A5017842021- Health and Medical Research Impacts
- Ethics in Clinical Research
- Health Systems, Economic Evaluations, Quality of Life
- Delphi Technique in Research
- Clinical practice guidelines implementation
- Health Sciences Research and Education
- Dementia and Cognitive Impairment Research
- Biomedical Ethics and Regulation
- Mental Health and Patient Involvement
- Interprofessional Education and Collaboration
- Advances in Oncology and Radiotherapy
- Intergenerational Family Dynamics and Caregiving
- Health Policy Implementation Science
- Geriatric Care and Nursing Homes
- Patient-Provider Communication in Healthcare
- Health disparities and outcomes
- Healthcare cost, quality, practices
- Frailty in Older Adults
University of Exeter
2018-2021
University College London
2012-2021
National Hospital for Neurology and Neurosurgery
2021
UK Dementia Research Institute
2021
National Institute for Health Research
2018
NIHR Clinical Research Network
2011
There is a major need for longitudinal research examining the experiences of people with dementia and their primary carers, as relatively little known about how factors associated capability to 'live well' vary over time. The main aim IDEAL-2 study investigate why, time, carers might in live well dementia, whilst exploring both use health care services unmet needs. will build on Improving experience Dementia Enhancing Active Life (IDEAL) cohort 1547 (who, at recruitment between July 2014...
Recruiting participants for dementia research takes time. For those who are interested, opportunities to participate can be ad hoc. Delays in finding the right result studies taking longer deliver, often requiring funding extensions, and ultimately increasing cost limiting effectiveness of evaluation. To address these issues, a digital platform, StepUp Dementia Research, was developed 2019 evaluated through ongoing data analytics, researcher feedback annual volunteer surveys 2021. Using...
Abstract Introduction Barriers to recruitment for dementia studies are well documented. As part of the UK government's Dementia 2020 strategy, a nationally consistent system increase public engagement and participation in research was launched February 2015. Methods We describe development “Join Research” registry, including evolution policy, involvement people with co‐production, data requirements, governance, technology, impact on study what factors may have contributed services success....
In 2005 the Government established a clinical research network in dementia and neurodegenerative diseases to increase improve an area of unmet need. Since its creation, Dementias Neurodegenerative Diseases Research Network (DeNDRoN) has facilitated 300% number National Health Service trusts recruiting people neurodegeneration research, 500% open studies each year, 600% taking part studies. This article summarizes increased activity improvements performance delivered since 2005; describes...
Join Dementia Research (JDR) is a UK wide publically funded service which supports members of the public, with and without dementia to, volunteer to participate in all types research studies. Volunteers are asked provide information about themselves, this used by JDR system match person potentially suitable Researchers can then review volunteers matching, enabling them contact screen potential candidates. was launched February 2015 collaboration between National Institute for Health (NIHR),...
Join Dementia Research (JDR) is a national research register that supports members of the public, with and without dementia to volunteer be contacted about all types studies. Funded by Department Health, volunteers can online, through post, or calling one three helplines run UK's largest charities. Launched in February 2015, total number was 25,800 January 2016, increasing at rate approximately 1,050 per month during 2016. The service marketed range channels including NHS memory services,...
In the United Kingdom, clinical study groups are multidisciplinary research networks of scientists, clinicians and lay members whose aims include both development delivery a strategic portfolio studies in their field. Portfolio activities Dementias Neurodegeneration field have been supported by UK National Institute Health Research (NIHR) via specialty group (DeNDRoN) within Clinical Network. To evaluate performance activities, we examined type support number DeNDRoN, successful grant...
In the United Kingdom National Institute of Health Research (NIHR) Clinical Network's (CRN) remit is to support delivery high-quality clinical research in NHS. Its purpose provide efficient and effective for initiation funded With advent Prime Minister's Challenge on Dementia 2012 a number infrastructure service developments were introduced enablement commitments made. We will outline these improvement initiatives (RATER Training, ENRICH, JDR AcoRD costing support) explore how they supported...
In 2012 the UK Prime Minister launched 'Challenge on Dementia' to stimulate policy and system change deliver "major improvements in dementia care research." The Challenge noted "people with their carers are not routinely offered opportunity participate high-quality research". National Institute for Health Research (NIHR) Director Dementia was tasked delivering necessary create a nationally consistent enable them do so, should they wish. Since NIHR has delivered programme of activities aimed...
With the prevalence of dementia in people using generic NHS services increasing, and with shown to experience poorer outcomes distress these settings, it is increasingly important for staff across care system be sufficiently trained ensure appropriate dementia. UCL Partners, an Academic Health Science Network serving a 7m population north, central east London, has led programme work aimed at providing working clinical network training their role, goal improving its services. Tier 1 2...
Recruitment of participants into dementia studies is challenging. Typically recruitment for an 18 month drug trial takes months or more, doubling the amount time it to test efficacy. Join Dementia Research a UK-wide service developed by National Institute Health support studies. This usually driven individual researchers and sites, whilst successful not fully utilised. Between July 2016 January 2018, we piloted new mechanism centralised study commercial trial, which required people with Mild...
The UK governments 2020 Dementia Challenge stated an ambition to expand the dementia research workforce, improving training and support for researchers across spectrum – neuroscientists, translational, clinical, care implementation; supporting clinical broader health academic pathways. Furthermore recognising a need boost by more nurses, social worker community professionals who lead deliver care, being trained become researchers. To of these objectives we undertook evaluation what systems...