- Chronic Obstructive Pulmonary Disease (COPD) Research
- Inhalation and Respiratory Drug Delivery
- Mobile Health and mHealth Applications
- Health Literacy and Information Accessibility
- Nursing Diagnosis and Documentation
- Delphi Technique in Research
- COVID-19 and Mental Health
- Health Sciences Research and Education
- Asthma and respiratory diseases
- Medication Adherence and Compliance
- Emergency and Acute Care Studies
- Chronic Disease Management Strategies
- Health and Wellbeing Research
- COVID-19 and healthcare impacts
- Cancer survivorship and care
- Health Policy Implementation Science
- Social Media in Health Education
- Climate Change and Health Impacts
- Health disparities and outcomes
- Mental Health and Patient Involvement
- Family and Patient Care in Intensive Care Units
- Respiratory Support and Mechanisms
- Ethics in Clinical Research
- Palliative Care and End-of-Life Issues
- Misinformation and Its Impacts
COPD Foundation
2020-2023
Centre for Advanced Process Technology for Urban Resource Recovery
2023
Research Network (United States)
2021
Kaiser Permanente Center for Health Research
2021
Chronic obstructive pulmonary disease (COPD) is underdiagnosed in primary care.
Background Wellinks is a remote disease management solution that provides novel chronic obstructive pulmonary (COPD) care delivery. Objective This study evaluated the satisfaction, engagement, and clinical outcomes of participants. also investigated cadence health coaching for patients with COPD. Methods A 24-week interventional was conducted by COPD Foundation in 2022. Adults were recruited United States determined to be eligible if they had phone internet access, owned smartphone, not...
Electronic medication monitors (EMMs) are associated with decreased rescue inhaler use, symptom burden, and increased adherence in asthma. However, the use of EMMs people chronic obstructive pulmonary disease (COPD) using ELLIPTA dry powder has not been studied.This was an open-label, single-arm, prospective observational study application (app) over 12 weeks up to 24 (April-October 2019) self-reported COPD aged ≥40 years enrolled Patient-Powered Research Network, inhaler. The primary...
Abstract Background To document a generalizable process for developing patient-prioritized chronic obstructive pulmonary disease (COPD) research agenda and to provide an overview of domains that were developed in response people living with COPD caregivers’ suggestions research. Methods Adults caregivers who are members the Patient-Powered Research Network (PPRN) provided COPD-related through self-administered, online survey. These responses analyzed content analysis approach: categorizing...
Pharmacotherapy is one cornerstone of Chronic Obstructive Pulmonary Disease (COPD) management. Published U.S. data seldom includes patient-reported COPD medication use and adherence. We add this patient perspective to the commonly reported administrative prescribing fill data.This survey study used inhaler nebulizer pictures lists oral medications query members Foundation Patient-Powered Research Network, a national self-reported online registry. Medications used, adherence, education, cost...
<sec> <title>BACKGROUND</title> Wellinks is a remote disease management solution that provides novel chronic obstructive pulmonary (COPD) care delivery. </sec> <title>OBJECTIVE</title> This study evaluated the satisfaction, engagement, and clinical outcomes of participants. also investigated cadence health coaching for patients with COPD. <title>METHODS</title> A 24-week interventional was conducted by COPD Foundation in 2022. Adults were recruited United States determined to be eligible if...
Several reports have been published addressing the potential impact of severe acute respiratory syndrome coronavirus-2 (SARS CoV-2), or coronavirus disease 2019 (COVID-19) pandemic on health and well-being care workers, people who develop COVID-19, those impacted by
Rationale: Individuals with COPD are usually older and have co-morbidities besides COPD, increasing risk of adverse outcomes from COVID-19 (1,2). To lessen risks, those practicing social distancing loved ones society, living in a culture fear, anxiety isolation. address this burden understand the pandemic's impact on concerns about health well-being people Foundation (COPDF) developed survey to identify issues among members COPDF Patient-Powered Research Network (PPRN) then asked broader...
PURPOSE:The COVID-19 pandemic has presented challenges for health communications with special concerns people chronic diseases.Those COPD are at increased risk and adverse outcomes making messaging about highly important to this group.Therefore, it is helpful understand the impact of perceived misinformation confusion surrounding on COPD. METHODS: Using information published in medical literature social media, we developed & Coping COVID Pandemic Survey.The survey was offered members...