A5050724066- Airway Management and Intubation Techniques
- Family and Patient Care in Intensive Care Units
- Tracheal and airway disorders
- Cystic Fibrosis Research Advances
- Respiratory Support and Mechanisms
- Neurogenetic and Muscular Disorders Research
- Neonatal Respiratory Health Research
- Simulation-Based Education in Healthcare
- RNA modifications and cancer
- COVID-19 and Mental Health
- Autoimmune and Inflammatory Disorders Research
- Infant Development and Preterm Care
- Childhood Cancer Survivors' Quality of Life
- Kawasaki Disease and Coronary Complications
- Congenital Anomalies and Fetal Surgery
- Pediatric health and respiratory diseases
- COVID-19 Clinical Research Studies
- Child Nutrition and Feeding Issues
Istanbul University-Cerrahpaşa
2020-2025
Istanbul University
2022
OBJECTIVE:The aims of this multi-center study were to describe the characteristics children receiving long-term home mechanical ventilation (HMV) in İstanbul and compare patients non-invasive invasive ventilation. MATERIAL AND METHODS:This cross-sectional multicenter included all HMV followed by admission six tertiary hospitals.The data collected between May 2020 2021.Demographic regarding from patient charts. RESULTS:The 416 participants.The most common diagnoses neuromuscular (35.1%)...
(1) Background: We aimed to describe the clinical features and outcomes of coronavirus disease-2019 (COVID-19) in children late adolescents with inflammatory rheumatic diseases (IRD) measure their severity risks by comparing them healthy children. (2) Methods: Among found be severe acute respiratory syndrome-coronavirus-2 (SARS-CoV-2) positive via polymerase chain reaction (PCR) test, IRD patients an at least six-months follow-up duration, were included study. Data obtained retrospectively....
Respiratory involvement is the main factor predicting prognosis of spinal muscular atrophy (SMA). Significant responses in motor functions have been demonstrated with nusinersen, but pulmonary outcomes are still varied. We aimed to explore effects nusinersen on respiratory patients SMA.Patients SMA who were receiving regular treatment our tertiary care hospital enrolled this study. evaluated terms necessity ventilatory or nutritional support, presence and other comorbidities related at three...
Abstract Background Since the COVID‐19 pandemic became a serious health concern globally, patients with chronic diseases have required close attention regard to general risks and individual treatment. We aimed reveal status of pediatric asthmatic during pandemic, considering role household factors in parental attitudes. Methods asked 60 their parents respond questionnaire, aim revealing current approach family asthma management pandemic. Results A total eight had an attack outbreak, but...
Tracheostomy care in children may be challenging, due to lack of knowledge healthcare providers (HCPs). The aim this study was determine the level HCP who follow patients with tracheostomy and increase theoretical training a simulation laboratory.ISPAT (IStanbul PAediatric Tracheostomy), multidisciplinary team for established program prepared. Participants were subjected practical pretests which evaluated their levels skills care, follow-up, treatment patient tracheostomy. After given...
The decline in pulmonary function is a predictor of disease progression patients with cystic fibrosis (CF). This study aimed to determine the rate percent predicted forced expiratory volume 1 s (ppFEV1) based on data CF Registry Turkey. secondary aim was investigate risk factors related ppFEV1.
Objectives:This study aimed to monitor the health and nutritional status of pediatric cystic fibrosis (CF) patients via telehealth services during novel coronavirus disease 2019 (COVID-19). Additional aims were determine level anxiety in their caregivers COVID-19 transmission among CF patients.Materials Methods:The team supported remote contact. During interviews, addition obtaining information about patients' anthropometric measurements, status, CF-related complaints, State-Trait Anxiety...
<b>Background:</b> Prolonged survival of patients with chronic respiratory failure increased the number receiving long-term home ventilation (LTHV). This study aimed to describe aetiology and patterns use LTHV in Istanbul. <b>Methods:</b> cross-sectional included children on invasive (IV) non-invasive (NIV) from six tertiary hospitals. Data including underlying diagnosis were collected patients9 charts. <b>Results:</b> Study 416 patients. The most common diagnoses neuromuscular (35.1%)...
Objectives: To follow-up pediatric CF patients—in terms of health status and nutritional status—via Telehealth services during the COVID-19 pandemic. Additional aims were to measure level anxiety in patients their parents, determine transmission patients. Materials Methods: The team supported via remote contact, including dedicated telephone lines. During Services interviews, addition obtaining information about patients’ anthropometric measurements, status, CF-related complaints,...
Advances in technology recent years increased the long-term survival rate of patients with chronic respiratory failure. As a result, number receiving home mechanical ventilation (LTHV) support is increasing worldwide. The most important step management (HMV) to ensure adequate oxygenation and ventilation. Successful care at requires presence trained caregivers accessibility medical devices team. aims this study were, describe characteristics children on LTHV Istanbul, compare non-invasive...
<b>Introduction:</b> Tracheostomy care in children may be challenging, due to lack of knowledge health providers. The aim this study was determine the level providers who follow patients with tracheostomy and increase theoretical education training a simulation laboratory. <b>Materials Methods:</b> Volunteer participants were subjected pretest which evaluated their for care, follow-up treatment tracheostomy. Then, practical testing three subheadings evaluating change cannula applied. After...
<b>Introduction:</b> The pediatric tracheostomy related mortality mostly occurs due to accidental decannulation and cannula obstruction. caregivers may be discharged with inadequate knowledge. <b>Aims objectives:</b> Simulation training can highlight skills regarding care. Our aim is investigate if a standardized hands-on-training improves knowledge among caregivers. <b>Methods:</b> Before the traning, we applied pretest in order assess their current practises. Skills were evaluated by two...
Introduction : Pulmonary involvement is the main prognostic factor in children with spinal muscular atrophy (SMA). Nusinersen, a new treatment modality, being evaluated recent studies, although respiratory part has not yet been clarified. We aimed to reveal effects of nusinersen on functions patients Methods In this single-center randomised study, conducted between June 2020/July 2021, SMA were before and during therapy. Data collected status, nutritional support, motor involvement, other...