Pilar Barnestein-Fonseca

ORCID: 0000-0003-2767-8017
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About
Contact & Profiles
Research Areas
  • Inhalation and Respiratory Drug Delivery
  • Chronic Obstructive Pulmonary Disease (COPD) Research
  • Dementia and Cognitive Impairment Research
  • Palliative Care and End-of-Life Issues
  • Medication Adherence and Compliance
  • Technology Use by Older Adults
  • Asthma and respiratory diseases
  • Patient Dignity and Privacy
  • Health disparities and outcomes
  • Respiratory Support and Mechanisms
  • Health Systems, Economic Evaluations, Quality of Life
  • Pharmaceutical studies and practices
  • Mobile Health and mHealth Applications
  • COVID-19 and Mental Health
  • Cystic Fibrosis Research Advances
  • Family and Patient Care in Intensive Care Units
  • Geriatric Care and Nursing Homes
  • Grief, Bereavement, and Mental Health
  • Aging, Elder Care, and Social Issues
  • Pharmaceutical Economics and Policy
  • Chronic Disease Management Strategies
  • Palliative and Oncologic Care
  • Stress and Burnout Research
  • Health Literacy and Information Accessibility
  • Nursing care and research

Instituto de Investigación Biomédica de Málaga
2015-2025

Andalusian Centre for Nanomedicine and Biotechnology
2024-2025

Biomedical Research Institute
2020-2021

Fundación Pública Andaluza para la Investigación de Málaga en Biomedicina y Salud
2019-2020

Universidad de Málaga
2016

Sociedad Andaluza de Medicina Familiar y Comunitaria
2015

Andalusian Health Service
2015

COVID-19 forced the implementation of restrictive measures in Spain, such as lockdown, home confinement, social distancing, and isolation. It is necessary to study whether limited access basic services decreased family support could have deleterious effects on cognition, quality life, mental health vulnerable older people.This aims explore impact outbreak cognition adults with mild cognitive impairment or dementia main outcome perceived status, depression secondary outcomes analyze...

10.2196/30598 article EN cc-by Journal of Medical Internet Research 2021-12-23

Therapeutic adherence of patients with chronic obstructive pulmonary disease (COPD) is poor. This study evaluated the effectiveness a multifactorial intervention on improving therapeutic in scheduled inhalation therapy.The design consisted randomised controlled trial primary care setting. 146 diagnosed COPD were randomly allocated into two groups using block randomisation technique. One-year follow-ups three visits performed. The motivational aspects related to (beliefs and behaviour) form...

10.1186/1471-2466-14-70 article EN cc-by BMC Pulmonary Medicine 2014-04-25

Background Information and communication technologies are promising tools to increase the quality of life people with dementia or mild cognitive impairment that their caregivers. However, there barriers use associated sociodemographic factors negative attitudes, as well inadequate knowledge about technologies. Objective The aim this study was analyze technophilia (attitudes toward new technologies) smartphones tablets along in dementia/mild Methods Data from first visit Support Monitoring...

10.2196/17253 article EN cc-by Journal of Medical Internet Research 2020-03-22

Background: Family is a crucial social institution in end-of-life care. caregivers are encouraged to take on more responsibility at different times during the illness, providing personal and medical Unpaid work can be overburdening, with women often spending time care than men. Objectives: This study explored multiple views family’s role from critical perspective relational autonomy lens, considering gender socio-cultural context applying framework. It patients, relatives healthcare...

10.1177/26323524241260425 article EN cc-by-nc Palliative Care and Social Practice 2024-01-01

Background Large, international cohort studies generate high-level evidence, but are resource intense. In end-of-life care such scarce. Hence, planning for future in terms of data on screening, recruitment, retention and survival remains a challenge. Objectives The aim was to describe follow-up multinational study patients’ relatives’ expectations, concerns preferences at the end life. Methods this 11-country with six months patients, >18 years old, were included basis an adapted...

10.1371/journal.pone.0317002 article EN cc-by PLoS ONE 2025-01-09

Abstract Background The integral model of Palliative Care recognizes the community as essential element in improving quality life patients and families. It is necessary to find a formula that allows have voice. aim this scoping review identify barriers facilitators engage PC. Methods Systematic search was conducted NICE, Cochrane Library, Health Evidence, CINAHL PubMed database. Keywords: care, End networks, engagement, public participation, social facilitators. Results Nine hundred...

10.1186/s12904-024-01424-4 article EN cc-by BMC Palliative Care 2024-05-07

Background: Outcome measurement is essential to progress clinical practice and improve patient care. Aim: To develop a Core Set for best care the dying person. Design: We followed Measures in Effectiveness Trials (COMET) Initiative guidelines, which involved identifying potential outcomes via systematic literature review (n = 619 papers) from participants “iLIVE” project (10 countries: 101 patients, 37 family members, 63 clinicians), by two-round Delphi study, consensus meeting....

10.1177/02692163241300867 article EN Palliative Medicine 2024-12-04

Background: Many countries are witnessing a trend of growth in the number and proportion older adults within total population. In Europe, population aging has had will continue to have major social economic consequences. This is fundamentally positive development where added life span great benefit for both individual society. Yet, risk contract noncommunicable diseases disability increases with age. may adversely affect individual's ability live his or her way that desired. Cognitive...

10.2196/13711 article EN cc-by JMIR Research Protocols 2019-05-25

Introduction An online interactive repository of available medication adherence technologies may facilitate their selection and adoption by different stakeholders. Developing a is among the main objectives European Network to Advance Best practices technoLogy on adherencE (ENABLE) COST Action (CA19132). However, meeting needs diverse stakeholders requires careful consideration structure. Methods analysis A real-time Delphi study from 39 countries with research, practice, policy, patient...

10.1136/bmjopen-2021-059674 article EN BMJ Open 2022-04-01

Therapeutic adherence of patients with chronic obstructive pulmonary disease (COPD) is poor. It therefore necessary to determine the magnitude non-adherence develop strategies correct this behaviour. The purpose study was analyse diagnostic validity indirect methods.195 COPD undergoing scheduled inhaled treatment attending 5 Primary Care Centres Malaga, Spain.Sociodemographic profile, illness data, spirometry, quality life (St. George Respiratory Questionnaire: SGRQ), and medication counting...

10.1186/1471-2466-11-6 article EN cc-by BMC Pulmonary Medicine 2011-01-24

Drugs for inhalation are the cornerstone of therapy in obstructive lung disease. We have observed that up to 75 % patients do not perform a correct technique. The inability correctly use their inhaler device may be direct consequence insufficient or poor technique instruction. objective this study is test efficacy two educational interventions improve techniques with Chronic Obstructive Pulmonary Disease (COPD).This uses both multicenter patients´ preference trial and comprehensive cohort...

10.1186/1745-6215-13-64 article EN cc-by Trials 2012-05-21

Introduction: Current literature lacks detailed understanding of the reimbursement framework medication adherence enhancing interventions (MAEIs). As part ENABLE COST Action, EUREcA ("EUropen REimbursement strategies for targeting Adherence") study aimed to provide an in-depth overview reimbursed MAEIs currently available in European countries at national and regional levels pave way further be implemented future. Methods: A web-based, cross-sectional survey was performed across 38 Israel....

10.3389/fphar.2022.892240 article EN cc-by Frontiers in Pharmacology 2022-06-17

Abstract Background Low therapeutic adherence to medication is very common. Clinical effectiveness related dose rate and route of administration so poor can reduce the clinical benefit treatment. The patients with chronic obstructive pulmonary disease (COPD) extremely according most studies. research about COPD has mainly focussed on quantifying its effect, few studies have researched factors that affect non-adherence. Our study will evaluate a multifactor intervention improve patients....

10.1186/1745-6215-12-40 article EN cc-by Trials 2011-02-14

Mild cognitive impairment and mild dementia progressively compromise the ability of people to live independently can have a negative impact on their quality life. Within current European Active Assisted Living programme (AAL), project TV-AssistDem has been developed deliver TV-based platform service support patients with or provide relief caregivers. The application is intended be used daily at home, mainly by participants themselves, help informal aim this study evaluate effectiveness...

10.1186/s12877-019-1267-z article EN cc-by BMC Geriatrics 2019-09-06

Introduction Adequately addressing the needs of patients at end life and their relatives is pivotal in preventing unnecessary suffering optimising quality life. The purpose iLIVE study to contribute high-quality personalised care different countries cultures, by investigating experiences, concerns, preferences use terminally ill families. Methods analysis an international cohort which with estimated expectancy 6 months or less are followed up until they die. In total, 2200 will be included...

10.1136/bmjopen-2021-057229 article EN cc-by BMJ Open 2022-08-01

Objectives: Medication non-adherence in patients with chronic obstructive pulmonary disease is common. The aim to evaluate the efficacy of two interventions improve inhalation technique (IT) Also determine optimal IT reminder time and test role preferences intervention selection. Method: 726 common (consecutive sampling) from trials: 1) TECEPOC-study (patients' preference trial/comprehensive cohort design) 2) TIEPOC-study (randomised controlled trial). Interventions: intervention-A (ad-hoc...

10.3389/fphar.2022.989362 article EN cc-by Frontiers in Pharmacology 2023-01-04

Palliative care (PC) is oriented to improving the quality of life patients and their families who are facing problems associated with life-threatening illness. It a continuously changing evolving field. Although it universal right, there many barriers addressing unmet need for PC, affecting both patient family as well health professionals (HCP). Many studies have highlighted needs caregivers, but also necessary understand HCP in order better develop PC. therefore identify all those guarantee

10.21037/apm-23-324 article EN Annals of Palliative Medicine 2024-06-11

Background: An appropriate inhalation technique and adherence to treatment are both critical determinants of the success chronic obstructive pulmonary disease (COPD) management. We have observed that up 75% patients do not use a successful technique. Knowledge evaluation frequent reassessment inhaler use, together with education healthcare professionals, can significantly improve benefits COPD will derive from therapy. The objective this study is test efficacy two educational interventions...

10.7573/dic.212261 article EN cc-by-nc-nd Drugs in Context 2014-04-14

Chronic obstructive pulmonary disease (COPD) accounts for 10–12 % of primary care consultations, 7 hospital admissions and 35 chronic incapacity related to productivity. The misuse inhalers is a significant problem in COPD because it associated with reduced therapeutic drug effects leading lack control both symptoms disease. Despite all advice, health professionals’ practice management inhalation treatments usually deficient. Interventions improve inhaler technique by professionals are...

10.1186/s13063-016-1269-5 article EN cc-by Trials 2016-03-17

Background: Incorrect inhalation technique (IT) is an important issue for chronic obstructive pulmonary disease (COPD) patients and healthcare professionals. Studies in which counseling carried out with professionals beforehand so that they can properly educate their are required. The objective of the present trial to assess improvement performance IT subjects COPD prescribed inhaled therapy after implementation educational intervention conducted by general practitioners. Methods: A cluster...

10.3389/fphar.2023.1266095 article EN cc-by Frontiers in Pharmacology 2023-10-17

The aim of this study is to determine the mental model that patients with COPD (chronic obstructive pulmonary disease<strong>)</strong>have about their illness analyzed by Leventhal´s Common Sense Self-Regulation Model. An exploratory-descriptive using qualitative methodology was performed. We included COPD-diagnosed attending three urban and a rural primary care centres. used video-taped group interviews transcribed them Atlas.Ti 5.2 program. 22 (2009 - 2011) 58 were included....

10.6018/analesps.32.1.186211 article EN Anales de Psicología 2015-12-25

The COVID-19 pandemic has led to worldwide implementation of unprecedented restrictions control its rapid spread and mitigate impact. Spanish government enforced social distancing, quarantine, home confinement measures. Such on activities daily life separation from loved ones may lead isolation loneliness with health-related consequences among community-dwelling older adults mild cognitive impairment or dementia their caregivers. Additionally, inadequate access health care support services...

10.2196/26431 article EN cc-by JMIR Research Protocols 2021-04-12
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