A5045544714- Family and Disability Support Research
- Autism Spectrum Disorder Research
- Child Nutrition and Feeding Issues
- Disability Education and Employment
- Child and Adolescent Psychosocial and Emotional Development
- Behavioral and Psychological Studies
- Cerebral Palsy and Movement Disorders
- Adolescent and Pediatric Healthcare
- Attention Deficit Hyperactivity Disorder
- Infant Development and Preterm Care
- Child and Adolescent Health
- Child Welfare and Adoption
- Down syndrome and intellectual disability research
National Association of State Mental Health Program Directors
2024
Pennsylvania Department of Human Services
2009-2022
This qualitative interview study investigates the perceived barriers and enablers to implementing sustaining individualized positive behavior supports (IPBS) by school-based team members across five stakeholder groups. The findings reveal specific factors broad themes: (a) school culture, (b) administrative leadership support, (c) structure use of time, (d) ongoing professional development, (e) family student involvement. offer insight into interconnectedness that can interfere with or...
In this qualitative interview study, we explored the perceptions of adults with intellectual disability regarding interpersonal or social supports needed to express their own self-determination. Specifically, 10 adults, all members a self-advocacy group, were asked discuss understanding term self-determination and ways in which support staff have either supported inhibited Ten themes characterizing supportive impeding actions identified. The need for greater exploration environmental...
Community participation is essential to overall health and well-being. However, research on the community experiences preferences of autistic adults lacking. Results from a large, mid-Atlantic statewide needs assessment survey found that number activities include social interactions or are focused meeting daily important they participate in these varying degrees. Going shopping at grocery store was most common activity reported also rated as by largest proportion respondents. Autistic with...
A growing number of individuals with autism spectrum disorder are aging into adulthood. In the United States, Medicaid is primary payer for services adults disorder, yet there few funded programs that provide dedicated supports to this population. This study examined experiences in two Medicaid-funded Pennsylvania through focus groups. Researchers conducted 20 groups a total 36 32 family members, direct care staff, and program administrators. Using thematic analysis, we identified three...
Communicating clearly about who is included in a population group critical element to effective dissemination and knowledge transfer. This narrative review highlights the inconsistency as it relates communicating individuals with intellectual disability (ID) developmental (DD).
Living arrangements is an essential component of the social environments for autistic adults. The need to understanding status and experience living has been highlighted.This study examined satisfaction with current adults reported by or caregivers adults.This used data from a statewide survey caregivers.Older those employed had higher financial resources were more likely live alone roommate spouse than family in supervised setting. Correlates greater included being young, either men women...
The Periodic Risk Evaluation (PRE) is a new questionnaire-based tool to identify autistic adults enrolled in Medicaid programs who are at risk for adverse outcomes including mental health and medical conditions, law enforcement interaction, stressful life events, substance use, presence of natural supports, suboptimal living conditions. PRE completed by direct service providers informs case conceptualization drive changes needed supports. was tested sample 674 with mean age 31 years across...
Although we do not have robust prevalence studies in the U.S., a recent meta-analysis estimated that 33.6% of individuals with intellectual and developmental disabilities (I/DD) mental health (MH) condition. We know this may be an underrepresentation because factors like diagnostic overshadowing. also people I/DD experience inequitable access to quality MH preventive care. This highlights chronic lack holistic, integrated care for I/DD, especially those who conditions. Consequently,...