Planners have profound influence on environments, thus we asked planners about their attitudes, perceptions and knowledge disability through interviews. We...
Congruence between the preferred and actual place of death is recognised as an important quality indicator in end-of-life care. However, there may be complexities about preferences that are ignored summary congruence measures. This article examined factors associated with death, for a sample patients who had received specialist palliative care last three months life Ireland.
RECENT evidence has raised concerns that women are disadvantaged because of inadequate attention to the research, diagnosis, and treatment women's health care problems. In 1985, US Public Health Service's Task Force on Women's Issues reported lack research data limited understanding needs.<sup>1</sup> One concern is medical treatments for based a male model, regardless fact may react differently than men or some diseases manifest themselves in men. The results generalized without sufficient...
Abstract Background This study explored mothers' perspectives of the experiences and impact on themselves their family when child has a life‐limiting neurodevelopmental disability. Methods Twelve mothers were interviewed topics included caring, care provision, management day‐to‐day life. Data analysed using thematic analysis. Results Four themes identified. “Starting Out” relates to birth aftermath. “Keeping Show Road” describes strategies families employ manage life day resources they use....
Abstract Introduction Experience with the use of patient‐reported outcome measures such as EQ‐5D and symptom module Palliative care Outcome Scale—Renal Version (POS‐S Renal) mortality prediction tools in hemodialysis is limited. Methods A prospective survival study people receiving (N = 362). The POS‐S Renal were used to assess burden self‐rated health (with a component). Participants followed from instrument completion death or end. Competing risks analysis was evaluate associations time...
Abstract Background At the end of life, formal care costs are high. Informal (IC) costs, and their effects on outcomes, not known. This study aimed to determine IC for older adults in last 3 months relationships with adjusting quality. Methods Mortality follow-back postal survey. Setting: Palliative services England (London), Ireland (Dublin) USA (New York, San Francisco). Participants: carers (ICrs) decedents who had received palliative care. Data: ICrs reported hours activities, quality,...
OVER the last 50 years, people have become increasingly concerned that dying process is too often needlessly protracted by medical technology and consequently marked incapacitation, intolerable pain, indignity. In one public opinion poll, 68% of respondents believed "people an incurable painful disease should be allowed to end their lives before runs its course."<sup>1</sup>A number comparable surveys indicate similar sentiment.<sup>2</sup> Since turn century, there has been a dramatic shift...
Background Patients with advanced cancer commonly involve family caregivers in decision-making for palliative care. However, how patients and accommodate each other is unclear. Methods A qualitative study was conducted 14 19 recruited from two hospices comprising a large regional specialist care service Ireland. Data comprised semi-structured interviews participants. The data were analyzed using grounded theory coding procedures. Results Most preferred to make decisions their caregiver or at...
A survey at a large tertiary referral hospital showed that patients with cancer and HIV disease had poorly controlled symptoms. palliative care service was introduced, employing doctor part-time pharmacist. The available to see advise about terminally ill patients. With the pharmacists, an educational programme of meetings, teaching sessions information leaflets developed. One year after introduction repeat all or carried out. Problems on admission were similar in both surveys, but fewer...
Abstract: We analyzed the association between whole‐blood trough tacrolimus (TAC) levels in first days post‐kidney transplant and acute cellular rejection (ACR) rates. Four hundred sixty‐four consecutive, deceased‐donor kidney recipients were included. All treated with a combination of TAC, mycophenolate mofetil prednisolone. Patients four groups based on quartiles mean TAC 2 5 post‐transplant: Group 1: median 11 ng/mL (n = 122, range 2–13.5 ng/mL), 2: 17 123, 14–20 3: 24 108, 20.5–27 ng/mL)...
patient empowerment, through which patients become self-determining agents with some control over their health and healthcare, is a common theme across policies globally. Most care for older people in the acute setting, but there little evidence to inform delivery of empowering hospital care. we aimed explore challenges facilitators empowerment among advanced disease hospital, impact palliative conducted an ethnography six hospitals England, Ireland USA. The involved: interviews aged ≥65,...
Background: Care costs rise towards the end of life. International comparison service use, and care experiences can inform quality improve access. Aim: The aim this study was to compare health social costs, their drivers in last 3 months life for older adults across countries. Null hypothesis: no difference between Design: Mortality follow-back survey. Costs were calculated from carers’ reported use unit costs. Setting: Palliative services England (London), Ireland (Dublin) United States...