Content validity is the most important measurement property of a patient-reported outcome measure (PROM) and challenging to assess. Our aims were to: (1) develop standards for evaluating quality PROM development; (2) update original COSMIN assessing content studies PROMs; (3) criteria what constitutes good PROMs, (4) rating system summarizing evidence on PROM's grading in systematic reviews PROMs. An online 4-round Delphi study was performed among 159 experts from 21 countries. Panelists...

Abstract Purpose The Patient and Observer Scar Assessment Scale (POSAS) is widely used for measurements of scar quality . This encompasses visual, tactile sensory characteristics the scar. previous POSAS versions was lacking input from patients. Therefore, aim this study to develop POSAS3.0, with involvement adults patients all types, complying highest clinimetric standards. Methods From February 2018 April 2019, a series six focus group interviews were performed in Netherlands Australia...

Abstract Background Due to the aeging of population, there is a societal need for workers prolong their working lives. In Netherlands, many employees still leave workforce before official retirement age 65. Previous quantitative research showed that poor self-perceived health risk factor (non-disability) early retirement. However, little known on how may lead retirement, and why leads in some employees, but not others. Therefore, present qualitative study aims identify which ways influences...

Objective Despite the availability of mental health care, only a minority depressed adolescents and young adults receive treatment. This study aimed to investigate facilitating factors barriers in help-seeking behaviour with depressive symptoms, using qualitative research methods. Methods In-depth, semi-structured interviews 32 participants current or previous symptoms aged 16 24 years thematic content analysis. Findings Our sample consisted mainly who eventually found their way professional...

Abstract Background Due to the aging of population and subsequent higher pressure on public finances, there is a need for employees in many European countries extend their working lives. One way which this can be achieved by refraining from retiring early. Factors predicting early retirement have been identified quantitative research, but little known why how these factors influence retirement. The present qualitative study investigated non-health related retirement, Methods A among 30 Dutch...

In economic evaluations of care services for older adults health-related quality life (QoL) measures such as the EQ-5D are increasingly replaced by ICECAP-O and ASCOT, which cover a broader scope QoL than health alone. Little is known about content validity feasibility these measures. The purpose this study was to explore EQ-5D-3L, ASCOT in adults. Ten were purposively sampled using maximum variation principle. Think-aloud verbal probing techniques used identify response issues encountered...

In order to improve and optimize future behavioral family lifestyle intervention programs, more information on the perceptions of obese children their parents these programs is needed. As such, aim this qualitative study 1) explore expectations in relation interventions; 2) identify barriers making changes that face within social context (within family, at school amongst friends peers) as well things facilitate 3) needs a intervention.A using semi-structured interviews was conducted....

Quality of life (QoL) is considered to be an indispensable outcome measure curative and palliative treatment. However, QoL research often yields findings that raise questions about what measurement instruments actually assess how the scores should interpreted. To investigate patients interpret respond on EORTC-QLQ-C30 over time find explanations account for counterintuitive in measurement. Qualitative investigation was made response behaviour small-cell lung cancer (n = 23) with European...

Continuity of care during labour is important for women. Women with an intrapartum referral from primary to secondary look back more negatively on their birh experience compared those who are not referred. It clear which aspects contribute this negative birth experience. This study aimed explore in-depth the experiences women were referred regard different continuity care.A qualitative interview was conducted in Netherlands among at onset and before baby born. Through purposive sampling 27...

Individual Placement and Support (IPS) is an evidence-based approach to help people with severe mental illness achieve competitive employment. This article provides insight into organizational a financial implementation strategy for IPS in the Netherlands by exploring perceived facilitators barriers among participating stakeholders. The goal of this multifaceted was improve improving collaboration between all organizations involved, realising secured funding 'pay performance' element.A...

New treatments for haemophilia are under development or entering the market, including extended half-life products, designer drugs and gene therapy, thereby increasing treatment options haemophilia. It is currently unknown how people with decide whether to switch a new treatment. Therefore, objective of this study was explore what factors may play role when Dutch patients parents boys moderate severe make decisions about different treatment, disease characteristics affect these decisions....

Response shift has gained increasing attention in the measurement of health-related quality life (QoL) as it may explain counter-intuitive findings a result adaptation to deteriorating health. To search for response type explanations account QoL measurement. Qualitative investigation behaviour small-cell lung cancer (SCLC) patients (n = 23) fatigue with The European Organization Research and Treatment Cancer Core Quality Life Questionnaire (EORTC QLQ-C30) question 'were you tired'....

Adherence to medication in patients with type 2 diabetes varies widely, yet the factors that influence adherence according are not fully known. The aim of this study is explore both related high and lower levels experienced their use.Primary care Netherlands.Qualitative, semi-structured interviews were performed 20 diabetes. Interviews audio-taped transcribed verbatim. Transcripts coded analysed using content analysis constant comparison. Main outcome measure experiences opinions concerning...

Background: Since its launch in 2003, the Dutch Lung Cancer Information Center's (DLIC) website has become increasingly popular. The most popular page of is section "Ask Physician", where visitors can ask an online lung specialist questions anonymously and receive answer quickly. Most were not only asked by cancer patients but also their informal caregivers. concerned specific information about cancer. Objective: Our goal was to explore reasons why caregivers search Internet for specialists...

Borderline personality disorder (BPD) is associated with unemployment and impaired functioning. However, a comprehensive understanding of barriers facilitators to employment from multidisciplinary perspective currently lacking. Therefore, the aim this qualitative study was explore in gaining maintaining BPD perspectives patients, mental health practitioners (MHPs) insurance physicians (IPs).Fifteen semi-structured interviews were conducted patients two focus groups carried out among MHPs (n...

Abstract Objective To explore if and how female adolescents engage in shared eating joint food choices with best friends within the context of living urban Soweto, South Africa. Design A qualitative, exploratory, multiple case study was conducted using semi-structured duo interviews friend pairs to ascertain their patterns, friendship social interactions around dietary habits. Setting Participants were recruited from three high schools township Subjects Fifty-eight (twenty-nine pairs) still...

Background Many Muslims with diabetes choose to fast against medical advice during Ramadan, potentially increasing their risk of acute complications. Patients are often reluctant disclose fasting health care providers, and needs regarding Ramadan not met in consultations. For healthcare professionals provide patient-centred care, it is important gain more insight into patients’ decision-making process. This study therefore aims explore how decide whether Ramadan. Methods A qualitative was...

Patients with medically unexplained physical symptoms (MUPS) seek explanations for their symptoms, but often find general practitioners (GPs) unable to deliver these. Different methods of explaining MUPS have been proposed. Little is known about how communication evolves around these explanations. To examine the dialogue between GPs and patients related in a community-based clinic MUPS. We categorized types outcomes. were ≥18 years inclusion criteria moderate MUPS: ≥2 referrals specialists,...

To clarify and elaborate on the choices that were made in development of Patient Scale Observer Scar Assessment 3.0 (POSAS 3.0), based upon rich information obtained from patients during focus groups pilot tests.The discussions described this paper are a reflection group study tests conducted order to develop POSAS3.0. The took place Netherlands Australia included 45 participants. Pilot performed with 15 participants Australia, Netherlands, United Kingdom.We discussed selection, wording...

Objective The objective of this study was to determine what makes men and women with musculoskeletal complaints decide call in sick for work. Methods Qualitative, face-to-face interviews were used employees (16 14 women) who had called due a complaint expected be absent from work at least 2 weeks on leave. Results participants fell into the following two main groups: those off because diagnosed medical condition, such as fracture, an unidentifiable complaint, low-back pain. Employees former...