A5087931454- Cancer survivorship and care
- Palliative Care and End-of-Life Issues
- Patient-Provider Communication in Healthcare
- Patient Satisfaction in Healthcare
- Health Systems, Economic Evaluations, Quality of Life
- Primary Care and Health Outcomes
- Global Cancer Incidence and Screening
- Thyroid Cancer Diagnosis and Treatment
- Clinical practice guidelines implementation
- Economic and Financial Impacts of Cancer
- Ethics in Clinical Research
- Family Support in Illness
- Mental Health and Patient Involvement
- Cancer-related cognitive impairment studies
- Cannabis and Cannabinoid Research
- BRCA gene mutations in cancer
- Health Policy Implementation Science
- Advances in Oncology and Radiotherapy
- Thyroid and Parathyroid Surgery
- Interprofessional Education and Collaboration
- Health and Medical Research Impacts
- Healthcare Systems and Technology
- Patient Dignity and Privacy
- Glioma Diagnosis and Treatment
- Biomedical Ethics and Regulation
University of Newcastle Australia
2016-2025
Hunter Medical Research Institute
2014-2025
John Hunter Hospital
2024
Cancer Institute of New South Wales
2020-2023
Hudson Institute
2022
Hunter Cancer Research Alliance
2015-2021
University of Calgary
2011
Purpose: The Institute of Medicine (IOM) identified patient-centeredness as crucial to quality health care. IOM endorsed six dimensions that stipulated care must be: respectful patients' values, preferences, and expressed needs; coordinated integrated; provide information, communication, education; ensure physical comfort; emotional support; involve family friends. Patient-reported measures examine the patient's perspective are essential accurate assessment patient-centered This article's...
ABSTRACT Introduction Despite the increased demand for medical cannabis (MC), MASCC guidelines state that there is insufficient evidence of its efficacy and safety. Although research has explored professionals’ perceptions MC, to our knowledge minimal exploring patients’ perceptions, particularly in an Australian cancer setting. Methods A survey patients attending oncology outpatient clinics was performed. Patients were ≥ 18 years had a confirmed diagnosis (solid or hematological). Results...
Abstract Background: The International Psycho-Oncology Society (IPOS) recognizes psychosocial cancer care as a universal human right. IPOS emphasized that distress should be measured the 6th Vital Sign alongside temperature, blood pressure, pulse, respiratory rate, and pain. To date, >75 organizations accreditation bodies have endorsed screening, monitoring, treating multifactorial symptoms of an essential component to high-quality care. degree which this international commitment has...
Abstract Introduction Emotional support provided by health care professionals (HCPs) for people diagnosed with cancer is associated improved outcomes. Support via social networks may also be important. Aims To report among a sample of distressed patients and caregivers, (1) the importance attributed to different sources emotional (HCPs networks) caregivers; (2) proportion who indicate they did not receive sufficient levels support; (3) potential associations between respondents’ demographic...
Translational biomedical research relies on the availability of human tissue to explore disease aetiology and prognostic factors, with objective developing better targeted treatments. The establishment biobanks poses ongoing ethical considerations in relation donors. This is a quantitative study exploring medical oncology patients' preferences for contributing biobanks.The objectives this were about banking, including: 1) willingness donate; 2) factors influencing donation decisions; 3) use...
Abstract Background Thyroid cancer diagnoses are increasing and treatment can lead to significant morbidity. Long‐term health‐related quality of life (HRQoL) in thyroid is understudied lacks reference populations. This study compares long‐term HRQoL between patients with or benign disease, following surgery. Methods Patients undergoing thyroidectomy 2000 2017 were identified from a pathology database. 696 participants (278 malignant, 418 benign) invited complete validated disease‐specific...
Most thyroid cancer survivors regain their physical health-related quality of life, but psychological and social deficits persist. The nature these detriments remains poorly understood they are insufficiently captured by survey data alone. To address this, qualitative exploring the breadth depth survivors' experiences priorities for supportive care required.
Community-based services such as telephone support lines can provide valuable informational, emotional, and practical for cancer patients via telephone- or Web-based (live chat email) platforms. However, very little rigorous research has examined the efficacy of in improving patient outcomes.This study will determine whether: proactive Web-delivered produces outcomes superior to printed information; comparable support.A consecutive sample 501 lung outpatients be recruited from 50 Australian...
To identify specific actions for patient-centred quality improvement in chronic disease outpatient settings, this study identified patients' general and preferences among a comprehensive suite of initiatives change.A cross-sectional survey was conducted three hospital-based clinics specializing oncology, neurology cardiology care located New South Wales, Australia.Adult English-speaking outpatients completed the touch-screen Consumer Preferences Survey waiting rooms or treatment areas....
Background: With increasing attention given to the quality of chronic disease care, a measurement approach that empowers consumers participate in improving care and enables health services systematically introduce patient-centered initiatives is needed. A Web-based survey with complex adaptive questioning interactive items would allow easily identify prioritize detailed service initiatives. Objective: The aim was develop test capable identifying prioritizing outpatient services. Testing...
Introduction Over 50% of people affected by cancer report unmet support needs. To address information and psychological needs, non-government organisations such as Cancer Councils (Australia) have developed state-based telephone services. Due to competing demands, evidence the value these services is needed ensure that future investment makes best use scarce resources. This research aims determine costs broader economic social a service, inform funding service provision. Methods analysis A...
Despite the impact of cognitive decline during brain cancer care, implementing routine assessment can be challenging. Effective implementation necessitates an understanding from patient perspective. However, little is known about how people with glioma and their caregivers experience changes, support. To understand lived experiences changes in cognition for including of: i) perceived or objectively measured (or absence decline); ii) following diagnosis, and; iii) met unmet cognition-related...
Objective This study reports on the characteristics of individuals conducting health service research (HSR) in Australia and New Zealand, perceived accessibility resources for HSR, self-reported impact HSR projects barriers to HSR. Methods A sampling frame was compiled from funding announcements, trial registers organisation membership. Listed researchers were invited complete online surveys. Close-ended survey items analysed using basic descriptive statistics. Goodness fit tests determined...