A5058752840- Dementia and Cognitive Impairment Research
- Geriatric Care and Nursing Homes
- Health disparities and outcomes
- Intergenerational Family Dynamics and Caregiving
- Family Caregiving in Mental Illness
- Mental Health and Patient Involvement
- Aging and Gerontology Research
- Chronic Disease Management Strategies
- Psychological Well-being and Life Satisfaction
- COVID-19 and Mental Health
- Diabetes Management and Education
- Health, psychology, and well-being
- Health Systems, Economic Evaluations, Quality of Life
- Palliative Care and End-of-Life Issues
- Urban Green Space and Health
- Aging, Elder Care, and Social Issues
- Long-Term Effects of COVID-19
- Health and Wellbeing Research
- Education, Healthcare and Sociology Research
- Healthcare innovation and challenges
- Recreation, Leisure, Wilderness Management
- Neurobiology of Language and Bilingualism
- Patient-Provider Communication in Healthcare
- Grief, Bereavement, and Mental Health
- Health and Well-being Studies
University of Bradford
2018-2025
University of Exeter
2015-2024
Brunel University of London
2021-2024
NIHR Applied Research Collaboration South West Peninsula
2024
Peninsula Research
2023
Bridge University
2022
Newcastle University
2022
Collins College
2022
UNSW Sydney
2022
Oaks Hospital
2022
Enabling people with dementia and carers to 'live well' the condition is a key United Kingdom policy objective. The aim of this project identify what helps live well or makes it difficult in context having caring for person dementia, understand 'living means from perspective carers.
Objectives To establish the prevalence of loneliness among family caregivers people with dementia and to identify potential risk factors for loneliness.Methods Using data from baseline wave Improving experience Dementia Enhancing Active Life (IDEAL) cohort study, we examined in 1283 mild-to-moderate living Great Britain. Multinomial regression was used examine relative influence a series caregiver loneliness.Results Almost half, 43.7%, reported moderate 17.7% severe loneliness. Greater...
The aim was to investigate the co-morbidity profile of people with dementia and examine associations between severity co-morbidity, health-related quality life (HRQoL) (QoL).The improving experience Dementia Enhancing Active Life (IDEAL) cohort consisted 1,547 diagnosed who provided information on number type co-morbid conditions. Participants also ratings their dementia-specific QoL.The majority sample were living more than one chronic condition. Hypertension commonly reported frequently...
Despite a wealth of research on factors affecting the well-being caregivers for people with dementia, relatively little attention has been given to issues facing in early stages and few attempts have made explore subjective experience using qualitative methods. This study explores subjective, psychological spouses or partners early-stage dementia.We conducted semi-structured interviews 34 diagnosis recruited through Memory Clinics, order elicit participants' understanding of, perspective on,...
ABSTRACT Background: Self-management equips people to manage the symptoms and lifestyle changes that occur in long-term health conditions; however, there is limited evidence about its effectiveness for with early-stage dementia. This pilot randomized controlled trial (RCT) explored feasibility of a self-management intervention Methods: The participants were dementia ( n = 24) each participant caregiver also took part. Participants randomly allocated either an eight-week group or treatment as...
This paper investigates how meaning, motivation and relationship dynamics influence the caregivers’ subjective experience of caregiving. We interviewed 12 family caregivers relatives with dementia. analysed transcripts these interviews using interpretative phenomenological analysis. Six key themes emerged from analysis, which were encompassed under an overarching theme ‘balancing needs’. describes constant struggle to balance their own needs against those relative, created a series dilemmas....
ABSTRACT Background: Numerous theoretical models have been developed to explore how caregiving can impact on outcomes. However, limited attention has given the effects of caregivers’ motivations for providing care, meaning they find in caregiving, and nature their relationship with care-recipient. The current study explored associations between intrinsic extrinsic motivations, ability pre-caregiving quality, way which these variables interact influence Methods: This was a cross-sectional...
The observation of a bilingual advantage in executive control tasks involving inhibition and management response conflict suggests that being might contribute to increased cognitive reserve. In support this, recent evidence indicates bilinguals develop A lzheimer's disease ( AD ) later than monolinguals, may retain an performance on tasks. We compared age at the time receiving diagnosis W elsh/ E nglish speakers n = 37) monolingual 49), assessed 24) monolinguals 49) range There was...
ObjectiveThe aim of this study was to identify the potential impact positive and negative dimensions caregiving on caregiver well-being satisfaction with life (SwL).MethodsThis used time-point one data from Improving experience Dementia Enhancing Active Life (also known as IDEAL)cohort that involved 1,283 informal caregivers people in mild-to-moderate stages dementia recruited 29 sites within Great Britain. Multivariate linear regression modeling investigate associations between (measured by...
We aimed to better understand what predicts the capability "live well" with dementia by identifying relative contribution of life domains associated subjective experience living well.We analyzed data from 1547 individuals mild-to-moderate in IDEAL cohort. generated a "living latent factor measures quality life, satisfaction and well-being. used multivariate modeling identify variables related well structural equation derive for 5 examine associations these well.All were individually well....
Objectives: The quality of the relationship between people with dementia and their informal caregiver maybe an important determinant life satisfaction well-being for both members dyad. Taking a dyadic perspective, aim this study was to examine whether self- partner-rated influences caregivers.Design methods: Using data from 1283 dyads in Improving Experience Dementia Enhancing Active Life (IDEAL) cohort, we examined impact current on caregiving dyads. Data were analysed using Actor-Partner...
Key points The focus on living well with dementia encourages a more positive and empowering approach right support can improve the experience of An holistic to assessing needs people identifying factors that impact their well‐being is essential Enabling live better requires broad encompasses both health social systems wider community
Background Informal dementia caregiving has traditionally been perceived as an extremely stressful process; however, more recent research started to focus on the positive aspects of providing care. Studies indicate that caregivers who derive something out have better well‐being. However, there little exploration factors linked identifying The aim current study was explore predictors finding meaning in caregiving. Methods This a cross‐sectional questionnaire which respondents were 447 people...
Self-management interventions are increasingly offered to people with chronic health conditions. However, there has been limited exploration of how applicable such an approach is in early stage dementia. In this study we explored the views dementia and family caregivers on use self-management We conducted semistructured interviews 13 11 caregivers. analyzed transcripts using thematic analysis. found eight themes analysis, they indicated that occurs context peoples’ social relationships as...
Evidence for a bilingual advantage in executive control has led to the suggestion that being might protect against late-life cognitive decline. We assessed performance of socially homogeneous groups older (≥60 years) Welsh/English (n = 50) and monolingual English 49) speakers on range tasks yielding 17 indices comparison. Effect sizes (>.2) favoured monolinguals 10 indices, with negligible differences observed remaining 7 indices. Univariate analyses indicated performed significantly better...
Objectives: The capability to ‘live well’ in people with dementia can be influenced by many factors, including those related the experiences of their informal caregiver. How caregivers experience own role affect not only well-being but also way they provide care and hence person dementia. aim this study is identify potential impact caregiver’s perception caregiving on how mild moderate self-rate QoL, satisfaction life.Method: This utilised time-point 1 data from 1283 caregiver whom IDEAL...
There is a major need for longitudinal research examining the experiences of people with dementia and their primary carers, as relatively little known about how factors associated capability to 'live well' vary over time. The main aim IDEAL-2 study investigate why, time, carers might in live well dementia, whilst exploring both use health care services unmet needs. will build on Improving experience Dementia Enhancing Active Life (IDEAL) cohort 1547 (who, at recruitment between July 2014...
Introduction: Understanding key influences on outcomes for caregivers of people with dementia is hampered by inconsistent conceptualization and measurement limited evidence about the relative impact different variables. We aimed to address these issues. Methods: analyzed data from 1283 community-dwelling individuals mild-to-moderate in Improving experience Dementia Enhancing Active Life cohort study. generated a “living well” latent factor measures quality life, satisfaction well-being. used...
Dementia can affect language processing and production, making communication more difficult. This creates challenges for including the person's perspective in research service evaluation. study aims to identify methods, tools approaches that could facilitate meaningful with people moderate-to-severe dementia support inclusion of their perspectives.
Abstract Objectives Longitudinal evidence documenting health conditions in spousal caregivers of people with dementia and whether these influence caregivers’ outcomes is scarce. This study explores type number over two years subgroups based on age, sex, education, hours care, informant-rated functional ability, neuropsychiatric symptoms, cognition the person dementia, length diagnosis dementia. It also time associated stress, positive experiences caregiving, social networks Methods data from...